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Author Topic: Finally the end of KT/V near  (Read 10925 times)
Zach
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"Still crazy after all these years."

« Reply #25 on: July 30, 2015, 07:43:49 AM »

I wonder if a two stage filter that combines a standard high flux filter with a lixelle column as standard treatment would reduce B2M amyloidsis.

That's exactly what is done in Japan for about 15 years
… and soon to be done in the U.S. on a research-basis.
The PDF on this post is not downloading for me.

I tested it.
Once you double-click the icon, it downloads and opens.
Perhaps your computer has a protection to stop automatic downloads.
Sorry, iolaire.  I'll try PMing it to you.
« Last Edit: July 30, 2015, 07:50:11 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
obsidianom
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« Reply #26 on: July 30, 2015, 09:02:10 AM »

You are making some pretty BIG assumptions about this based on erroneous data. First any 1 patient is not a basis for ANYTHING. I base my input on 27 years practicing medicine and the articles I read from respected researchers and practitioners like Dr Agar.   You are 1 patient and your own unique experiences are just that, unique to YOU. When I discuss findings I do it with thousands of patients in mind.
Now to your own findings that when your KT//V is down you feel bad, OF COURSE you do. Kt/V measures UREA clearance mainly. If the machine isn't clearing that YOU GOT TROUBLES as it shows it is not even doing the minimum job.  Urea being a small molecule is EASILY , quickly cleared. If it isn't then you can bet the larger more toxic molecule are not even close to clearing.   Where KT/V is weak is the other end of the spectrum. You can have a high kt/V and still be getting poor dialysis .
Again, you are 1 person as is my wife. In reality neither you nor her matter much in medical science. It takes thousands of patients to really get a statistical measure of what really matters.  In the US where we cling to KT/V , we have horrible statistics on our morbidity and mortality compared with Japan and Zealand.  They do a far better job and don't even check KT/V in Australia /NZ.   
My wifes American trained Nephrologist admitted to me that even though they are forced by medicare to check Kt/v , he realizes it is a very poor indicator of dialysis adequacy.




 Wow that much of educations and a dime for a cup of coffee! 

 What you lack is "Humility".
Well, I guess when you cant argue with facts you use personal attacks.     
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
PrimeTimer
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« Reply #27 on: July 30, 2015, 06:21:56 PM »

I'm still learning but I don't think KT/V should be the final word on whether or not a person is receiving "good" or "adequate" dialysis. My husband's labs can all look good but he doesn't feel as well when we have to shorten his treatments for any reason. In my opinion, time and frequency of treatment and an individual's own health history definitely all play a role. I DO NOT like the idea of clinics having to rely on or being overly concerned about putting a patient's KT/V on paper to satisfy others. I DO like the idea of my husband's Nephrologist being able to look at my husband's overall health and lab results to make decisions regarding his care.   
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
obsidianom
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« Reply #28 on: July 31, 2015, 05:15:11 AM »

I'm still learning but I don't think KT/V should be the final word on whether or not a person is receiving "good" or "adequate" dialysis. My husband's labs can all look good but he doesn't feel as well when we have to shorten his treatments for any reason. In my opinion, time and frequency of treatment and an individual's own health history definitely all play a role. I DO NOT like the idea of clinics having to rely on or being overly concerned about putting a patient's KT/V on paper to satisfy others. I DO like the idea of my husband's Nephrologist being able to look at my husband's overall health and lab results to make decisions regarding his care.   
Absolutely agree.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
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