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Author Topic: Prayers needed!!!!!  (Read 3498 times)
kellyt
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« on: June 24, 2008, 08:39:23 PM »
Husband goes to "committee" tomorrow at noon!

I must say that when I didn't receive a call from my coordinator last week before leaving out-of-town I truly believed he was bumped.  I told her not to call me before my vacation if it was bad news, as I really needed to enjoy this cruise.

I went in today for labs and ran into my coordinator and she asked how my vacation was.  After a very brief "Good, Thanks" I already had tears in my eyes.  She then said "Your husband's going to committee tomorrow, so we'll have our answer then.  I'll call him when the meeting is over".  You could have knocked me over with a feather.  I spent the majority of my cruise looking out over the gorgeous, deep blue ocean talking myself into dialysis; telling myself over and over that it is better than the alternative if I can't transplant now.  I came home having had accepted that fact.  Now I'm back in limbo!  Man, this process is a never ending pain in the arse!!!    :banghead;    ;)

:grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #1 on: June 24, 2008, 08:40:50 PM »
 :grouphug; Said a prayer just now. I hope it works out!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
donnia
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me and my donor Joyce
« Reply #2 on: June 24, 2008, 08:46:17 PM »
Saying a prayer for you both!!!!

 :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
rose1999
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« Reply #3 on: June 24, 2008, 11:21:04 PM »
Praying it all works out  :grouphug;
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MIbarra
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Stopping to smell the bluebonnets
« Reply #4 on: June 24, 2008, 11:38:13 PM »
Both of you are in my prayers! 
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Cadaver transplant April 29, 2007
angellady07
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« Reply #5 on: June 25, 2008, 03:15:52 AM »
Kelly, prayers are with you.  :cuddle;
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twirl
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« Reply #6 on: June 25, 2008, 03:44:46 AM »
praying as I type
God be with you
love
twirl
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Sluff
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« Reply #7 on: June 25, 2008, 04:03:57 AM »
Prayers that Gods will be done. Hope things work out for the best.  :cuddle;
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2_DallasCowboys
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« Reply #8 on: June 25, 2008, 04:42:16 AM »
Sending you prayers, Girl!

I hope all is well

Anne
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xtrememoosetrax
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« Reply #9 on: June 25, 2008, 06:18:24 AM »
My heart goes out to you, Kelly. I'll be thinking of you and Charles today and hoping for good news. :cuddle; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
KR Cincy
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Home hemodialysis since May 07
« Reply #10 on: June 25, 2008, 07:18:31 AM »
Fingers crossed!! Good luck!!!   :thumbup;
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Not giving up...thanks to Susan.
kitkatz
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« Reply #11 on: June 25, 2008, 11:14:26 AM »
Yes, the process is a pain in the ass.  But you are one step closer to knowing an answer!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
st789
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« Reply #12 on: June 25, 2008, 11:38:10 AM »
Pray here.
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kellyt
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« Reply #13 on: June 25, 2008, 11:47:58 AM »
They said no
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: June 25, 2008, 11:53:25 AM »


Kelly,
I am so sorry. I know first hand the deep sadness that each of these disappointments bring. It's horrible.
Sending you lots of love. Don't give up hope.
 :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #15 on: June 25, 2008, 12:09:10 PM »
 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
xtrememoosetrax
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« Reply #16 on: June 25, 2008, 01:35:50 PM »
Oh Kelly, I'm so sorry.  :cuddle; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
lola
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I can fly!!!
« Reply #17 on: June 25, 2008, 01:56:47 PM »
Kelly I'm saying many prayers for you guys :cuddle;
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www.caringbridge.org/visit/ottomachado
Romona
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« Reply #18 on: June 25, 2008, 02:25:59 PM »
Keeping my fingers crossed! :thumbup;
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MIbarra
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Stopping to smell the bluebonnets
« Reply #19 on: June 25, 2008, 05:31:12 PM »
 :cuddle;  I'm so sorry! I went through it twice, also. I'll keep you in my thoughts and prayers!
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Cadaver transplant April 29, 2007
Rerun
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Going through life tied to a chair!
« Reply #20 on: June 25, 2008, 05:36:03 PM »
I've been told no.  They said I had a bad heart.... NEWS to me and my cardiologist!  So, I'm jumping through some hoops trying to get on.

Hang in there~
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monrein
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Might as well smile
« Reply #21 on: June 25, 2008, 07:25:23 PM »
Hang in there both of you, Kelly and Rerun.  It's such a stressful roller-coaster but don't give up hope.   :cuddle; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #22 on: June 25, 2008, 07:40:37 PM »
 :grouphug;  I know how you feel.  :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
keith
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« Reply #23 on: June 25, 2008, 08:37:00 PM »
your in me thoughts and in me prayers  :grouphug; and never give up your faith it WILL get you through this and we are ALL here for de both of you
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
Mimi
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For any who do not like me I use - prayer.
« Reply #24 on: June 25, 2008, 09:45:09 PM »
What a shame, Kelly.  Remember you have all of us.
I'll be praying, too.

Love, Mimi

[attachment deleted by admin]
« Last Edit: June 25, 2008, 09:47:34 PM by Mimi » Logged
Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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