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Author Topic: Who Shall Live?  (Read 14112 times)
boxman55
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« Reply #25 on: November 28, 2008, 06:43:34 PM »
me too
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Chris
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« Reply #26 on: November 28, 2008, 06:57:28 PM »
I'm in, have anymore PKD pics or surgical pics? :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Katey
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« Reply #27 on: December 05, 2008, 07:18:39 AM »
Yes i would definitely like one.  My parents and siblings all live away from me and are eager for me to share!!  Thanks!
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Diagnosed July 1985
Started CAPD 1995
Changed to Hemo 1996
Cadaver Transplant 1999
Back on Hemo Aug 2008
Found this wonderful site Nov 2008!!
nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #28 on: December 09, 2008, 05:52:05 PM »
Okarol,  I would love one, would be happy to send you some money.  Would be a great teaching tool.  Working in Dialysis, we have all been told the stories.  We refer to that panel as "the God Squad" because they were deciding if you were worthy enough to live.   It's similar to that for cadaver transplants now.  In Texas, anyway, the transplant hospital always calls the clinic first, to see "what kind of patient this is"  as far as med compliance, or substance abuse, they won't take you, kidney will go to someone else. 
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Vicki
wrandym
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Whatever, dude!
« Reply #29 on: December 09, 2008, 06:06:38 PM »
Have any others?  I would be forever grateful  :)
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
dkerr
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It is what it is . . .
« Reply #30 on: December 10, 2008, 06:47:54 AM »
I would really love to have one.  Thanks. 
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kitkatz
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« Reply #31 on: December 10, 2008, 03:11:44 PM »
Can I have one, please?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #32 on: December 10, 2008, 03:20:42 PM »
Quote from: kitkatz on December 10, 2008, 03:11:44 PM
Can I have one, please?

I thought I gave you one in Las Vegas - did I miss your bag?? I'm sorry!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #33 on: December 10, 2008, 03:29:42 PM »
That is okay. I know you love me anyway even if you wouldn't share in VEgas!  :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: December 10, 2008, 03:30:45 PM »
Quote from: kitkatz on December 10, 2008, 03:29:42 PM
That is okay. I know you love me anyway even if you wouldn't share in VEgas!  :rofl;

Victor probably sold it on ebay.  :rofl;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #35 on: December 10, 2008, 03:32:57 PM »
Victor does not know how to use Ebay!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #36 on: December 10, 2008, 03:47:29 PM »
Quote from: kitkatz on December 10, 2008, 03:32:57 PM
Victor does not know how to use Ebay!

That's what he wants you to think.  :clap;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #37 on: December 11, 2008, 03:32:19 PM »
 :rofl; :rofl; :rofl; :rofl; :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #38 on: December 18, 2008, 08:33:08 PM »
Darn it! Just thought of this, I should have sent you the extra blank DVD's I have when I sent you a package.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
wrandym
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Whatever, dude!
« Reply #39 on: December 18, 2008, 10:10:40 PM »
If you still have any, may I PM you my address?

thanks
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #40 on: December 18, 2008, 10:58:16 PM »

I apologize that I haven't had a chance to mail these DVD's - just too crazy lately - will do it soon.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #41 on: December 18, 2008, 11:43:15 PM »
It's the holiday crazy season. Give yourself a break for once. Sit down have some  :popcorn; or some  :wine; and relax.

You do know that you do do a lot on here and on other places.
« Last Edit: December 24, 2008, 11:49:57 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
circleNthedrain
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« Reply #42 on: December 18, 2008, 11:44:52 PM »
My best friend and I both came down with renal failure in the late 1970's.  We both heard stories of the 'God Squad' and considered ourselves very lucky to have dodged that bullet.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #43 on: December 24, 2008, 11:41:03 PM »
I am to lend my copy of it to my nephrologist.  In my country, Barbados, the 'god squad' still operates.  My dad, 89, was denied dialysis because of his age!  And he had no other conditions but kidney failure!  A very healthy, alert, functioning member of society!  We still feel robbed!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Chris
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« Reply #44 on: December 24, 2008, 11:52:56 PM »
That just sems so odd for that to happen bajanne2000, but it also doesn't supprise me at the same time. I hope your younger generation of doctors change the habbit.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Ang
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« Reply #45 on: December 25, 2008, 12:40:44 AM »

  In my country, Barbados, the 'god squad' still operates.  My dad, 89, was denied dialysis because of his age!  And he had no other conditions but kidney failure!  A very healthy, alert, functioning member of society!  We still feel robbed!
Quote

here  in  australia  the  famed  god  squad  operates,over  70  years  of  age  ,  you  will  spend  your  days  hooked  to  a  machine,  no  tx
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live  life  to  the  full  and you won't  die  wondering
Bill Peckham
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« Reply #46 on: December 25, 2008, 01:14:09 PM »
You can read a little about this here


I think the link will work - it's a few pages from a book.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
mtnsw
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« Reply #47 on: May 03, 2011, 07:05:23 AM »
I know this has been posted for a long time, but is it still possible to get a copy of this documentary?  I saw it some years ago, and would love to share it other patients and renal professionals (too young to remember when this was the reality).
thanks,
mtnsw
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #48 on: May 03, 2011, 08:28:03 AM »
You can contact Lori Hartwell at the Renal Support Network to see if she can get you a copy www.rsnhope.org
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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