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Author Topic: Problem solved!! THanks everyone for all your advice!!  (Read 3336 times)
Neo
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Dont let dialysis stop you...
« on: April 13, 2008, 01:16:50 PM »
I talked to my doctor, who is great by the way and said he regards me as someone he looks at like his son. So he I and my mother had a meeting and he really solved everything for me. He went over our incompetent directors head and put everything the way it should be. Now the lights are back out and he mandated that there has to be someone at the nursing station at all times which is great becasue thats right in my view. and he also told me if I have any trouble at night again, where I wake up and a tech is sleeping or if there seems to be no way to get anyones attention,he gave me his private number and said call him no matter what time of night and he will call the unit. Yay!! Im so relieved and got that stress off me. Thanks to al of you!! I really leaned on you all during that tough time..THanks you!!
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lola
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I can fly!!!
« Reply #1 on: April 13, 2008, 01:27:06 PM »
Way to go  :yahoo; :yahoo;
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www.caringbridge.org/visit/ottomachado
twirl
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« Reply #2 on: April 13, 2008, 01:36:08 PM »
 :yahoo;    YOU HAVE THE POWER         :yahoo;

 :boxing;   NO ONE WILL MESS WITH YOU NOW       :boxing;


 :2thumbsup;  YOU GO BOY     :yahoo;


 8)   DOES YOUR IHD FAMILY PROUD      8)
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paris
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« Reply #3 on: April 13, 2008, 02:34:44 PM »
Neo, I am so glad things have worked out.  Having a good relationship with your doctor really helped the situation.  You know we all worry and care :grouphug;  You're a great guy and deserve for things to go well.   Job well done :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #4 on: April 13, 2008, 02:40:43 PM »
Neo you are one great dude and I'm so happy for you.   :bandance; :2thumbsup;
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okarol
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« Reply #5 on: April 13, 2008, 03:50:25 PM »

Way to go Neo!!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
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« Reply #6 on: April 13, 2008, 05:41:18 PM »
 :bandance; :bandance; :bandance;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
twirl
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« Reply #7 on: April 13, 2008, 06:08:45 PM »
Neo for President :clap; :usaflag; 8)
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Lori1851
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This is me Lori , Dustin's mom
« Reply #8 on: April 13, 2008, 06:23:56 PM »
Neo,
Yippee!!!!!!! The squeaky wheel gets the grease!!!!!!! You have to raise alil HELL sometimes to be heard. You did good Neo!!!!!!!!!   :cuddle; 
Have a great week!!!!!

Lori/Indiana
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Ang
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« Reply #9 on: April 13, 2008, 06:49:58 PM »
way  to  go :yahoo;
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live  life  to  the  full  and you won't  die  wondering
rose1999
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« Reply #10 on: April 13, 2008, 11:36:51 PM »
I am so pleased for you  :2thumbsup; - and what a fantastic Doctor to give you his personal number. Can't see any in the UK doing that!  Hope you never have to use it but what a great backup.

WELL DONE YOU, I'm proud of you. :yahoo;
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boxman55
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« Reply #11 on: April 14, 2008, 12:42:21 AM »
A good life lesson taught to us by Neo, way to go...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
KICKSTART
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In da House.
« Reply #12 on: April 14, 2008, 02:48:31 AM »
 :yahoo; :bandance; :bandance; :bandance; :yahoo;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
mysty
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I'm here.. for us.
« Reply #13 on: April 14, 2008, 03:13:44 AM »
Neo .. that's amazing and wonderful..and you went about it with class too.. :bandance;
So very proud of you!  :2thumbsup;
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Love does not come by finding the perfect person, but by learning to see an imperfect person perfectly.
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #14 on: April 14, 2008, 03:15:22 AM »
 :clap; Well done Neo, I'll give you a knighthood  :ukflag;









EDITED: Fixed smiley tag error- kitkatz,moderator
« Last Edit: April 14, 2008, 06:27:16 AM by kitkatz » Logged
Ken
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« Reply #15 on: April 14, 2008, 05:38:41 AM »
Neo,

so happy the problem is solved for ya!

You must feel very good having this
additional stress removed!

Anne and Les
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rose1999
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« Reply #16 on: April 14, 2008, 09:00:54 AM »
Quote from: Ken Shelmerdine on April 14, 2008, 03:15:22 AM
:clap; Well done Neo, I'll give you a knighthood  :ukflag;


EDITED: Fixed smiley tag error- kitkatz,moderator

Hmm, but just watch out if he offers you a gown to go with it  :rofl;
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mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #17 on: April 14, 2008, 06:38:42 PM »
Congratulations Neo!
 :bandance;
 
Mikey  :usaflag;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Chris
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« Reply #18 on: April 14, 2008, 09:25:49 PM »
Congradulations on getting the problem solved.
Were there reallly people sleeping on the job? If so, maybe the director needs to be fired if they are not doing anything about it, that is a saftey issue. Then again, I do not know the full story, just came by reading new threads that sounded interesting tonight.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #19 on: April 14, 2008, 09:38:31 PM »
As I went further down on the list of topics lastest posted, I saw your original post, "Im still having problems!! Need some help here!!!"
I hope they get a new broom for the tech!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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