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Author Topic: I can't believe what happened to me  (Read 3281 times)
Bette
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« on: February 06, 2008, 06:35:50 AM »
I have been away from the site for awhile due to some complications.  I've been on pd for about 8 months, I got a hernia, which caused a bowel obstructions.  I had surgery to repair the obstructions, and after that I got a really bad case of peritonitis.  I was given high dose antibiotics to cure the peritonitis, and they damaged my inner ears, so now my balance is shot.  I walk around like a drunken sailor and I can no longer drive.  The balance damage is permanent.

I have been really depressed because I thought my life sucked enough with just having kidney faillure.  Now it seems so much worse.  I keep putting on the 'brave sick person' face for everyone around me. but I really feel like life has been so unfair to me.  I am stuck in the house 24/7 unless I have someone to drive me around.  I don't have any questions or answers, but I just needed to rant.
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paris
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« Reply #1 on: February 06, 2008, 06:42:02 AM »
Bette,  It just seems to never end! I am sorry and I cannot imagine how mad/upset/furious you are at the situation.   Please come here more and just scream away. Lean on us for awhile. We are here for you all the time.  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MyssAnne
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« Reply #2 on: February 06, 2008, 06:49:03 AM »
Oh, Bette.

Rant all you want. Scream all you want.  We'll listen.  This is the safe place to be yourself.   :cuddle;
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karen547
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« Reply #3 on: February 06, 2008, 06:59:26 AM »
That is so infuriating to hear! I cannot believe you had that happen to you. I hope you are able to cope with all of this, and just come here to rant all you want! :cuddle;
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BobT1939
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« Reply #4 on: February 06, 2008, 07:07:10 AM »
Bette, Bette, Bette. :cuddle;
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Joe Paul
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« Reply #5 on: February 06, 2008, 07:13:29 AM »
So sorry to hear about this   :grouphug;
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"The history of discovery is completed by those who don't follow rules"
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #6 on: February 06, 2008, 07:44:48 AM »
What an absolute BUMMER. I had no idea that anibiotics could damage the ears. It's probably the last thought on your mind at the moment but is it possible some negligence might have been involved on the part of the hospital?
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Ken
Bette
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« Reply #7 on: February 06, 2008, 07:59:01 AM »
There was some negligence.  I believe that my nephrologist was not properly monitoring my antibiotic levels.  Right now I have a lawyer and I am pursuing a lawsuit.
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xtrememoosetrax
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« Reply #8 on: February 06, 2008, 08:02:29 AM »
OMG, what a nightmare.  I'm so sorry to hear this.  All I can say is try to hang in there and hope for better days, although I'm sure that's hard right now.  In the meantime, keep coming to IHD; you have a lot of sympathetic friends here.  :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

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Deanne
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« Reply #9 on: February 06, 2008, 08:30:54 AM »
That sounds awful! I'm very sorry.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
KICKSTART
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« Reply #10 on: February 06, 2008, 08:33:14 AM »
I sorry i cant say anything to make it better for you. Is it a rare thing to happen, as lots of us on pd would get the same treatment for peritonitis. Was it a reaction you had to the anti-biotics? Maybe as medicine progresses they may find a way to help retore your balance.. :cuddle;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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« Reply #11 on: February 06, 2008, 09:57:18 AM »
Awww Bette, I am so sorry.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
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rose1999
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« Reply #12 on: February 06, 2008, 10:14:15 AM »
Bette, like everyone else I'm sorry to hear this and helpless to do anything.  I hope that knowing we all care will help a tiny bit. :grouphug;
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Psim
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« Reply #13 on: February 06, 2008, 11:51:31 AM »
I'm so sorry you have to deal with this on top of everything else. Rant all you like.  :grouphug;
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CW
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« Reply #14 on: February 06, 2008, 12:26:48 PM »
That sucks bigtime! >:(

That is part of what this forum is for , to just rant and get it out! So no need to apologize for it.
RANT ON! :2thumbsup;
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
MyRenalRomance
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« Reply #15 on: February 06, 2008, 12:56:27 PM »
I'm so sorry to hear that this has happened to you!  Rant on - this is the place to do it!!!
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
Romona
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« Reply #16 on: February 06, 2008, 01:08:55 PM »
 :grouphug;
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cris
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« Reply #17 on: February 06, 2008, 03:42:48 PM »
Bette,
Go for the lawsuit, they deserve worst than that!!!
Bette, I don't know exactly what to say or comfort you, but please trust that things will get better. Much of it has to come from you, we are here to welcome all your rants to start with. You are in my prayers.
love,
cris
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there is no greater love than this: "that a man lays down his life for his friend"
glitter
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« Reply #18 on: February 06, 2008, 04:11:00 PM »
I am so sorry this has happened to you- i hope your lawsuit gets you a bit of satisfaction- it just sucks that no matter how much money they give you -you can't buy back your health- I am glad you can come here to rant- and if you want to YELL and SCREAM here every day this is your safe plave for that!! 

 :banghead; damn doctors   :banghead;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

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Sluff
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« Reply #19 on: February 06, 2008, 04:31:50 PM »
Bette I'm so sorry to hear about your misfortune. I don't know what to say but I hope maybe the could do something for the imbalance to try and correct it some. Damn incompetent Doctors, when will it ever end. Hang in there hun we care and we are here for you.  :grouphug;
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KT0930
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« Reply #20 on: February 06, 2008, 06:18:42 PM »
Bette, no need to put on the "brave sick person" face here. We all know how bad kidney failure is, and I can only imagine how much worse it is with balance problems on top of that! Come here and rant, scream and yell all you want.  :grouphug;
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
kitkatz
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« Reply #21 on: February 06, 2008, 09:41:44 PM »
I am so sorry this has happened to you.  You have a place to rant anytime you need it. Keep after everyone involved and make them see that they are responsible. Good luck.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Mimi
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« Reply #22 on: February 06, 2008, 10:19:31 PM »
What a nightmare.  In trying to heal one part of the body, they ruin another part.  Not being able to drive is for the
birds.  I can no longer drive because of my eyes.  It is just awful to have to wait on someone else to take you where you need to go.  My prayers are with you.

Love, Mimi 
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Wattle
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« Reply #23 on: February 06, 2008, 10:51:01 PM »


:grouphug;  Bette, I am sorry you have been so unwell. The level of Antibiotics must have been very high. I hope you are able to hold the hospital responsible for the damage. I am also a PD patient so I will be aware of your problems if ever I need high levels of treatment.

I am glad you made it back to us. Keep coming back .... we love a good    :rant;   :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
angellady07
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« Reply #24 on: February 06, 2008, 11:22:08 PM »
So sorry you are going through so much.  :cuddle;
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