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Author Topic: RSN’s 2022 Hope Week, 29th Annual Patient Education Meeting NOW  (Read 1073 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: October 18, 2022, 01:03:25 PM »

RSN’s 2022 Hope Week, 29th Annual Patient Education Meeting
October 18 – 22, 2022
Five Educational and Hope-Filled Days!

For 29 years RSN has presented the Annual Patient Education Conference at no charge to people who have kidney disease and their families. Hope Week is a five-day national, virtual event. Each day will focus on a specific disease or treatment for kidney disease. Speakers will include healthcare professionals and people who have learned to live and thrive in spite of having kidney disease.

Raffle prizes are given away every day. Receive a complimentary gift package for attending and completing our scavenger hunt and event evaluation to help us learn and improve our online events. Information will be given during the event about the scavenger hunt and event evaluation.

Check to see which days have topics that may interest you, and sign up to join - it's FREE!
https://www.rsnhope.org/hope-week-rsns-national-online-patient-meeting/
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
SooMK
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« Reply #1 on: October 19, 2022, 12:36:54 PM »

Looks like a great agenda. I see several presentations I'd like to hear. Thanks for posting.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Simon Dog
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« Reply #2 on: October 19, 2022, 03:10:12 PM »

A topic I'd love to see:  "Gaming the waiting list - how listing at a UNOS in a district a few hours away may help your odds".
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: October 20, 2022, 09:56:15 AM »

A topic I'd love to see:  "Gaming the waiting list - how listing at a UNOS in a district a few hours away may help your odds".
They have done previous KidneyTalk topics covering multiple listing.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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