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Author Topic: AUGGGGG!!!!!!!!!!  (Read 3070 times)
babycake
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« on: February 01, 2018, 10:08:46 PM »
 have had alot of health issue
they belive my infection in my heart
valve has to do with
my graft
so now there talking about
taking the graft out
and use my left arm
for a new fistula
(GREAT)
what i find is crap
is the infection disease doc my kidney doc
and 2 other surgeons didnt bother to tell me
that i had 2 more leaky valves
i learned that from 3rd surgeon
why on earth keep that
as a dang freaken secert







EDITED:Moved to general discussion area-kitkatz,Admin
« Last Edit: February 02, 2018, 10:52:19 PM by kitkatz » Logged
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: February 02, 2018, 02:58:26 AM »
O Babycake, I'm sorry to hear about your situation.


Did they take a biopsy from your graft, or are they just believing this to be the cause of your infection?


Lots of love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
babycake
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« Reply #2 on: February 02, 2018, 12:22:54 PM »
Quote from: cassandra on February 02, 2018, 02:58:26 AM
O Babycake, I'm sorry to hear about your situation.


Did they take a biopsy from your graft, or are they just believing this to be the cause of your infection?


Lots of love, luck and strength, Cas


 they didnt do a bio
there thinking that
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MooseMom
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« Reply #3 on: February 02, 2018, 01:20:52 PM »
Dearie me, this sounds kinda serious!  What's the plan?  I'm really sorry you're having to deal with this on top of everything else.  :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
babycake
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« Reply #4 on: February 02, 2018, 08:46:00 PM »
Quote from: MooseMom on February 02, 2018, 01:20:52 PM
Dearie me, this sounds kinda serious!  What's the plan?  I'm really sorry you're having to deal with this on top of everything else.  :grouphug;


the surgery is completely out
on my heart valve
too much of a risk
i should be seeing the vascular doc
next week to see what his plan is

yesterday Thursday feb 1st
was a very tiring day
i had 3 doc appts
and the 3rd one was the
vascular doc for the ultra sound
took 2 hours which normally doesn't
take that long. but right before i was going
to leave they said oh we can do the ultra sound on
your left arm
so did that














Sp mod Cas
« Last Edit: February 03, 2018, 06:33:54 AM by cassandra » Logged
MooseMom
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« Reply #5 on: February 02, 2018, 09:43:53 PM »
Well, ugh to all of that.   :thumbdown;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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