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Author Topic: can a fistula get reversed or removed?  (Read 10388 times)
poohwade
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« on: August 03, 2007, 07:34:53 PM »

When I get my kidney, and when it works <stayin posi> will i be able to get it reversed? thanks.
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nxstage coming to a wade near you august 6
skyedogrocks
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Rob showing off his pot of gold!

« Reply #1 on: August 03, 2007, 08:02:16 PM »

Hi Wade - Your fistula is there for good, just in case you need dialysis after a transplant (sometimes a cadaver kidney is slow to start) or God forbid, something happens with the new kidney and it fails.  Since you are young, you will most likely need another transplant when you are older, so you will need it for then too.

Remember to keep exercising it though, sometimes a fistula will fail and a new one has to be put in another spot.  For instance, Rob has one in his wrist that isn't very good, it keeps clotting.  He had an upper arm fistula put in about 4 months ago for when his wrist fails.

Search for fistula's, there's a lot of great info on here about them.

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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
boxman55
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« Reply #2 on: August 03, 2007, 08:28:59 PM »

it's great to be positive about a transplant but even though getting one would be awesome the chances of rejection and failure are always a possibility. Live life to the fullest I have been told once you get a transplant because dialysis is always still a possibility again. Thus keeping the fistula is a good idea. Boxman                  sucks hey...
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: October 28, 2007, 09:50:51 PM »

Jenna's fistula quit the day of her transplant. That may be due to no longer being uremic, which has a blood thinning
effect. Her vein kind of collapsed and all you see are the buttonhole scars. I would have preferred it was still available
in an emergency, but she can always get a permacath if it comes to that.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #4 on: October 28, 2007, 10:48:53 PM »

Just saw this post and that was a question I had after my transplant. I have a fistula that is clotted and a graft that bothers the heck out of me. It's unsightly, itchy, and a slight scratch breaks the skin. I wish it was possible to remove these things or reverse them.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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« Reply #5 on: October 29, 2007, 11:31:39 AM »

My vascular surgeon said yes it can be removed.  But they're right, you may need it in the future.  I know I wouldn't want a chest catheter or PD catheter.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Krisna
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« Reply #6 on: October 30, 2007, 11:47:40 PM »

I got my fistula when I was 15 (1988).  That's almost 20 yrs!  I've had 3 transplants since.  It has clotted once and narrowed once, both times the surgeon was able to repair it!  Personally, I'm glad that it was still there when I needed dialysis again.  It was one thing less I had to worry abt! 
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
Chris
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« Reply #7 on: October 31, 2007, 10:43:37 AM »

When my fistula clotted, the surgeon didn't even try to repair it. The only option I had was the AV Graft. Even though I hated the fistula's thrill, I could put up with it compared to this graft I have, which I can't hear a thrush anymore. Can you tell I'm annoyed about having a graft. :banghead; :lol;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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