Anyone Know What Happened To Me?

[kristina]

I am having to give up home treatment since it is causing too much stress for my wife, even though I do all the work.   She has had a serious accident and can no longer tolerate living in a "dialysis house".

Ok, so I email my neph and tell him I need some 1 on 1 time.  He invites me to his office after hours and gives me over an hour of his time.   We spoke of many things, from cabbages and kings to ships and sealing way.  He offered many changes to policy to accommodate my style.   One of these is that I will be a "self-serve" patient and the medical orders will say I am free to do my own setup, connect, running the machine and disconnect.   I will also be managing my fluid takeoff and dry weight directly without RN approval/involvement, accountable to my MD at my monthly meeting.    This is going to be "less bad" than going in and waiting for an RN or tech for every little thing, or getting scolded for touching the machine.

Crikey Simon ! How impressive ! What a tremendous courage you have ! I take off my hat to you !  And I wish you good luck and all the best  ... (and I also wish I had just a tiny bit of your courage)  ...
Good luck wishes from Kristina.

[MooseMom]

Simon Dog, I'm really sorry to hear that you are having to give up home dialysis, and I hope your wife will be OK.

It sounds like your neph is certainly willing to accommodate you.  It's great that he recognizes that you are your own best tech.  When will you start your new regimen?  I hope it works out for you and that the clinic staff will just leave you alone to do your thing! 

I'd be really interested to know how well this goes, so let us know once you start, OK?

[Charlie B53]

I have to say Simon you are far tougher than I.

While I can possibly imagine someday that I could get far enough past my needle-phobia to needle myself, I cannot image the physical act of pulling each needle while pressing the gauze one-handed without assistance.  There must be some trick that I haven't seen just yet.

The fact that you are accommodating your Wife, doing your treatments elsewhere to relieve her from the experience is also huge.

I hope she understand just how much you are willing to do for her.

[GA_DAWG]

Can't watch the techs put the needles in, so I am definitely out as far as doing it myself. The whole taking the needles out while putting the gauze in place is beyond my comprehension.

[Paul]

OK, after several months they have at last decided that the problem is caused by blocked arteries feeding the heart. Several of you posted that you thought it was cardiac related. Justagirl2325 hit the nail exactly on the head. So congratulations, you are smarter than the doctors who took months to work it out!

[Charlie B53]

Wow Paul, this can get serious quickly.

Stent or by-pass surgery?

I had my by-pass late Jan '06.  It was a real eye opener that I needed to make a few changes in how I live.

Still not getting enough exercise due to other problems, but I am eating far healthier.

Hope this gets done quickly and that you figure out what improvements you need to make.

Take Care,

Charlie B53















Sp mod Cas

[Paul]

At the moment they are trying to clear it with drugs. If that fails they will operate.

[cassandra]

Glad to hear The Learned ones worked it out too.


Good luck Paul


Love, Cas