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KICKSTART
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« on: February 27, 2008, 06:22:56 AM »

Just a sort of little update..I have had no luck with being put in touch with a counsellor , its seems the shortest waiting list is 3 months !!! Which isnt of much help to me right now. I have had a little chat with the renal social worker and one of the renal unit staff , but i still feel i didnt know what to do now or how to handle the situation. Im meeting up with the lady from the support group tommorrow , so she might understand the situation and have some advice for me ? I am trying to do positive things , but i still feel like im swimming in tar! and its been a few days and no phone call from my family ..which is really what i expected , stand up for myself and stand alone! Sorry guys im normally a real upbeat person but i must seem like a moaning minnie at the moment.
« Last Edit: February 27, 2008, 08:06:03 AM by KICKSTART » Logged

OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
devon
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« Reply #1 on: February 27, 2008, 06:40:26 AM »

It's all part of the withdrawals, I bet. They are probaly as much in shock by your standing up for yourself as you are. Rather than fear the slience, embrace it.  You are in the right place. Enjoy this moment as silent recognition that you are doing the right thing.
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Deanne
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« Reply #2 on: February 27, 2008, 07:40:31 AM »

I wish I could say something that would help you feel better. I know it isn't enough, but I can at least offer  :grouphug;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
KICKSTART
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« Reply #3 on: February 27, 2008, 08:04:50 AM »

Well guys i have been totally suprised! My mum rang , something i was dreading ..and guess what she was all bright and breezey , maybe she realised i had been pushed to the edge? I didnt dwell on the other day , i just said i was sorry but i feel totally stressed right now and wasnt coping too well with it all. Then i moved on , kept the conversation light and all was well. Now this has happened its the way i intend to go and not backtrack. Sluff gave me some good advice abut keeping things in a light place when i talk and avoiding getting into issues by saying , i got to now, if things started to turn again. So thanks guys , i still intend to join the support group , but i think the other night might of been the breakthrough i needed to change things  :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
rose1999
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« Reply #4 on: February 27, 2008, 08:10:39 AM »

I'm so pleased to hear this, maybe it was just the shake up your mum needed.  Sluff's advice is good I hope you can stick to it. I also think you will feel better when you've met the lady from the support group and hopefully joined them. It's a disgrace that you have to wait so long for counselling, but sadly typical of the way things are going.  Look after yourself and know that we love you and worry about you.  :grouphug; :grouphug;
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Sluff
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« Reply #5 on: February 27, 2008, 09:05:38 AM »

Glad you got a little break today, hope tomorrow you get a bigger break. It all takes time.  :grouphug;
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Romona
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« Reply #6 on: February 27, 2008, 09:08:08 AM »

 :grouphug;
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petey
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« Reply #7 on: February 27, 2008, 09:21:14 AM »

I'm thinking about you today, Kickstart!  I hope you have a good day today and things continue to get better for you.  Hang in there, KS!
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Joe Paul
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« Reply #8 on: February 27, 2008, 09:43:40 AM »

Good luck.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
kidney4traci
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« Reply #9 on: February 27, 2008, 10:16:07 AM »

One day at a time KS, and you are already on your way!  Sluff has good advice.  Family, usually glad mine is 2000 miles away! Keep us posted...
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Married - three children.
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11/04  Hemo in clinic
6/07 hemo at HOME! 
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Psim
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« Reply #10 on: February 27, 2008, 10:21:10 AM »

I'm so glad your mom called (not making you do all the work of reaching out), and you were able to have a good conversation and keep it light. Hoping things with her stay in a better place while you navigate this difficult time. The wait for the counsellor is so frustrating. Hopefully the support group will help in the meantime. I'm so impressed with how you move forward, doing what you can and figuring out other options when things don't work out.
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Gramapat
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« Reply #11 on: February 27, 2008, 10:28:06 AM »

I'm so glad your mom called and even more glad you handled the call so well!  :) Make sure you join that support group - I'm sure it will help.
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paris
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« Reply #12 on: February 27, 2008, 10:46:55 AM »

I am glad today was better.  I have similar relationship with some of my family.  The best thing I learned is not to expect them to understand my situation and we only talk about everyday things.  Just chatty and light and I avoid anything I know will become a problem.  And then some days I just don't answer the phone!  Hope tomorrow is a little brighter, too. :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MyssAnne
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« Reply #13 on: February 27, 2008, 10:51:09 AM »

That is so wonderful, KS!! It really helps to have a day like today.  As Sluff says, keep it light, share your burdens with your counselor, your support group, and with us.  You need support and encouragement, not guilt trips. 

We love you!!!

 :grouphug; :grouphug;
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donnia
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« Reply #14 on: February 27, 2008, 11:47:44 AM »

 :grouphug;

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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
angellady07
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« Reply #15 on: February 27, 2008, 02:04:55 PM »

Great news Kickstart. Take care and keep us posted.  :waving;
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rookiegirl
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« Reply #16 on: February 27, 2008, 06:57:00 PM »

May each day give you strength, courage, and peace of mind my friend.  :grouphug;
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Mimi
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« Reply #17 on: February 27, 2008, 08:23:36 PM »

KS some things in life can be changed, somethings cannot.  To be happy you have to know the difference
between the two.  Sluff's advice seems very good to me.

Much Love,
Mimi
 :2thumbsup; :2thumbsup; 
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it is putting out the lamp because the dawn has come.
The Wife
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« Reply #18 on: February 28, 2008, 07:09:46 AM »

Glad to hear that things are a bit better between you and your mom. 
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willieandwinnie
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« Reply #19 on: February 28, 2008, 10:49:06 AM »

 :cuddle; KS, I'm glad you had a better day. One day at a time. Keep us updated, we care.
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Bajanne
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« Reply #20 on: February 28, 2008, 12:05:34 PM »

I am glad that things are better.  Never forget that you have somewhere to go when you  need support - your IHD family!  We are there for you through thick and thin.
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I LOVE  my IHD family! :grouphug;
Slywalker
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« Reply #21 on: March 02, 2008, 09:53:58 AM »

Kickstart  - I was out of town last week - my daughter was having a kidney biopsy.  I am just now reading your posts and the replies.  Obviously, in case you couldn't tell, you are very much loved by so many on this forum.  I truly hope that helps get you through this extremely rough time. 

I also hope today is better for you and I wish you the very best of luck with the support group.  And, you have a support group already in place called IHD!!!
Hang in there girl.  I know you have the strength - and you will find it soon.

Hugs    :grouphug;

Sandyb
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