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I Hate Dialysis Message Board
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Dialysis: General Discussion
You havent missed me then ?
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Topic: You havent missed me then ? (Read 7978 times)
KICKSTART
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You havent missed me then ?
«
on:
September 28, 2008, 10:18:36 AM »
What a nightmare its been these past couple of weeks and sadly it hasnt ended yet. A few weeks ago i wrote some threads about having trouble breathing , firstly it was diagnosed it was my low hemoglobin , then my g.p. said it was bronchitis. Well wasnt i in for a shock because it was neither and as a result about 10 days ago i had a heart attack. I was rushed into hospital because i couldnt breathe at all and after lots of oxygen and lots of tests it came back i had a lot of fluid build up around my heart and on my lungs. Anyway after a couple of nights on APD , it pulled 11 kilos of fluid off (none of which was showing up anywhere on my body , like swollen legs etc) and a whole cocktail of drugs, i've been home for a few days now.
The saddest part was having to persuade my mum i needed to get to hospital that morning and getting her here to look after my dogs for me. Now the thing i dread most is about to happen , i have to rehome my dogs , it was so difficult to get them looked after, that i dread it if i need to go into hospital again.
I have enlisted the help of a breed rescue but its not making things any easier , im totally heartbroken and sat thinking whats it all about , why do i put myself through all this. I can think of 99 reasons to totally give up , but only a few to carry on. I think you all know how much my dogs mean to me , but i have had to realize i need to make arrangements for them now for if i need to return to hospital. Im totally devastated as this was what i dreaded most.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
kimcanada
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Re: You havent missed me then ?
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Reply #1 on:
September 28, 2008, 10:32:03 AM »
OH Kickstart
I am so sorry about what you have been going through, I would be devastated about my dogs, but you have to do what you have to do, how are you feeling now? How is your breathing, my hemoglobin is very low also, oh poor you, I will be thinking of you KS
Kim
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willieandwinnie
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Re: You havent missed me then ?
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Reply #2 on:
September 28, 2008, 10:34:24 AM »
KICKSTART, I'm so sorry. I know you must be heartbroken. Please rant here all you want. We care.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Re: You havent missed me then ?
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Reply #3 on:
September 28, 2008, 10:41:42 AM »
Actually I have missed you KS and naively thought that you were just busy after getting the "bronchitis" over and done with.
What a health nightmare you've been going through! I'm sad about the dogs and know how heartbroken you must be. I'm hoping that you can rehome them but retain visiting rights if at all possible.
Keep us updated about things Kickstart. Hugs to you
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
paris
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Re: You havent missed me then ?
«
Reply #4 on:
September 28, 2008, 11:27:17 AM »
Oh my goodness, KickStart! We had no idea! I just thought you were resting and recovering from bronchitis. I should have asked Ken to check on you! I am so sorry. You knew something was wrong but no one was really listening to you. It should have never gotten to that point. And now the stress of your dogs.
Too much to handle when you aren't well. We've missed you and send you lots of love
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Re: You havent missed me then ?
«
Reply #5 on:
September 28, 2008, 11:36:53 AM »
I was hoping it wasn't fluid
http://ihatedialysis.com/forum/index.php?topic=9683.msg164348#msg164348
but your symptoms sounded exactly like when tubes had the same trouble.
I am so very sorry about having to give up your dogs, I know they are like your kids and this must be horrible for you.
I wish there was more support for you. You've been through so much and most of it alone. I agree with trying to find homes where you can visit.
Please keep in touch.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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Re: You havent missed me then ?
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Reply #6 on:
September 28, 2008, 11:42:22 AM »
Dear KS, I was away for two weeks and didn't realize that you weren't posting. I am so, so sorry to hear about the heart attack. And I am so, so sorry to hear about the dogs. Are you sure there isn't another alternative for the dogs in an emergency - like a neighbor? Or what about the vet or the local humane society? Maybe they could help you develop an emergency plan for the animals so that you can keep them.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
charee
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Re: You havent missed me then ?
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Reply #7 on:
September 28, 2008, 01:45:27 PM »
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
lola
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Re: You havent missed me then ?
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Reply #8 on:
September 28, 2008, 02:13:55 PM »
Kickstart I'm so sorry to hear you have to find new homes for your dogs
wish I lived closer I'd watch them for you. I'm also sorry to hear you have been so sick and in the hospital. Take care
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www.caringbridge.org/visit/ottomachado
Sunny
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Re: You havent missed me then ?
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Reply #9 on:
September 28, 2008, 02:19:49 PM »
You have been through a very hard time. It is unbelievable to know all of your symptoms were leading up to a heart attack and I sure wish the doctors would have paid better attention before it got to that point. I am so glad you are recovering well. Sorry about your dogs. I wish there were some way you could keep them. For some of us it is the love of our animals that often help us get through tough times.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
del
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Re: You havent missed me then ?
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Reply #10 on:
September 28, 2008, 05:37:09 PM »
Hope you start to feel better soon.
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Don't take your organs to heaven. Heaven knows we need them here.
RichardMEL
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Re: You havent missed me then ?
«
Reply #11 on:
September 28, 2008, 05:42:42 PM »
KS sweetie of course you have been missed!!! I too thought it may be fluid and I am shocked at 11kg being taken off but clearly you had an issue. Did you not find your weight being over by heaps at dialysis? That seems really odd
I am so sorry...
about your dogs this is a temporary thing yes?? I mean can't your mum look after the doggies while you get this stuff sorted and then you have them back? I am sorry that you will be missing them so much I can understand that much from my own bond with my cat I would be heartbroken if I had to give her up.
All I can say is that you need to remember that YOUR health (as well as theirs) is the most important thing and if this needs to happen.. it needs to happen
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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Re: You havent missed me then ?
«
Reply #12 on:
September 28, 2008, 07:12:34 PM »
I too am sorry Kickstart, I thought you had been doing well. I think if you give it a little more time, everything will get better as far as your dogs are concerned ( you need them) and they need you. If you think finding them a good home is what you need to do then I know you will find them good loving homes. Don't ever think that we don't miss you when we don't see you post. Thanks for letting us know what happened.
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Joe Paul
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Re: You havent missed me then ?
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Reply #13 on:
September 29, 2008, 12:23:14 AM »
Sorry to hear you had a heart attack Kickstart. I hope you don't have to re-home your dogs, give that some time. I pray you continue to get well, and will be able to keep your dogs and your health.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Lucinda
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Re: You havent missed me then ?
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Reply #14 on:
September 29, 2008, 12:37:20 AM »
Hi Kickstart.
This is not going to happen. I couldn't live without my dogs and nor am I going to let you.
I don't know how it works over there but I want you to find out where you closest vet/kennels are and I want you to give me the name. If you get sick again, I will organise payment for their boarding and care.
I don't doubt for a second that if you get rid of your dogs that once you are feeling better you will regret it.
I am absolutely serious about this. You get the name to me, just arrange to get the dogs there or picked up if you are sick and I will take care of the rest.
You love your dogs and I am not going to sit back and see you heartbroken. Let me help.
Lots of love, Cindy. xxxx
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
Re: You havent missed me then ?
«
Reply #15 on:
September 29, 2008, 05:19:55 AM »
Kickstart, like others I thought you were recovering from bronchitis. I'm so sorry this is happening to you. Can any member of your family contact us if god forbid something like this happens again?
About your dogs, with any luck you won't be having another heart attack. Please don't give up, keep your dogs and tell yourself it ain't gonna happen again. Right now I know your feeling down and you are finding it very difficult to keep your normally positive outlook on life, but knowing you, you will bounce back from this, take my word for it.
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Ken
KICKSTART
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Re: You havent missed me then ?
«
Reply #16 on:
September 29, 2008, 07:40:02 AM »
Thanks for all your good wishes
Lucinda .. i have pm'd you.
Sadly for reasons i dont want to go into on here i dont seem to have any choice but to part with my dogs even though im not feeling too bad now. As you know i dont have a great network of support ( i wont say anymore)
On the positive side they have managed to knock my b.p. down from 230/135 ish to 128/82 ..so you can imagine what a shock to my system that has been!! Half the day i sleep the other half i walk round like a zombie, so much so i am questioning the whole point to it all , if this is going to be life for me now, because at this moment i take no pleasure from it and feel more alone than ever. I know i have some long hard thinking to do and some hard decisions to make and thank you all for your support through all this ..it means a lot to me
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
rose1999
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Re: You havent missed me then ?
«
Reply #17 on:
September 29, 2008, 12:29:10 PM »
KS I too haven't been around much lately but I've just read your story and wanted to send my love. I know you will do what is best for you and your dogs and I know it will be a wrench for you, I love my dog......................I wish I could help but I can only send love amd prayers
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KICKSTART
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In da House.
Re: You havent missed me then ?
«
Reply #18 on:
September 30, 2008, 07:31:22 AM »
To everyone concerned i have pm'd Lucinda and explained in more detail about my descision , if any of you want to contact her she has my permission to let you know what i have said .. i just didnt want to post it all on the internet .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
pelagia
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Re: You havent missed me then ?
«
Reply #19 on:
September 30, 2008, 10:44:55 AM »
KS - please give yourself a chance to heal from the heart attack and let the bp settle. While you are doing that, try to remember how important you are to your IHD family. If the bp meds are causing fluctuations in how you feel, the docs should be able to work with you to split up the doses or switch meds so that doesn't happen.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
annabanana
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Re: You havent missed me then ?
«
Reply #20 on:
September 30, 2008, 11:26:59 AM »
Please give yourself a lot of time to do that long hard thinking, Kickstart.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
thegrammalady
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Re: You havent missed me then ?
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Reply #21 on:
September 30, 2008, 01:11:25 PM »
OMG!!!!!!! i lay off the computer for a couple of days and come back to this! with the exception of vegas i never going anywhere again (somebody better bring a lap top)
kickstart, i'm so very glad you're home and feeling at least a little better. i feel really bad about your dogs. i grumble about the two my daughter has, but if they weren't here i'd really miss them. and you are missed when you're not around, never feel that you're not. keep us updated and know i think about you and look forward to your posts.
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jbeany
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Re: You havent missed me then ?
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Reply #22 on:
September 30, 2008, 01:50:42 PM »
So sorry about your babies. . . hope the health gets better soon.
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Gramapat
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Re: You havent missed me then ?
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Reply #23 on:
October 01, 2008, 02:21:43 AM »
Kickstart,
I am so sorry to hear all what you have been going through - and then to have to give up your dogs after all that must be just devastating.
About 10 years ago I had to start BP meds and like you, I was a zombie. After about 2 weeks, I called my doctor and asked him if I could take my BP med at bedtime so I could sleep during the worst of the side effects. Since it was a once a day med, he said sure and I had very little trouble after that. Just thought I would mention that in case it's something you could try.
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okarol
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Re: You havent missed me then ?
«
Reply #24 on:
October 07, 2008, 10:47:14 AM »
Thinking of you Kickstart.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
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