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Author Topic: I have to have a graft revision  (Read 3592 times)
Adam_W
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Me with Baron von Fresenius
« on: October 16, 2007, 11:45:46 AM »
Because of the problems I've been having with my graft, my vascular surgeon wants to do a revision to hopefully fix these problems. I've now had three fistulagrams and a de-clot since June, and my surgeon says enough is enough. Every time there has been a problem, it has been caused by stenosis in the exact same place, and that indicates there is something seriously wrong in there. I just had it ballooned open last Friday, and I'm already starting to get the early signs of stenosis again. I see the surgeon on the 31st so he can look at it, and determine exactly what he wants to do. I just hope it lasts that long. I won't be surprised if I have to have ANOTHER fistulagram (or two, or three, or ten) before I can have the revision done. I'm just getting a little too used to staring at an OR ceiling with my left arm sticking out to the side. I wish this would be over soon.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
MyssAnne
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« Reply #1 on: October 16, 2007, 11:56:51 AM »
Oh Adam. I'm so sorry.  Having stuff done and redone sucks, doesn't it? 
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2_DallasCowboys
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« Reply #2 on: October 16, 2007, 12:52:46 PM »
Adam,

Sending best thoughts and prayers your way that
all this trouble will be over for u real quick, and you
have no more darn access problems.

Anne and Les
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BobT1939
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« Reply #3 on: October 16, 2007, 01:08:04 PM »
Adam, tell me how you knew your graft was going bad? What were the signs and symptoms?/bobt
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BobT
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« Reply #4 on: October 16, 2007, 02:16:32 PM »
Adam, I hope that stupid vein of yours gets it's act together soon! Good luck!   :cuddle;
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goofynina
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« Reply #5 on: October 16, 2007, 03:15:29 PM »
Well i hope and pray that this one works well for you and you get back to building them awesome models and doing all the things you do so well  :2thumbsup;  Take care and Godspeed my dear Adam  :cuddle;
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Black
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« Reply #6 on: October 16, 2007, 07:44:26 PM »
  >:(  >:(  Dang, I sure was hoping that wouldn't be necessary, but maybe after the revision everything will go smooth for you.  :2thumbsup; 
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
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Started diaysis 2/5/07 on NxStage
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« Reply #7 on: October 16, 2007, 07:50:25 PM »
 :-\ Adam -- I hope they get you back on track -  :cuddle; - take care!
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donnia
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« Reply #8 on: October 16, 2007, 07:55:09 PM »
Dang Adam, this sux!  I am sorry you are dealing with this!  I hope they get it fixed up for good this time.   Saying a prayer for you tonight. :cuddle;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Adam_W
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Me with Baron von Fresenius
« Reply #9 on: October 16, 2007, 07:57:08 PM »
Quote from: BobT1939 on October 16, 2007, 01:08:04 PM
Adam, tell me how you knew your graft was going bad? What were the signs and symptoms?/bobt
The initial symptoms of my graft problems were excessive bleeding during cannulation, needle pulling, and the treatment itself (blood seeping up around the needle hub), high arterial and venous pressures on the machine, and the thrill would sometimes be weak and the bruit would get a "whistling" sound to it. The stenosis (narrowing) causes the blood flow through the graft to be restricted, and that causes the high pressures and heavy bleeding.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
newkid4me
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« Reply #10 on: October 16, 2007, 08:00:23 PM »
First of all Adam my prayers are with you friend....i myself have gone through 3 grafts(1 lasted a month other 2 lasted a week) and 14 cathaters most from infection and clotting and the longest i have had was my second last one almost 4 years so keep hope....take care......frank.....p/s are you taking any blood thinners like coumadin it helped me
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Bajanne
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« Reply #11 on: October 17, 2007, 12:49:03 AM »
I have a graft and so far it is going fairly okay.   But I have been having a lot of problems with low BP and my neph said that could harm the graft.  I am taking low-dose aspirin which he said should help.
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angellady07
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« Reply #12 on: October 18, 2007, 07:44:19 PM »
I hope your graft problem is resolved soon. I know how frustrating it can be. Hang in there and keep us posted on your progress.  :waving;
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