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Author Topic: Personal question for guys on dialysis  (Read 4150 times)
julian230
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Ah cha cha!
« on: October 01, 2008, 08:10:12 PM »
So I noticed when I get too much fluids on me , or have alot , my appendage gets quite big and puffy and my nutsack gets big too , does this happen to anyone else? I told my doctor about this , to which he responded "you lucky bastard!" and than said "... but seriously , see me if it continues in a week".
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Adam_W
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« Reply #1 on: October 01, 2008, 08:51:32 PM »
The only time that has happened with me is when I had a leak in my peritoneum and I had PD fluid leaking down there. My wang swelled up like a tennis ball! Never had anything like that on hemo, though.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
monrein
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Might as well smile
« Reply #2 on: October 01, 2008, 09:12:37 PM »
Definitely see him if it continues in a week Julian.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
circleNthedrain
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« Reply #3 on: October 02, 2008, 01:17:37 AM »
I can echo what Adam said, never had this on hemo but on PD when I developed a small leak.  Looked like I was smuggling a cantaloupe in my pants!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Ang
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« Reply #4 on: October 02, 2008, 03:32:40 AM »
sorry  can't  help  with  advise  but  interested  in  what  the  cause  could  be.
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Angelicfury
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« Reply #5 on: October 02, 2008, 05:42:14 AM »
Sorry. I have not had that problem. The only swelling I get is in the legs under the calves above the ankles.
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Has thou felt the fury of an Angel . . . .

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devon
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« Reply #6 on: October 02, 2008, 06:46:08 AM »
Nope.  Nothing here. 

But stay on top of this because it could be something serious.  It seems unusual to have fluid accumulating in the groin.  Logically it should be going to your feet and legs, not stopping on the way.

What other places do you get fluid accumulating?  Does this happen before dialysis? After? During?

Do you have good circulation to your legs and feet?  Any numbness? Or tingling?  Or pain?

The doc's response, while comic, really wasn't appropriate.  He should be asking questions, not making wisecracks.  Is this the same doc you we were discussing in another thread?
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RichardMEL
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« Reply #7 on: October 02, 2008, 07:30:04 AM »
nothing like that ever happened to me... the fluid usually sits around my tummy (talk about "beer gut" !!)... but never noticed it any lower...

sounds concerning... good luck with it!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
julian230
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Ah cha cha!
« Reply #8 on: October 02, 2008, 07:57:30 AM »
Quote from: devon on October 02, 2008, 06:46:08 AM
Nope.  Nothing here. 

But stay on top of this because it could be something serious.  It seems unusual to have fluid accumulating in the groin.  Logically it should be going to your feet and legs, not stopping on the way.

What other places do you get fluid accumulating?  Does this happen before dialysis? After? During?

Do you have good circulation to your legs and feet?  Any numbness? Or tingling?  Or pain?

The doc's response, while comic, really wasn't appropriate.  He should be asking questions, not making wisecracks.  Is this the same doc you we were discussing in another thread?



Same doctor.  Fluid for me will usually be apparent in my face , and hands. Not in my legs or arms , just hands , face , lower extremities , and thats about it. This happens before dialysis , after dialysis they seem to disappear up until I drink water and than they reappear (After 3 or 4 glasses of water , so its pretty quick) I have good circulation to both feet and legs . No pain , just uncomfortable while in bed because its , excuse me for being graphic , flip flopping all over the place (gives you an idea how enlarged it can get). 
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flip
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« Reply #9 on: October 02, 2008, 05:23:29 PM »
If you figure out what's causing it, let me know. Those male enhancement drugs are getting expensive and insurance won't cover them.  :rofl;

Seriously, I have heard of it happening PD patients due to the fluids.
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julian230
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Ah cha cha!
« Reply #10 on: October 02, 2008, 06:09:46 PM »
So the doctor looked at it today , with his usual humorous rant "some cats are just so lucky"... in which i responded " i don't feel like a lucky cat" ... he says it looks like a hernia , so they took at CT scan and we will find out tomorrow!
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David13
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« Reply #11 on: October 02, 2008, 06:14:12 PM »
A hernia sounds like a logical explanation.  Let us know what the CT scan shows.
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julian230
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Ah cha cha!
« Reply #12 on: October 06, 2008, 04:30:42 PM »
CT scans show nothing. The urologist said it was just fluid there, and that it happens every now and than for patients on dialysis! PHEW! Nothing big , just fluids .
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Wallyz
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« Reply #13 on: October 06, 2008, 09:35:37 PM »
I thought the problem was that there was something big. ;D
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julian230
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Ah cha cha!
« Reply #14 on: October 07, 2008, 06:49:32 PM »
Quote from: Wallyz on October 06, 2008, 09:35:37 PM
I thought the problem was that there was something big. ;D

Technically yes. Now I know if I want a big "ego", all I have to do is drink lots of water.... watch out enzyte! ;-)
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devon
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« Reply #15 on: October 10, 2008, 10:55:03 AM »
Well Jules, some guys have all the luck! 

Drink up! LOL!

-Devon
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BigSky
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« Reply #16 on: October 10, 2008, 11:43:27 AM »
What you describe can happen to people when they have low albumin levels.  Fluid starts leaking into the tissues. 
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