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Author Topic: Photos of huge PKD kidneys - Warning: not for the squeamish!!  (Read 17503 times)
willowtreewren
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My two beautifull granddaughters

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« Reply #50 on: March 26, 2011, 07:03:20 PM »

Incredible pictures. I hope Carl's never get this big.  :thumbdown;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
carol1987
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« Reply #51 on: March 26, 2011, 07:39:27 PM »

ahhhhhhhhhh. omg...those are disgusting!!!   I would rather know what they look like though.. so thanks...
Transplant Doc said mine are small for PKD kidneys....
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
jojosmommy
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« Reply #52 on: April 11, 2011, 11:13:08 AM »

I also have PKD, and yes they do make me look "9 months pregnant" which is unfortunate.  At my last attempted sono (2008), they were too large to be measured.  What I don't get though, is that as my doctor has just recently referred me to the transplant docs, everyone in my center has made it a point to tell me that my BMI will have to be at a certain percentage before I will be considered for transplant.  I don't understand how they can squabble over BMI when obviously my kidney's size is pushing my BMI just up over the limit of what it should be.  I can't argue that losing weight is beneficial for any reason, but do we really need to get caught up on the BMI when it isn't a true BMI of my body weight? Any thoughts on that?
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PKD
Diagnosed Feb. '06
Fistula May '09
Dialysis Sept. '10
Fistulagram- Christmas '10
Cordelia
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« Reply #53 on: April 11, 2011, 11:39:41 AM »

Omg, I thought I was the only one who looked like I was 9 mos pregnant! So, its due to the enlarged cysts? Does everyone have this with PKD? Will that look go away if I have a nephrectomy?
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #54 on: May 14, 2011, 10:40:31 PM »

Autosomal dominant polycystic kidney disease (ADPKD)
From: http://www.brown.edu/Courses/Digital_Path/systemic_path/renal/pcd2.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lawphi
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« Reply #55 on: May 15, 2011, 04:57:34 PM »

I bet she had to buy a new wardrobe. 

Hammett's native kidneys atrophied away.  His cystic disease was a random mutation.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
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