Little bit worried just over 4 yrs post tx

[lainiepop]

Hi guys. Most of u know me and that my dad donated to me 4 yrs ago 9 mths after my daughter was born. I have had a few non kidney issues, notably a seizure 5 Mnths post tx and a serious bowel op 2 yrs post. Throughout all this kidney has been unaffected with creatinine stable in the 70s. Well just before we went to America last yr my creatine went from around 74 to 84. Doc wasn't concerned but I pushed for another blood test 2 weeks later and it had jumped again to 90. They decided to reduce my tacro by 0.5mg and a week later bloods showed creatinine had reduced to 80 again. It stayed around 80 and 81 til this July when it went to 84. Doc wasn't concerned told me all was well and sent me on my way. Well I had an iron infusion end of Aug and that eve and morning I was cold shaky with a temp over 38. Luckily it came down on it's own but I was tested and treated for uti which came back so treated again as soon as I came of antibiotics wee started smelling and has done ever since. I am due in clinic Tuesday so had bloods done a couple days ago and tx nurse told me to send off another wee sample. Apart from the smell I have no symptoms and feel well. I am prone to UTIs as i have a mitrifanoff bladder and catheterise through stoma but have been uti free for 2 yrs. Anyway tx nurse called earlier saying there are still bugs in the urine she is waiting on docs to see what they want to do but creatinin creeped to 87. Now I know this isn't massively high but the trend concerns me and I am worried about rejection just when I'm feeling great. Had a cervical cancer scare a few Mnths ago. Fortunately didnt need treatment but I guess I just wanted to talk to people who understand how it feels to constantly have issues and worries. Plus our niece has had leukaemia since she was 1 and a bone marrow tx she is now 3 and just been told it has come back so she is starting treatment all over again. Marie xx






sp mod Cas

[cassandra]

O Marie I'm sorry to hear that, and understand you. Eventhough it's a long time ago I had a TX I would think that it might still be the tacro or are you drinking less? The situation with your niece of course adds to the stress.

Lots of love and strength, Cas


   

[DialysisGoneFOREVER]

I don't understand that range.

In America normal serum creatinine is about .7 to 1.3. How does yours translate?

[lainiepop]

Thanks Cas. They want me to take a course of cefalexin for 2 weeks to try clear up the persitstant uti. Will see where it goes on clinic on Tues.

Uk uses a diff version a rought guide is around 60 to 120 for normal range. I believe Europe and Australia use same version of creatinine as uk.






sp mod Cas

[Rerun]

With antibiotics you need to drink lots of good clean water.  Maybe throw in some cranberry juice in you for the UTI.  Some say it works some say it won't.  I think it works.

[lainiepop]

Thanks rerun. I am on the cranberry too 

[coravh]

I don't understand that range.

In America normal serum creatinine is about .7 to 1.3. How does yours translate?

Multiply by 88. So her numbers of 80 to 90 translate as 0.91 to 1.02. Basically very minor fluctuations. My baseline is between 160 and 180 and has been for about 14 years (1.82 - 2.05)

[DialysisGoneFOREVER]

I don't understand that range.

In America normal serum creatinine is about .7 to 1.3. How does yours translate?

Multiply by 88. So her numbers of 80 to 90 translate as 0.91 to 1.02. Basically very minor fluctuations. My baseline is between 160 and 180 and has been for about 14 years (1.82 - 2.05)

You mean divide by 88. So a creatinine in the .9 to 1 range is EXCELLENT! Unless you see it continue to rise there is no cause for concern.