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Author Topic: Depressing new turn of events...  (Read 5526 times)
frankenarm
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« on: September 22, 2008, 06:17:12 PM »
About two and a half weeks ago I started feeling yucky. Since I have a very long history of UTI's I'm very well acquainted with them and it felt like one (though I haven't peed since march... I was slightly confused.) Anyway, I dialized early one saturaday so I could go to a coworkers birthday party, long story made slightly shorter, I developed a huge fever, hurled a couple of times. Went to the ER, took forever to get labs outta me due to really crappy veins, my white count was normal! A fever of 103.8 and throwing up, but my white count was normal. So they sent me home with a "follow up with your regular doc and come back in if it gets worse". Next day (monday) I get a call from the UWMC ER telling me I nee to come in right away and be admitted because my blood cultures grew out a really nasty staph infection! Now, I woke up Monday morning unable to walk, (I have two fake hips due to AVN from the really high doses of steroids after transplant.) and my right hip just wasnt having it. I couldnt put any pressure on it.
Turns out, the staph infection is in my right hip joint and they had to go in surgically to clean it out. 10 inch incision, and staples. I hate staples!  Now, almost two weeks after the emergency surgery I still cant walk, I cant work, and I had to drop this quarter at school. I am a sad duck. The kicker is, none of the docs can figure out where in the world I picked this crappy thing up! Cant figure out how I got it. Now I have to be listed as inactive due to the meds and the risk for reinfection. thats another probably....5 months with no chance of transplant. September kicks my butt for some reason.

Just thought I would share, and explain a little why I cant get to the computer one room away!
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"Laughter is higher than all pain..."

Chronic renal failure since birth (1986)
Grade 5 reflux for 17 years
Hemodialysis for 9 months in 2001-2002
Living-related kidney transplant 2002
Rejection of said transplant Sept. 2007
Restart Hemodialysis Feb. 2008
Current: In-Center Hemodialysis with upper left arm fistula, on some crappy machine that alarms to loud.
kitkatz
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« Reply #1 on: September 22, 2008, 06:18:52 PM »
That sounds bad!  Good luck and a swift recovery!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #2 on: September 22, 2008, 06:30:33 PM »

I am glad you posted, I was wondering if you were off doing something fun.  I am so sorry frankenarm - I hope you feel better every day.

This reminds me that patients who have had hip (or any other joint) replaced MUST take antibiotics prior to ANY teeth cleaning, fistulagram, or any other surgery, to prevent infection.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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« Reply #3 on: September 22, 2008, 08:17:18 PM »
I'm sorry you're going through all this.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #4 on: September 22, 2008, 09:32:08 PM »
Damn frankenarm I'm sorry to hear about this staph infection. Sometimes it just feels like one thing after another keeps happening doesn't it. Well I really do hope that the future starts to look brighter for you soon.  :grouphug;
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Ang
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« Reply #5 on: September 22, 2008, 09:57:19 PM »
here's  hoping  for  a  speedy  recovery(septembers  nearly  over)
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live  life  to  the  full  and you won't  die  wondering
Mimi
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« Reply #6 on: September 22, 2008, 10:08:30 PM »
Sorry to hear this.  You will be in my prayers.

Love, Mimi
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it is putting out the lamp because the dawn has come.
KarenInWA
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« Reply #7 on: September 22, 2008, 10:26:18 PM »
Frankenarm, that sounds awful!  My thoughts and prayers are with you at this time.  You have gone through way too much lately.  May the last days of September and beyond bring you much peace, harmony and well-deserved happiness!  :flower;

Karen
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Joe Paul
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« Reply #8 on: September 23, 2008, 01:16:23 AM »
Hope you get well soon  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #9 on: September 23, 2008, 05:44:25 AM »
:grouphug; frankenarm, I hope you are starting on the road to recovery.  :cuddle;
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peleroja
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« Reply #10 on: September 23, 2008, 08:44:57 AM »
I am so sorry to hear about your problems.  I'm sending you lots of warm fuzzies and showering you with white light to make you feel better.  Oh, yeah, and lots and lots of hugs.   :cuddle;  :cuddle;  :cuddle;  :cuddle;  :cuddle;
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Sunny
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Sunny
« Reply #11 on: September 23, 2008, 01:52:38 PM »
I hope your doing better now. Hopefully the antibiotics are helping so you can get back to your usual self.
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Wayne
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« Reply #12 on: September 23, 2008, 05:26:44 PM »
Hope you get well soon Frankenarm!!!
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
paris
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« Reply #13 on: September 23, 2008, 05:52:20 PM »
Wow, I am so sorry.  That is an incredible amount of pain and illness to deal with at one time.   I hope you start feeling somewhat better soon and at least can get to the computer!   Sending healing wishes   :cuddle;   :flower;
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devon
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« Reply #14 on: September 25, 2008, 06:31:10 AM »
Best wishes Frankenarm!  I hope things are getting better and you can return to us soon!

-Devon
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drinkboy
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« Reply #15 on: September 25, 2008, 11:49:30 AM »
I hope you get better soon!!
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Mariposa
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« Reply #16 on: September 25, 2008, 12:11:25 PM »
Keeping you in Thoughts and Prayers :)
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annabanana
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« Reply #17 on: September 25, 2008, 12:22:02 PM »
 :grouphug;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
okarol
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« Reply #18 on: September 25, 2008, 03:44:51 PM »

How are you feeling frankenarm?  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #19 on: September 25, 2008, 04:07:59 PM »
 :cuddle;   I hope you're feeling better soon!   It does sound like September has been kicking the _______ out of you!  For me, it's been 2007 and 2008!  I'm ready for a change!!!!   :flower;    Feel better soon!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
frankenarm
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« Reply #20 on: October 03, 2008, 07:48:16 PM »
Hello all! Sorry for the long time between posts. This hip thing has been keeping me down, literally. I had my post-op appt today and they took out the staples and said the incision was healing well so yay! She also said that the pain I am still experiencing is totally normal and not some freaky nerve damage (which I feared! Sharp pain in the ... well hip/butt area sucks!) and that I should look into physical therapy.
So, all in all I am feeling better. Im going to try some very light shopping tomorrow for my sisters upcoming 17th birthday. And continue taking it one day at a time.

 :thx; :thx; :thx; Thank you all for your wonderful well wishes!!!  :thx; :thx; :thx;

(and now, back to laying down so my hip doesnt yell at me!)
Logged
"Laughter is higher than all pain..."

Chronic renal failure since birth (1986)
Grade 5 reflux for 17 years
Hemodialysis for 9 months in 2001-2002
Living-related kidney transplant 2002
Rejection of said transplant Sept. 2007
Restart Hemodialysis Feb. 2008
Current: In-Center Hemodialysis with upper left arm fistula, on some crappy machine that alarms to loud.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #21 on: October 03, 2008, 07:50:05 PM »
 :waving; Good to hear from you! Take care!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #22 on: October 04, 2008, 03:43:08 AM »
So sorry you're hurting.  Hope it gets better soon and thanks for letting us know how things are going. :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
David13
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« Reply #23 on: October 04, 2008, 04:56:04 AM »
Sorry to hear about this turn of events.  I hope they determine the cause of the infection so that it can be avoided in the future if possible.  Hope you are feeling much better soon!   :cuddle;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
pelagia
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« Reply #24 on: October 04, 2008, 06:57:52 AM »
good to hear the update and that healing is proceeding  :2thumbsup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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