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Author Topic: lymphedema/compartmentalisation?  (Read 2754 times)
cassandra
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When all else fails run in circles, shout loudly
« on: February 19, 2017, 02:04:26 PM »
So the cellulitis which I had two antibiotics for the last 10 days, turned out to be not cellulitis but  lymphedema. In 20+ yrs D, I had never heard of it, but apparently it's very common. Apparently it's like compartmentalisation (nice word) of fluid in your fistula arm. No cure, only exercises, and maybe a few places up the waiting list for vasc surgery.
The exercise consists of laying your arm on a pillow, and squeezing a squeeze ball. The same as when you're 'developing' your fistula, isn't it?
So an enormously swollen fistula arm can also be caused by that. The learning about complications will really only stop when you're dead I suppose. Sigh.

Love y'all, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kickingandscreaming
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« Reply #1 on: February 19, 2017, 05:00:10 PM »
Sorry abodut your new development, Cas.  Well, at least now you have the right name for it.  I hope the exercises do what they should.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
PrimeTimer
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« Reply #2 on: February 19, 2017, 05:40:39 PM »
Hope the exercises work for you, Cas. Thanks for passing along the info. I will let my husband know in case it ever happens to him. Take care!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Blake nighsonger
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« Reply #3 on: February 19, 2017, 08:06:28 PM »
Hi Cas.
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Michael Murphy
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« Reply #4 on: February 20, 2017, 02:10:56 AM »
Sorry about your arm, however thanks for the info, the cool thing about this site is you can learn something new all the time.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #5 on: February 20, 2017, 07:59:03 AM »
Thanx guys, and glad to have been part of our eternal learning program

 
       :sarcasm;


Love y'all, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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