|
cookie2008
|
 |
« on: September 17, 2008, 04:43:23 PM » |
|
I had mapping on both my arms and they chose the upper part of my right arm i had three operations by two different vascular surgeons and they failed the second surgeon said when he touched my vein it spasmed and closed off. They put in a permacath 2 months ago and now I need it replaced my center told me to talk to the new surgeon about my arm again for their opinion.
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
monrein
|
|
« Reply #1 on: September 17, 2008, 05:23:42 PM » |
|
What a rough time you've had. Can you try to get a referral to the BEST vascular surgeon nearest you, even if you have to go some to get to them?? I'm really hoping they find a solution for you and soon.  |
|
|
|
|
Logged
|
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
|
|
|
|
Rerun
|
|
« Reply #2 on: September 17, 2008, 06:59:06 PM » |
|
Try PD. If not and you really want to live then go to your legs for a fistula. I personally can't go there. Dialysis is only as good as your access. These people who use the same access for years are just damn lucky.
|
|
|
|
|
Logged
|
|
|
|
|
cookie2008
|
|
« Reply #3 on: September 18, 2008, 04:46:13 PM » |
|
I already tried pd and couldnt do it the fluid caused plural effusion around my lungs spent 10 days in the hospital with that and infection. Today the doctor put in a new cathather and next week he is going to map and take pictures of my veins in both arms and my chest so we know what we have to work with this doctor only specializes in accesses.
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
monrein
|
|
« Reply #4 on: September 18, 2008, 04:51:58 PM » |
|
I'm really hoping they can sort something out for you Cookie. It's good that your surgeon specializes in vascular access surgery. All the best and keep us updated OK.  |
|
|
|
|
Logged
|
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
|
|
|
Lilu323
Jr. Member
 Offline
Gender: 
Posts: 79
|
|
« Reply #5 on: September 20, 2008, 11:43:01 AM » |
|
i have a really good vascular surgeon in ny if youn need it.
|
|
|
|
|
Logged
|
|
|
|
|
cookie2008
|
|
« Reply #6 on: September 25, 2008, 01:31:30 PM » |
|
I had the venogram done today and i am going to see a highly recommended vascular surgeon, the vascular surgeon that did the procedure only repairs accesses.
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
willieandwinnie
|
|
« Reply #7 on: September 25, 2008, 01:48:31 PM » |
|
I hope you get things resolved quickly. |
|
|
|
|
Logged
|
"I know there's nothing to it, but I want to know what it is there's nothing to"
|
|
|
|
okarol
|
|
« Reply #8 on: September 25, 2008, 05:57:30 PM » |
|
Good luck Cookie! |
|
|
|
|
Logged
|
|
|
|
|
G-Ma
|
|
« Reply #9 on: September 25, 2008, 06:02:53 PM » |
|
|
|
|
|
|
Logged
|
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
|
|
|
Lilu323
Jr. Member
Offline
Gender:
Posts: 79
|
|
« Reply #10 on: September 25, 2008, 07:35:35 PM » |
|
|
|
|
|
|
Logged
|
|
|
|
|
cookie2008
|
|
« Reply #11 on: November 06, 2008, 09:41:30 PM » |
|
I had my surgery on tuesday and my fistula is working.  |
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
monrein
|
|
« Reply #12 on: November 07, 2008, 03:46:48 AM » |
|
I'm so glad it's working cookie. For me the trickiest thing about my fistula is not sleeping on that arm and cutting off the circulation. Keep on letting us know how things go with it.  |
|
|
|
|
Logged
|
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
|
|
|
|
willieandwinnie
|
|
« Reply #13 on: November 07, 2008, 04:07:54 AM » |
|
 That is so good to hear cookie. Here's hoping you have no more probems. 
|
|
|
|
|
Logged
|
"I know there's nothing to it, but I want to know what it is there's nothing to"
|
|
|
|
cookie2008
|
|
« Reply #14 on: January 15, 2009, 06:50:52 PM » |
|
My fistual is doing good my doctor checked it and I had a narrowing and I had to have a fistualgram and fistualplasty last week we are using one needle and it is doing very well, next week we are going to use 2 needles and we are starting to form buttonholes because I am starting to train for NxStage home hemo in Feb. |
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
paddbear0000
|
|
« Reply #15 on: January 15, 2009, 09:43:21 PM » |
|
It sounds like things are going really well!  I'm so glad it's working cookie. For me the trickiest thing about my fistula is not sleeping on that arm and cutting off the circulation. Keep on letting us know how things go with it.
I think that's going to be my biggest concern too. The only way I can fall asleep is on my stomach with my arms crossed under my chest. It's an old layover from when I had a cyst on my spine. I had bad pain sleeping for months any way but on my stomach. Then I had surgery, and I still needed to lay on my stomach. I've never been able to adjust back to sleeping on my sides. |
|
|
|
|
Logged
|
|
|
|
|
cookie2008
|
|
« Reply #16 on: January 15, 2009, 10:31:42 PM » |
|
Paddbear0000 my surgeon told me to treat my arm normal like i did before just no blood pressure and ivs.
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
nursewratchet
Sr. Member
Offline
Gender:
Posts: 546
"Either do it, or don't do it, don't try"
|
|
« Reply #17 on: January 16, 2009, 02:29:29 AM » |
|
|
|
|
|
|
Logged
|
RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
|
|
|
|
BRANDY
|
|
« Reply #18 on: January 17, 2009, 04:28:07 PM » |
|
What is the buzz and what does it do. what is a thrill. i must know I hear you talking about it but what is it? I repeated myself
|
|
|
|
|
Logged
|
Adapt and Overcome
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
Im diabetic with neuropathy, ckd ,bad back bad neck
|
|
|
|
monrein
|
|
« Reply #19 on: January 17, 2009, 05:09:53 PM » |
|
The thrill (or buzz) is the feel of a working fistula, the blood pumping through the vein which now has arterial blood rushing through it. A real thrill to touch and know it's working well. The "bruit" (french for noise) is the sound it makes when you put your ear to it, a whooshing pumping sound. Music to our access-dependent ears!!
|
|
|
|
|
Logged
|
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
|
|
|
|
BRANDY
|
|
« Reply #20 on: January 18, 2009, 08:05:55 PM » |
|
So if you dont hear it something is wrong?
|
|
|
|
|
Logged
|
Adapt and Overcome
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
Im diabetic with neuropathy, ckd ,bad back bad neck
|
|
|
|
kitkatz
|
|
« Reply #21 on: January 18, 2009, 08:28:46 PM » |
|
If you don't hear it it means the access is going bye bye. Time for an ER visit.
|
|
|
|
|
Logged
|
 lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
|
|
|
cookie2008
|
|
« Reply #22 on: January 25, 2009, 05:56:52 AM » |
|
Well I had a fistulagram and fistulaplasty done two weeks ago, I had a narrowing the Doc said its looks good and sounds good. I went for a checkup thursday and I was told now I need it raised its to deep.
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
cookie2008
|
|
« Reply #23 on: February 11, 2009, 05:57:09 AM » |
|
I went and the doc checked my fistula again and he is letting the most experienced nurse at the unit place my second needle if any problems we will have to have it raised so everything is going good arterial needle is 15 gauge and the venous needle we have used a 17 gauge for 3 treatments everything went well so today we are going to use a 16 gauge needle.
|
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
cookie2008
|
|
« Reply #24 on: February 19, 2009, 02:45:01 PM » |
|
Well we are using 15 gauge needles now and they have to use the longer ones but I am so happy after what I have been thru. Yesterday I had my permacath removed and I took my first shower since July 08 and it was wonderful. Once my fistula gets more mature I will begin training for nxstage. |
|
|
|
|
Logged
|
Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
|
|
|
|
I Hate Dialysis Message Board
Author
