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Author Topic: Finally Made a Decision  (Read 2196 times)
BattleScars
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« on: July 15, 2013, 01:03:20 PM »

I've been going back and forth the past few weeks not knowing what to do. My wife and I wanted to move out of MA and I've been having serious issues with my PD clinic and nephrologist as some of you know that have been reading my posts. Well we finally found a solution. We are moving to NH. My wife can still keep her job so I can stay on her insurance and we are still moving out of this state but are close to Boston. I'm looking forward to getting a fresh start with a new clinic. I called the PD clinic in Nashua today and they seemed very nice. I explained everything and they seem like they are eager to help me. I have to go through Davita which is a little different for me but I'm sure it will be fine. I also have an appointment with a nephrologist at Beth Israel hospital in Boston in August so I can restart the transplant process. I've heard from a few dialysis patients that are local that BI is much better than MGH and I should have a much easier time. I'm very excited and hopeful about the future!
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boswife
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us and fam easter 2013

« Reply #1 on: July 15, 2013, 01:36:36 PM »

Im so happy and excited for you too/two :)  A new start will give such a new and refreshing outlook.  Sounds like all is heading to the best  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sydnee
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« Reply #2 on: July 15, 2013, 04:34:21 PM »

Glad you came up with a good plan for the both of you.  :) Hope it give you all the change you need and want.  :flower;
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
Wildrose
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« Reply #3 on: July 15, 2013, 11:40:05 PM »

Sounds like a good plan. I wish you the best and hopefully the move will be an easy and good transition!
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
Jean
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« Reply #4 on: July 16, 2013, 01:54:41 AM »

Sounds good, glad you were able to work all of it out. Good luck with the moving ( ugh)
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One day at a time, thats all I can do.
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