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flip
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« on: May 07, 2008, 09:04:17 AM » |
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I recently went to a dermatologist because of persistant redness and itching on my arm due to a bad infiltration about 6 weeks ago. He gave me Fluocinonide Ointment and a dosepak of a steroid called Medrol (methylprednisolone). Now, not only is my arm healed, but I'm feeling really awesome. I've got energy and stamina that I haven't had in ages. I'm just wondering if anyone else has had this experience with steroids.
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That which does not kill me only makes me stronger - Neitzsche
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MyssAnne
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« Reply #1 on: May 07, 2008, 09:08:17 AM » |
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No. But I want some!! Energy that is, as well as stamina!!!
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Romona
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« Reply #2 on: May 07, 2008, 09:14:52 AM » |
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monrein
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« Reply #3 on: May 07, 2008, 09:39:03 AM » |
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hey I was crediting the Moonshine.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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flip
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« Reply #4 on: May 07, 2008, 10:10:25 AM » |
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I'm sure the moonshine helps but it doesn't hold a candle to this stuff.
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That which does not kill me only makes me stronger - Neitzsche
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MyssAnne
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« Reply #5 on: May 07, 2008, 10:11:27 AM » |
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Is it smooth? The moonshine, that is? That might be an acceptable substitute!!!!
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KICKSTART
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« Reply #6 on: May 07, 2008, 10:27:45 AM » |
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I havent been on steroids since i was diagnosed , but when i was ..wow .. i had enough energy to clean all through the house on 2 hours sleep , they sent me hyper !!  |
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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petey
Newbie
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Gender: 
Posts: 0
MEMBER BANNED
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« Reply #7 on: May 07, 2008, 03:52:52 PM » |
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No. But I want some!! Energy that is, as well as stamina!!!
Heck, I'm just the caregiver, and I want some of that good stuff, too! |
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Sunny
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« Reply #8 on: May 07, 2008, 04:06:10 PM » |
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I was on the steroid prednisone for 7 months. Yes, It had me amped all the time. I could hardly sleep at night and would get up at 5 am.
Very high doses at first, then tapered down because it can cause horrible withdrawals when taken for long periods. (Yes, I had withdrawals).
I hated it. Swore I would never use it again.Gave me "roid rage" and made me very ugly too.Don't worry, you won't have this problem on the short dosage
and type that you are on. Do something worthwhile with the energy while it lasts.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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flip
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« Reply #9 on: May 07, 2008, 04:56:51 PM » |
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I've been scratching my arm like crazy all day just trying to get the redness and itching back so I can get another Rx. This is good stuff.
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Logged
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That which does not kill me only makes me stronger - Neitzsche
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monrein
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« Reply #10 on: May 07, 2008, 05:20:16 PM » |
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Logged
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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spacezombie
Full Member
Offline
Gender:
Posts: 219
Melissa: ESRD since 1992, transplant June 10, 2008
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« Reply #11 on: May 07, 2008, 09:26:49 PM » |
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Hey, whatever works! I'm glad you're feeling better! I tend to get hot flashes and roid rage on steroids.  |
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
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flip
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« Reply #12 on: May 07, 2008, 10:21:04 PM » |
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On about the third day, I mowed the yard (3 1/2 acres) and plowed the garden. I know it will end soon but I have really enjoyed the ride.
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That which does not kill me only makes me stronger - Neitzsche
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Psim
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« Reply #14 on: June 03, 2008, 10:19:48 AM » |
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Go Flip!!
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kimcanada
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« Reply #15 on: June 03, 2008, 11:45:05 AM » |
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wow! I never heard of this magic medicine!
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Ohio Buckeye
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« Reply #16 on: June 03, 2008, 12:02:07 PM » |
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I need some of that good stuff for energy and stamina.
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If I must do this to live, I must strive to live
while I am doing this.
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flip
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« Reply #17 on: June 03, 2008, 06:30:59 PM » |
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Unfortunately they can only be taken briefly because the long term effects are not good. I've been off them for a while now and back to the same old feeling. It was fun while it lasted.
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That which does not kill me only makes me stronger - Neitzsche
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twirl
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« Reply #18 on: July 02, 2008, 09:50:41 AM » |
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you sure you weren't smoking
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keith
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« Reply #19 on: July 02, 2008, 09:54:56 AM » |
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sorry to hear ur felling bad again
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Life ain't Life wit out Me!!! U Heard Me
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
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flip
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« Reply #20 on: July 02, 2008, 10:06:23 AM » |
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I'm not feeling bad, actually I feel really good just nothing like the buzz from the steroids.
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That which does not kill me only makes me stronger - Neitzsche
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Sunny
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« Reply #21 on: July 02, 2008, 03:55:06 PM » |
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At least you got your lawn mowed. It'll be time to mow it again soon, though.
Wouldn't it be nice if we could have that much energy on a regular basis?
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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donnia
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« Reply #22 on: July 03, 2008, 05:33:47 AM » |
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Yuck, I hate Prednisone! Since tx I have been on 30 mg a day. They will lower me to 10mg on Monday. I can't wait. The only energy it gives me is the energy to walk over to the fridge and find something to eat  I makes me so dang hungry all the time. I wish it gave me energy. Glad it has a better effect on you though....  |
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
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Sunny
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« Reply #23 on: July 03, 2008, 03:59:09 PM » |
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Donnia,
When I was on prednisone my face ballooned up and my belly ballooned up. I had managed to have two children with no stretch marks, yet the darn
prednisone ballooned my abdomen up so much, that I got stretch marks from it. I never looked in the mirror because I didn't look like me at all.
When I tapered down, I finally started looking better and my apatite went back to normal. You'll feel better too once they taper down the prednisone.
Maybe you'll even end up with the enregy surge Flip talked about.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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donnia
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« Reply #24 on: July 03, 2008, 06:36:28 PM » |
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 Thanks Sunny... thats the best news I heard all day!!! I am looking forward to loosing this dang watermelon patch i have arond the belly and the moon face!
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Logged
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
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