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Author Topic: Different Tastes?  (Read 6641 times)
SpeedFleX
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« on: August 23, 2007, 02:22:17 PM »
I was just wondering but, I noticed that when ever I got something injected through the dialysis or direct through my vein I can taste it, is this normal? I mean everything has a different taste, epo, iron, heparin and so on? What about you?
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KT0930
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« Reply #1 on: August 23, 2007, 03:17:52 PM »
I never noticed it with Epo, and I'm not sure I ever got iron, but when I had a permcath, I always knew right when they put the heparin in, because I could taste it. I asked the nurse about it one time, and I can't remember her answer (it was almost six years ago), so I guess it was no big deal and nothing to worry about.
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"Dialysis ain't for sissies" ~My wonderful husband
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tamara
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« Reply #2 on: August 23, 2007, 06:47:37 PM »
"As it passes into the arteries supplying the tongue just before it reaches the brain, the user notices a distinct 'taste' a moment before the euphoric effect.

 For this reason, the word 'taste' is commonly used in the drug sub-cultures and is synonymous with drug injecting."


I can't see why it would be any different with the drugs we take, we are getting a "taste" too.
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
BigSky
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« Reply #3 on: August 23, 2007, 07:44:08 PM »
I usually do not taste anything.  The only time is when they do a rinse back where half the blood goes back through the venous line and the other half through the arterial.  The  saline that goes back through the arterial when they do it that way gives a distinct taste to me.

 
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Jill D.
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« Reply #4 on: August 23, 2007, 08:44:15 PM »
I could always taste the epogen and the iron when they injected it. The iron always tasted like black licorice, which I thought was in my head because it was black. However, the nurses told me that several patients said the same thing.
« Last Edit: August 23, 2007, 09:08:56 PM by Jill D. » Logged
Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
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« Reply #5 on: August 23, 2007, 08:57:23 PM »
Not sure if taste is the right word for it but I could sense the saline and heparin flowing into my body through my fistula and could sort of smell it in the back of my throat.  It was a chilling, unpleasant sensation.  I could never detect Epogen, iron, or anything else that was added.  Prior to dialysis I had uremic breath which was quite obvious to me and I hope not to others.  Walking around smelling like a bathroom is a fairly unpleasant way to live.
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Fox_nc
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« Reply #6 on: August 23, 2007, 08:59:46 PM »
Heprin and Iron for me.  I agree the iron tasted like licorice.  I hated it, ugh!
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KICKSTART
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« Reply #7 on: August 24, 2007, 05:40:13 AM »
I do CAPD  and often get a sweet taste in my mouth (glucose) Also if i cry ..my tears are sticky !!
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jbeany
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« Reply #8 on: August 24, 2007, 09:52:49 AM »
I get a plastic/saline blast every day when I'm on the NxStage, doing the initial hookup.  Thankfully it doesn't last long, but I make sure I have a little glass of ice water to wash it away.  I could always taste the saline when I needed a push in-center, too.
« Last Edit: May 25, 2008, 03:52:30 PM by jbeany » Logged
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« Reply #9 on: April 12, 2008, 05:20:44 PM »
something I get while on dialysis tastes like soy sauce and I always want chicken chop suey
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flip
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« Reply #10 on: April 12, 2008, 05:33:21 PM »
I've never noticed anything other than the food I'm eating during dialysis.
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mikey07840
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« Reply #11 on: April 12, 2008, 08:13:37 PM »
When I was on hemo, I could taste the iron but not the epo. I can taste the sweet now that I am on PD.

Mikey  :bandance;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

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• I'm not a complete Idiot -- some parts are missing.
oleboy
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« Reply #12 on: April 14, 2008, 10:19:45 AM »
I am with Kickstart I am on CCPD and I get a sweet tast in my mouth, I hope I can taste food again soon.
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« Reply #13 on: May 24, 2008, 03:43:45 PM »
Same here. My tech never believed me until I would wake up as they were giving me my epo. It tastes like molasses.
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