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Author Topic: Hepatitis C and questions about it  (Read 3085 times)
devlinswife
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« on: March 07, 2008, 08:32:49 PM »

Ok so I have a ton of questions, I just found out today that I have Hepatitis C, my Dr didn't talk to me all that much about it. I am not sure if it was because we were in the dialysis unit when he told me I have it, or what. I would really like to talk to someone that is on dialysis and has Hepatitis C. I want to know how it has affected your life and are there any good websites that will explain what I have? Thanks.
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jbeany
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« Reply #1 on: March 07, 2008, 08:44:21 PM »

Can't help - I don't know much about Hep C.  Just wanted to do this . . . . :grouphug;.
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devlinswife
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« Reply #2 on: March 07, 2008, 08:59:23 PM »

Thank you I needed that so much, I am so afraid that I have already or will pass it on to my husband.
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pdpatty
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« Reply #3 on: March 07, 2008, 10:08:36 PM »

So sorry. This link may provide you with some info until you can discuss it more with your doc

http://en.wikipedia.org/wiki/Hepatitis_C
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oleboy
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« Reply #4 on: March 08, 2008, 12:31:59 PM »

I have sent you and e-mail about Naomi Judd, a country music star that had Hep-c and was cured  it tells her story I hope it helps. Best of luck
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willieandwinnie
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« Reply #5 on: March 08, 2008, 12:41:14 PM »

:grouphug; devlinswife. I'm sorry to hear about the Hep C. I can't help with your questions but wanted you to know you'll be in my thoughts and prayers. Best of luck to you.
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The Wife
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« Reply #6 on: March 09, 2008, 07:38:51 PM »

Sorry to hear about your Hep C diagnosis. My partner was diagnosed with Hep C before his kidneys failed.  The doctors figured he contracted it when he needed a blood transfusion over fifty years ago. All of his kids, ex-wife, and myself have been tested and we're all okay.  So you can breathe about that part.  Since Hep C is passed on from blood to blood make sure you use your own nail clippers in case you knick yourself.  If you use a razor to shave your legs, be sure to put it away so that no one else can use it. Do not share a toothbrush (not that you do) and make sure if you get blood on a towel, to take it off the towel rack immediately.   Just be aware if you're bleeding anywhere.   
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annabanana
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« Reply #7 on: March 09, 2008, 08:27:06 PM »

My husband was diagnosed with HepC last Aug. The best site I've found so far is "hepcnet.net".
He has not yet started dialysis but the drs. don't seem to think it's an issue.

re: passing it on...I've been with my husband for almost 9 years, changed many a bandage,
and had unprotected sex all this time (until we found out)
and I do not have HepC.
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The Wife
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« Reply #8 on: March 09, 2008, 08:34:23 PM »

Same here Annabannana.  Some people get real freaked out about Hep C but it's not passed on as easily as some think.  Just take precautions.
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The Wife
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« Reply #9 on: March 10, 2008, 07:53:54 AM »

I have sent you and e-mail about Naomi Judd, a country music star that had Hep-c and was cured  it tells her story I hope it helps. Best of luck

I needed to come back to this post in regards to being 'cured.'  There is no cure for Hep C but treatment can put it in remission.  (I think remission is the word used.  If not, dormant.)
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paddbear0000
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« Reply #10 on: March 10, 2008, 10:54:52 AM »

I don't have any information for you either, except a  :cuddle;.
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kidney4traci
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« Reply #11 on: March 10, 2008, 10:59:14 AM »

I found out I had hep C while they were doing screening for transplant evaluation.  I propbably had it for over 20 years without realizing it.  It wasn't so bad, but they said they wanted to treat for it before I got a new kidney because they do not do interferon post tx due to medication and decrease immune system.   Anyway, I went on the drug for the 6 month does and my numbers dropped enough to stop the therapy and get on the transplant list.  As far as side effects, I was worried, but never got sick.  I did loose hair, like alot would come out in the shower and when you combed it.  But that stopped before it was too terribly bad and has grown back in now.  Just pray your stage is not too advanced and you don't have too bad a reaction to the interferon.  Hope that helps a bit.  I never did find a good web site for it, ones i did find were never as active as this one.   :grouphug; Here when you need it...
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devlinswife
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« Reply #12 on: March 11, 2008, 07:18:46 PM »

hepcnet.cet has helped A LOT . SO thanks for sending me there, and thanks for all of the support. Devlin (my hubby) just got tested today so we should know in about a week. I seriously think he has it, if not he is having a ton of sympathy symptoms. I pray I am wrong but I don't think I am. Well thanks again to everyone that has commented, I go to the Dr on the 18th so I will let you all know when I hear something new.
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Amanda From OZ
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« Reply #13 on: March 11, 2008, 07:35:26 PM »

Im sorry to hear that.  :cuddle;

I have pm'ed you.
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annabanana
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« Reply #14 on: March 12, 2008, 06:16:37 AM »

devlinswife--- glad hepcnet works for you. I get a lot of info there.
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caregiver to Randy:
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st789
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« Reply #15 on: March 12, 2008, 10:42:23 AM »

Have Hep. B since 17 and under remission after a flare 8 years ago.  Get enough rest and reduce stress as much as possible.
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devlinswife
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« Reply #16 on: March 12, 2008, 07:07:41 PM »

Amanda from OZ, I didn't get the PM
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annabanana
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« Reply #17 on: March 18, 2008, 06:32:42 PM »

devlinswife,
I just wanted to see how Devlin is.....have his test results come back yet?
Have you had good luck researching HepC?
A.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
devlinswife
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« Reply #18 on: March 22, 2008, 08:20:15 PM »

Would have been on here sooner, but my minivan broke down and we had to go buy a new one,  :yahoo;!! I got a mercury mountioneer  :yahoo; I LOVE IT! YES we got Devlins results yesterday--HE"S NEGATIVE :bandance; :bandance; :bandance; :bandance; He still has to get tested in 6 months and a year, just because it can be dormant for a while, but I'll take negative. It does kinda put a crimp in our sex life as I have NEVER liked raincoats (and I happen to be quite the horny little devil >:D), but I am so glad he doesn't have it. Thank you everyone for your support.







EDITED: fixed smiley tag error-kitkatz,moderator
« Last Edit: March 22, 2008, 10:37:25 PM by kitkatz » Logged

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charee
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« Reply #19 on: March 22, 2008, 08:22:22 PM »

 :yahoo; great news
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Psim
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« Reply #20 on: March 22, 2008, 08:26:07 PM »

Whew, this is one time when negative is good.
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paddbear0000
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« Reply #21 on: March 23, 2008, 06:47:18 AM »

It's great to hear good news!  :bandance;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
willieandwinnie
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« Reply #22 on: March 23, 2008, 06:55:58 AM »

devlinswife that is wonderful news.  :yahoo;
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rose1999
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« Reply #23 on: March 23, 2008, 06:56:50 AM »

 :2thumbsup; great news  :2thumbsup;
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annabanana
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« Reply #24 on: March 25, 2008, 05:37:40 AM »

So glad about Devlin!!! I remember getting my results back and feeling so relieved! :clap;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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