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Author Topic: Things not to do to me while I am at My dialysis center.  (Read 13854 times)
kevno
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« Reply #50 on: May 04, 2008, 03:09:08 PM »

Not to strap my arm to a board to keep it straight for the needle, not to hold me down, not to give me Valium the calm me down. Just before having the Needle.  :oops; That happened when I first went on hemo at the age of ten. Still gets those flash back if the nurse misses the vein, are the needle clots. I want  to know the nurse that is going to put me on, not ask if i am ready for the needle. JUST DO IT. plus quickly!.If the nurse does happen to miss, do not ask if he/she can try again. Just get on with it. You would think after nearly 36 years of having needles you would get used to them. :-\
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
kitkatz
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« Reply #51 on: May 04, 2008, 06:45:05 PM »

Nine years of having hemodialysis needles stuck into me and I know if I stop to think about it I would have a really bad panic attack, so I throw the needle idea to the back of the brain in a small compartment and do not let it out!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
terry3004
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« Reply #52 on: May 07, 2008, 06:06:27 PM »

Not to strap my arm to a board to keep it straight for the needle, not to hold me down, not to give me Valium the calm me down. Just before having the Needle.  :oops; That happened when I first went on hemo at the age of ten. Still gets those flash back if the nurse misses the vein, are the needle clots. I want  to know the nurse that is going to put me on, not ask if i am ready for the needle. JUST DO IT. plus quickly!.If the nurse does happen to miss, do not ask if he/she can try again. Just get on with it. You would think after nearly 36 years of having needles you would get used to them. :-\

Do you have a fistula?  If so, have you looked into having buttonholes done?

I am very needlephobic and I have buttonholes and barely feel the needles when I stick myself.  It takes about two weeks to setup the buttonholes and then you really don't feel the needles go in anymore.
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Become a living organ donor...you never know who's life you're going to save!

Married to my wonderful wife 4/2005
Diagnosed ESRD 7/2005
Started PD 3/2006 - Got infected
PD Catheter Changed 4/2006
PD Catheter removed & Perma-Cath placed 5/2006
In-Center Hemo started 5/2006
Tried PD again 5/2007 - Catheter wouldn't drain
Fistula made 8/2007
NxStage started 1/2008!!
kitkatz
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« Reply #53 on: May 07, 2008, 09:05:59 PM »

Do NOT act like you know everything, just because you work dialysis. I am the one living with this disease 24 hours a day and often I am the one who has been at dialysis longer than you have worked at it!

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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
terry3004
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« Reply #54 on: May 08, 2008, 02:09:59 PM »

Do NOT act like you know everything, just because you work dialysis. I am the one living with this disease 24 hours a day and often I am the one who has been at dialysis longer than you have worked at it!



Geez...sorry   :'(

Just trying to make a suggestion...from one patient to another.
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Become a living organ donor...you never know who's life you're going to save!

Married to my wonderful wife 4/2005
Diagnosed ESRD 7/2005
Started PD 3/2006 - Got infected
PD Catheter Changed 4/2006
PD Catheter removed & Perma-Cath placed 5/2006
In-Center Hemo started 5/2006
Tried PD again 5/2007 - Catheter wouldn't drain
Fistula made 8/2007
NxStage started 1/2008!!
monrein
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Might as well smile

« Reply #55 on: May 08, 2008, 02:45:06 PM »

Hey Terry, I don't think Kit was saying that to you.  I could be wrong but I think she was talking to any one of a number of dialysis nurses.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
UNIBALLER
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« Reply #56 on: May 08, 2008, 03:04:32 PM »

here's mine as a non-patient.

Don't give my wife syringes and a cup of water when she going to be stuck in a chair and bored while I'm out of the room
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All that is necessary for the triumph of evil is that good men do nothing.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #57 on: May 08, 2008, 03:36:24 PM »

Do NOT act like you know everything, just because you work dialysis. I am the one living with this disease 24 hours a day and often I am the one who has been at dialysis longer than you have worked at it!



Geez...sorry   :'(

Just trying to make a suggestion...from one patient to another.

Kitkatz is posting to the thread "Things not to do to me while I am at My dialysis center." - not to you personally.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #58 on: May 08, 2008, 04:42:36 PM »

Yes, I was posting to the thread not you personally.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kevno
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« Reply #59 on: May 08, 2008, 11:27:30 PM »

I have known about the buttonhole for years now  :thx; But the unit does not use it or have the needles for it  :-\  they would have to have a nurse on the unit every time I was there who knew how to do buttonhole  :-\ Plus I have one slight problem my fistula is only about 3 inches long now  :'( They can only get one needle in. If two, to much recirculation. Then worse dialysis than i am getting now  :puke; It is a pretty new fistula. had it put in May 1980  ;D

(To The Nurses) Don't just walk into the waiting room say who's next. I stand up, the nurse says "sorry can not do you kev" Then have to wait another half hour to get on! :rant; :rant; :rant; :rant;

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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
fluffy
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Fluff!

« Reply #60 on: May 08, 2008, 11:56:29 PM »

if you are a trainee don't attempt to needle my arm, ask somone else to do it. i am not a guinea pig.

STOP asking me about my aranesp, i have informed the last 15 nurses that i take it on my own at home.

When i say "i am about to cramp up stop the machine" dont argue with me, i dont care if you've stopped pulling or not, it dosent make a difference. i dont care if theres 30 mins left. i just want the pain to stop. so dont argue with me and for the record... F**K YOU!

dont comment on the amount of calories in my snack and dont ever touch my snack. i have very few pleasures left in my miserable life candy is one of them.

dont act surprised when i only need to hold my acess for 2 mins after treatment im 25 not 98 everything dosent work according to the books and all people are different

stop asking me about the goddamn transplant list, i'll be on it when i get on it

 :rant;
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