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| |-+  Tributes For Susie "Goofynina" Trevino
| | |-+  For Susie
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Author Topic: For Susie  (Read 13299 times)
kitkatz
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« on: January 09, 2010, 08:53:23 PM »

I saw this picture and thought of you my friend!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #1 on: January 09, 2010, 11:12:20 PM »

 :rofl; :rofl; :rofl; :rofl;
She would have liked that for sure.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: January 09, 2010, 11:35:52 PM »

 :clap; Hahaha! Yep, she would have loved it!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #3 on: January 10, 2010, 12:27:57 AM »

i've been thinking about her a lot lately. that would have really made her smile.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
lola
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I can fly!!!

« Reply #4 on: January 10, 2010, 06:23:35 AM »

 :2thumbsup;
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glitter
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« Reply #5 on: January 10, 2010, 09:43:42 AM »

she would have liked that for sure! I miss her too, she always made us smile didn't she?
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Meinuk
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« Reply #6 on: January 10, 2010, 10:12:12 AM »

It's funny.  When I think of Susie, I am usually laughing or crying.  In my mind, I know that she'd not really approve of the number of tears that I've shed over her, but I know that she'd be blubbing right along with me.

IHD is a star in the crown TIARA of her life.  Rather than sink into a permanent funk over her illnesses, she remained cheery, happy and pretty much unflappable.  I'm not so good at that, but I try.

Epoman and Susie showed us, their peers, when life hands you lemons (or bum kidneys) fight back and laughter and love are the best medicine (besides high dose home dialysis).  It was three years ago this month that I stumbled across IHD.  I was an obsessive lurker, and I had just started in center dialysis.  Susie and Epoman had just had a misunderstanding (that was quickly patched up) and it was business as usual. 

In her grief over Epoman's death, Susie was still thoughtful enough to reach out to me, a newbie who hadn't posted much.  I needed all the support that I could get during my time on dialysis, as much as I hated to admit it.  Susie sensed that and her phone calls started.  And after she died, I realized that it wasn't just me.  Susie was reaching out to so many people... and we all were echoing the same thing. Susie spread love and care and made every life she touched special, (and just a bit rowdier, bawdier and funnier).

I'm not a big believer in Heaven & Hell (and I stay away from the "Is there a God" thread) but I do believe that during her life, Susie was an earthbound angel.  And in her death I hope that she finds peace and that somehow, she knows what a difference she made in so many lives.
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
paris
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« Reply #7 on: January 10, 2010, 11:41:39 AM »

Meinuk,  You wrote a beautiful tribute to Susie. And now I am crying   :'(     She had a way to make each of us feel special.  She always seemed to know just what we needed to hear.  I hope with all my heart that we did the same for her.  Her spirit lives on in all she touched.  What a funny girl! Makes you smile just to think of her!   I often think how she would have responded to posts.   Good to see you, Meinuk.  Susie loved you so much.   Me too!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: January 10, 2010, 01:37:22 PM »

Thanks Meinuk. I love to hear about Suzie. She was one in a million.

Absolutely true paris "She had a way to make each of us feel special."

 :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #9 on: January 11, 2010, 05:35:00 PM »

 :thumbup;
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Rerun
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Going through life tied to a chair!

« Reply #10 on: January 11, 2010, 08:44:26 PM »

I miss her too.  She was scared of clowns..... if I remember right.
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paris
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« Reply #11 on: January 11, 2010, 08:47:57 PM »

Yes she was!  And you knew her from the beginning.  We had a good time that first time in Vegas, didn't we?
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paris
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« Reply #12 on: April 09, 2010, 05:22:29 PM »

Well, Susie, I just need to talk to you for a bit.  Last night I heard a hundred children sing "What a Wonderful World" and I felt your presence. Today I got a box with 2 dozen purple boas in the mail.  24 purple boas for our Walk.  And then two granddaughters stopped by and asked if I had tiaras for them to wear on the Walk.  Beth did a radio interview and she told people how we first met you. Walking through the casino with that sash "Drama Queen", purple boa and tiara and looking like this was how everyone dressed!  People love to hear stories about you.  I wonder if I will ever have the impact on anyone that you have had on IHD?   On May 2nd, Beth and I will gather family and friends, don our fancy accessaries and proudly walk in your memory.   I know you and Epoman know we are carrying on his vision.  It is amazing how many members there are.  But, also sad because it means kidney disease is effecting more and more people.     We all still miss you - miss your humor, your love, your unconditional support.  There is a void that will always be there.   Like I said, I just really needed to talk to you today. I know there will be a sign -- another song, a single feather, a clown (!) and it will remind me that you are always around.     :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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