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Dialysis Discussion
Dialysis: General Discussion
Where I will Be Next Week
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Topic: Where I will Be Next Week (Read 3120 times)
Red from Canada
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Where I will Be Next Week
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on:
August 16, 2008, 12:43:44 PM »
Hi guys! Well, my PD is back working again, so far. While I was on Hemo, I signed up for a week at Lions Camp Dorset. Google it. It is very interesting. It is open to all dialysis patients in Ontario and I only heard of it by chance. Does anyone else out there have a facility like this for a bit of a break? We leave tomorrow and will be back next Sunday, so I will let you know how it goes. Gail, did you know about this?
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Lori1851
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This is me Lori , Dustin's mom
Re: Where I will Be Next Week
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Reply #1 on:
August 16, 2008, 01:32:03 PM »
Have a wonderful time!!!!!
Lori/Indiana
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: Where I will Be Next Week
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Reply #2 on:
August 16, 2008, 01:46:05 PM »
I just read about it.
http://www.lionscampdorset.on.ca/
Had never heard of it before. It sounds great:
Camp Dorset is a resort in Ontario, Canada, for Ontarians on kidney dialysis. The resort has a dialysis unit onsite in order to provide guests in renal failure with their dialysis three times a week. It also provides an excellent opportunity to experience the great outdoors; get back to nature; and enjoy a relaxing atmosphere away from the stresses of everyday life.
I hope you have a great time!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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Re: Where I will Be Next Week
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Reply #3 on:
August 16, 2008, 01:47:11 PM »
sounds great, have fun.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
circleNthedrain
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Re: Where I will Be Next Week
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Reply #4 on:
August 16, 2008, 02:37:03 PM »
Sounds great! Let us know how it goes. Have fun!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Joe Paul
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Re: Where I will Be Next Week
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Reply #5 on:
August 16, 2008, 03:57:29 PM »
Glad the PD is working again Red. No camps like that around here I know of, but it sounds great. Have a good time
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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Re: Where I will Be Next Week
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Reply #6 on:
August 16, 2008, 04:07:32 PM »
Red, have a great time. Rest, relax and enjoy
We need more places like this.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Where I will Be Next Week
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Reply #7 on:
August 16, 2008, 04:29:45 PM »
That sounds absolutely marvellous. Have a great time (says Bajanne, jealously wishing she could be there)!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
pelagia
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Re: Where I will Be Next Week
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Reply #8 on:
August 16, 2008, 05:13:57 PM »
enjoy!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Jay72
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Re: Where I will Be Next Week
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Reply #9 on:
August 16, 2008, 05:29:19 PM »
Have a great time I have been there twice.
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devon
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Re: Where I will Be Next Week
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Reply #10 on:
August 18, 2008, 09:46:33 AM »
Oh man! I would LOVE to spend some time in great outdoors! What a WONDERFUL idea! Have a GREAT time!
-Devon
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stauffenberg
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Re: Where I will Be Next Week
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Reply #11 on:
August 18, 2008, 11:04:15 AM »
One of thenurses at my old dialysis unit was trying to persuade people to go there for a while, but I was surprised when she mentioned that they feed the patients there a steady diet of hotdogs! When I pointed dout that hotdogs are forbidden to dialysis patients (too much phosphorous and salt in the processed meat), she said, "Yes, we know, but it's just too difficult to prepare anything else to feed so many people." Oh, I thought, I get it, if we patients find something diffcult, we just have to accept it, but when it comes to the medical profession being inconvenienced in the slightest by having to comply with the strictures they insist we endure all the time, then these requirements can be relaxed!
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Red from Canada
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Re: Where I will Be Next Week
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Reply #12 on:
August 23, 2008, 02:21:59 PM »
I'm back, after a wonderful week! Stauff, I don't know where that nurse got her info! The cottages and efficiencies, you bring your own food and bedding. We were in the full hookup campground area (water, sewer, electricity and also had our own food. That is NOT supplied. They had canoes, boats, paddleboats, tennis courts, nature trails, campfire nights where the recreation instructors made S'mores for the children of families with a patient there. There is a heated indoor pool and hot tub. They had a massage therapist avialable for $40. per hour. They had a Tai Chi instructor(no charge) You could participate in as much or as little as you wished. It is just outside Dorset, which is a picturesque little town with restaurants and a full grocery and General Store. I wish every State and Province would do something like this for their Kidney patients. It is run by the Lions Clubs of Ontario in conjunction with the Kidney Foundation, and maintained by a large group of dedicated volunteers. Each cottage is sponsored and maintained by a different chapter of the Lions. and Burlington, where I live maintains the Medical Centre.
16 stations, Fresenius machines and nursing staff from the local hospital and whichever hospital is up that week. It runs for 10 weeks each summer.
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: Where I will Be Next Week
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Reply #13 on:
August 23, 2008, 04:47:19 PM »
Did you enjoy yourself? What did you do while there? (favorite thing) Would you go back again next year?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Red from Canada
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Re: Where I will Be Next Week
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Reply #14 on:
August 23, 2008, 04:58:48 PM »
Hi Okarol! Yes, I would love to go back again. The potluck supper was fun. The bingo night was hilarious. Each person brings a small item( one or 2 dollars) for the prize table. They let some of the little kids call the numbers and whole families got involved.! I liked the boat rides on the lake, the campfires and friendly happy people, both patients and staff! What an upper and what beautifull country to explore! Hundreds of lakes, rivers and valleys. Your stay has to be approved by your nephrologist and each hospital in the prince is assigned a week to go. The Kidney Foundation of Canada subsidizes each patient by donated 200$ from your local kidney chapter. They rent to corporations and conventions in the off season in order to get funds to run it for the patients for the summer.
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paris
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Re: Where I will Be Next Week
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Reply #15 on:
August 23, 2008, 07:07:51 PM »
Red, sounds like it was a perfect time away. I do wish there were more places like this. It is a great idea. Glad you had a good time.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile
Re: Where I will Be Next Week
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Reply #16 on:
August 27, 2008, 02:20:01 PM »
I used to know three nurses who volunteered their time there and they really enjoyed seeing and getting to know patients away from clinic or hospital settings. It's a terrific program and so nice that families can get to have a nice vacation together. I used to volunteer at the Kidney Foundation (peer support committee) and this was one of that committee's programs and a very popular one it was too.
So delighted that you had fun Red.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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