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Author Topic: Vascular challenged dialysis patients  (Read 2217 times)
Sugarlump
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Posts: 2160


10 years on and off dialysis

« on: July 03, 2015, 07:22:24 AM »

I am interested to hear about other people's experiences with difficult vascular access for dialysis.
I have been on dialysis approaching 10 years. I am female and have very small veins.
I have had 2 necklines and about 6 groin lines.
5 fistula attempts in left arm, finally successful Sept 2013. Clotted off Jan 2015. Graft put in at Adddenbrookes. Clotted off May 2015.
Back on groin line ( which I hate) and have had a fistula made in my ankle. £ weeks old and gentle pumping away.
How we are going to achieve needling and stopping the bleeding is a big question mark...
and if this fails what happens next?
 :thumbdown;  :thumbdown;  :thumbdown;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
nkviking75
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« Reply #1 on: December 04, 2015, 09:08:45 PM »

I haven't been on this site for awhile, so that's why my answer is coming so long after your question.  I've  been on dialysis for 14 years.  I had little luck with fistulas, better with grafts in my arms, as well as various lines.  Then two years ago I ran out of options in my arms.  I happened to be in the hospital at the Mayo Clinic when I first learned of a HeROgraft.  I'll provide a link rather than try to explain it.  Th HeROgraft has worked very well for me.  The only problem I have had is with techs who tend to stick the same sites too much.  Mayo didn't create the graft, but I am the first one to have one installed.  I can't complain.  I'm not sure it's available in your country, but maybe there's a way around that.  Good luck

http://www.cryolife.com/products/hero-graft/
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cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: December 05, 2015, 07:16:55 PM »

Dear Sugar, I found this

https://www.google.co.uk/url?sa=t&source=web&cd=1&ved=0ahUKEwiWnIa7ocbJAhXLvxQKHT7TBKMQFggKMAA&url=http%3A%2F%2Fwww.ncbi.nlm.nih.gov%2Fpubmed%2F26024753&usg=AFQjCNGX0GLAsi3d_>

Don't know if you can open it like that, but just Google : herograft uk.

Good luck sweetheart, love, Cas
« Last Edit: January 12, 2016, 11:38:27 AM by cassandra » Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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