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Author Topic: Pressure in my neck  (Read 1936 times)
pdpatty
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« on: October 14, 2007, 04:46:54 PM »

I still have my cath in my neck and for about the last  9-10 weeks I have been experiencing a pressure in my neck up to my ears. It feels like my neck is puffing up and like it will explode.This is on the right ,that is where my cath is,so it must be from it. This happens AFTER my dialysis but also when I bend forward. It feels like my neck is puffing up.
There is nothing organic as I have had a CT of my neck.
My fistula is not ready to use yet,it seems to be coming along but still is not big enough to use.
I was just wondering if any that has a permacath has had anything similar to this.
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paddbear0000
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« Reply #1 on: October 15, 2007, 08:55:17 AM »

As I'm not on dialysis yet, I have no idea about this. I just wanted to wish you luck and hope it turns out okay.   :grouphug;
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Joe Paul
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« Reply #2 on: October 15, 2007, 10:20:24 AM »

There is a guy at my clinic who just had his replaced (in his neck/ shoulder) and is complaining about the same type pain - he said it didn't start till they replaced his cath.
« Last Edit: October 15, 2007, 10:23:21 AM by Joe Paul » Logged

"The history of discovery is completed by those who don't follow rules"
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donnia
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« Reply #3 on: October 15, 2007, 06:42:37 PM »

No, I have not experienced that.  I would be very interested in what your doctor has to say about it.  I hope your doctor has an answer for you.   :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Adam_W
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« Reply #4 on: October 15, 2007, 06:51:50 PM »

I had a permacath for about four months before I started using my graft, and I never had that problem (it's my graft that's giving me all the trouble). I hope everything works out for you and this discomfort is resolved.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
donnia
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« Reply #5 on: October 16, 2007, 11:14:02 AM »

This kinda sounds like what I am experiencing right now.  When I bend my head forward, it is hard to breathe.  If I bend my head back, it is easier to breathe.  Have you found out anything?  I just went and had x-rays done.  I should talk to my surgeon later.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
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