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wcmjt
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« on: July 19, 2007, 11:40:02 AM »
Hi To All,
I am a 60 yr. old married male (great support from my wife) who has known I have Polycystic Kidney disease for close to 25 yrs.  I am now in stage 4 GFR and lately (last 2 1/2 yrs.) my creatinine has been steadily going up.  My last visit to the Neph. it went up .3 in 3 mos and I am being told when it goes up another .4, I need to consider having a fistula put in (assuming I do hemo).  Although I knew this was coming, my wife and I are still in the stage of bewilderment and fear.  My biggest concern at the moment is trying to decide whether to do CCPD or do home hemo using the NxStage machine.  I am kind of leaning toward the NxStage because of less restrictions in lifting of heavy objects, having one day off a week, having less supplies to store (by using the PureFlow system), diaylisizing for approx. 3 hrs/day and having less dietary restrictions.  My biggest concern is the complexity of doing hemo (due to me being a newbie to dialysis), and getting used to the needles (my center trains you for buttonhole).  As far as CCPD goes, I think it would be easier to learn, less complicated, but my concerns are: would I be able to sleep with the machine hooked up, lots and lots of supplies, weight lifting limits, and infections.  Since I will have to make a decision soon (at least about whether or not I should get the fistula) I need your help.  Any and all of your input would be appreciated.  Maybe I should post another topic under one of the other headings in regard to my questions.  Not sure.
Glad I became a member.  Looking forward to your help.
Bill and Mary Jane
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Zach
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« Reply #1 on: July 19, 2007, 12:12:01 PM »
Welcome Bill And Mary Jane!!  Glad to have you in our community.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #2 on: July 19, 2007, 12:34:14 PM »
Welcome Bill And Mary Jane, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
KICKSTART
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In da House.
« Reply #3 on: July 19, 2007, 12:35:48 PM »
 :welcomesign;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Razman
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« Reply #4 on: July 19, 2007, 12:54:08 PM »
Welcome aboard.  I am also close to dialsys & had / still have a lot of questions.  I've decided on home hemo because I plan to continue working and the time spent at the clinic does not fit . Do you still plan to work ?   Everything seems easy except for sticking the needle in but I guess I will get used to that. Please stay in touch and let us know how things work out.    :canadaflag;
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keefer51
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« Reply #5 on: July 19, 2007, 01:35:22 PM »
Welcome. I hope you find some comfort with this site. I have been on hemo for 3 years. This is my second time. Fell free to ask many questions.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
kitkatz
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« Reply #6 on: July 19, 2007, 01:57:55 PM »
Welcome to the site and I know you will find lots of answers to your questions.





kitkatz,moderator
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lifenotonthelist.com

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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
goofynina
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« Reply #7 on: July 19, 2007, 01:58:36 PM »
Hi Will and MaryJane,  Welcome to ihatedialysis.com.  You've come to a great place to find alot of answers to questions you didnt even know you had :P  :o  lol,  I was on hemo and i am now currently doing CCPD (and loving it so much more)  i hope whatever decision you make works for you.  We are not only a great website, we are an even more awesome support group.  We have become one big happy family here, so, Welcome to the family and i look forward to hearing more from you and Mary Jane.  :2thumbsup;
 
Goofynina/Admin.
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....and i think to myself, what a wonderful world....

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MyssAnne
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« Reply #8 on: July 19, 2007, 02:17:15 PM »
Welcome, Will and MaryJane!!! Ultimately, you need to decide which is most bearable for you, think about your schedules, both of you, think of your activities, would any be limited by which you choose? For both, you'll need storage space for supplies, and a place to hook up, so that's another consideration.  I'm like GoofyNina, I'm on CCPD, and I love it!! There are others who are on NXStage, and love that!  Either way, make sure it's what YOU want!! And by the way,  :welcomesign;
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Sluff
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« Reply #9 on: July 19, 2007, 03:27:54 PM »
Welcome Bill and MaryJane,

Great to have you here. I can't help you with your question but I'm glad you became part of our family. I have heard a lot of positive comments on the Nxstage. Here is a section dedicated to Nxstage: http://ihatedialysis.com/forum/index.php?board=37.0

Here is another site dedicated to Nxstage that belongs to the IHD family of sites.  www.ilovenxstage.com

Hope I could help.

Sluff/ Admin
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Laurie
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« Reply #10 on: July 19, 2007, 04:02:41 PM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
wcmjt
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« Reply #11 on: July 19, 2007, 06:00:48 PM »
Quote from: Razman on July 19, 2007, 12:54:08 PM
Welcome aboard.  I am also close to dialsys & had / still have a lot of questions.  I've decided on home hemo because I plan to continue working and the time spent at the clinic does not fit . Do you still plan to work ?   Everything seems easy except for sticking the needle in but I guess I will get used to that. Please stay in touch and let us know how things work out.    :canadaflag;

I don't plan to work.  Retired a few years ago after 33.5 yrs as a High School Shop teacher.  I am still active doing various maintainence projects for our church plus a couple of part time jobs that are very flexible as far as time goes.  Guess I'm really lucky I don't have to worry about working and doing dialysis.
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wcmjt
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« Reply #12 on: July 19, 2007, 06:02:58 PM »
Wow  :)  We are REALLY impressed with all the welcoming reponses we have already gotten.  We feel like we have a new family in a time when we need it. 
Thanks,
Bill and Mare
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Hawkeye
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« Reply #13 on: July 19, 2007, 07:05:39 PM »
Hello and  :welcomesign;
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It's not easy being green.
angela515
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« Reply #14 on: July 19, 2007, 08:50:26 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Bajanne
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« Reply #15 on: July 20, 2007, 02:42:22 AM »
Quote from: wcmjt on July 19, 2007, 06:02:58 PM
Wow  :)  We are REALLY impressed with all the welcoming reponses we have already gotten.  We feel like we have a new family in a time when we need it. 
Thanks,
Bill and Mare
Welcome to your new family!  As days go by, you are going to see that this is really true.  Some of us don't know how we would have got through this renal challenge without the support from IHD  This is a place to ask questions (and answer some) and rant and vent when you need to, knowing that here people really understand what you are going through.  It is also a place to chat about things which have nothing to do with dialysis and to waste some time with some addictive games!  Please take advantage of all the site has to offer.
We're glad you decided to join us.  Keep posting and let us know how you are doing.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #16 on: July 20, 2007, 03:24:47 AM »
 :welcomesign; Welcome to the site. I too have polycystic kidney disease and started ccpd with a Baxter cycler about 11 months ago. You'll find a wealth of knowledge and advice on this sight feel free to ask any questions, and whenever you need to just have a good rant :rant; we're here to help each other. Please start a thread about the questions you have just raised or perhaps Sluff or Goofinina could to some kind of edit thing to transfer the questionsin  your post to the General Discussion page.





EDITED: Fixed  :welcomesign; icon error - Sluff/ Admin
« Last Edit: July 20, 2007, 03:59:24 AM by Sluff » Logged
Ken
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« Reply #17 on: July 20, 2007, 04:43:57 AM »
Welcome! This is a great place to do research about the different types of dialysis that are available...lots of people with lots of opinions ~ but isn't that what family is for?? Personally, I do CAPD, but am starting CCPD next week (can't wait!!). Yes, the weight restrictions are a bit of a burden, but I would trade PD for anything (except a working kidney, of course!)

Hope you find the information and support you need. Let us know if you need answers or a sympathetic ear.

Katie
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Ohio Buckeye
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« Reply #18 on: July 20, 2007, 06:57:34 PM »
Welcome to the IHD Family Bill and Mary!
I know you'll find lots of helpful info. and support here.
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If I must do this to live, I must strive to live
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