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gorwell1984
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« on: February 14, 2008, 07:21:46 PM »

What can I eat to preserve what kidney function I have left?
My doctor tells me low sodium, no simple carbs (diabetes), No, or very low protein.
What is left?
Of everything I've had to alter in my lifestyle my diet has been the absolute hardest of everything to get right!
I honestly have no idea what my meals should consist of?
I've seen a diatician but she contradicts about everything she tells me?
I really need help regarding my diet.

I would really appreciate it if someone could give a simple idea of recipes, and things I should be eating.
My diet consists of complex carbs, like cabbage with a small amount of low fat Polish sausage, low sodium vegatable soups, blackberry cobler with sugar substitute for desert, no sugar added ice cream for desert. fried rice and chinese vegatables, etc., whole wheat bagels with sour cream and oatmeal for breakfast. vegeterian papa Murphys pizza on thin crust pizza.
Any meal ideas would be greatly appreciated. I'm low stage 3 CKD with GFR of 33, Cholesterol 204. HDL 48, Creatinine 2.09. I receive Procrit injections every 4 weeks and my RBC count is extremely low, my  BUN is 53, sodium is ok, glucose ranges from 168-252. MY BP averages 145/92. I am on 20/25 Lisinopril-hctz once daily, actos 30mg 1 time a day, Glimepiride 4mg 1 x a day, Lipitor 20mg once a day. I also take 300mg COQ-10 twice a day. Plus I have an enlarged prostate, diastolic heart failure starting last July. I don't smoke but do chew skoal. 1 can of skoal lasts me 3 to 4 days. I drink 3 to 4 drinks per week vodka/diet ginger ale with an ounce of red grapefruit juice. I am prescribed 5mg valium which I take when I have panic attacks (getting more frequent since being diagnosed with CKD, I also am prescribed Norco 7.5/325 APAP for recent back surgery which I take as needed for pain.
Again, advice appreciated.
Thanks,
Rick
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Psim
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« Reply #1 on: February 15, 2008, 10:46:27 AM »

Sorry I don't have any info, but just wanted to say, wow, what a hard diet! Good for you for trying to figure out how to do it right. Hope you get some good advice here.
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Romona
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« Reply #2 on: February 15, 2008, 12:07:53 PM »

Hi Rick,
Kidney diets on are so hard. If it isn't on one list it is on another. There is a website, World's Healthiest Foods that you can plug in what you need to watch, it will eliminate those foods and give you what is left. Grapefruit juice can interact with blood pressure meds, but you are only having an ounce,so I don't know. I also had to watch salt, protein, potassium and phosphorous. It looks like you are doing a lot of things right already. You have diabetes to watch on top of it all. Good Luck.
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gorwell1984
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« Reply #3 on: February 15, 2008, 04:58:00 PM »

Thanks guys/gals,
It is a hard juggling act. I swear (as I stated above) my diabetic dietitian gave me a list of good idea menus then would look at my cbc chart and mark this and that off of her list. I honestly believe she got very confused trying to put menus together for me while looking at all of my blood indicies.
When I got home and read her list I was almost as confused as I was before I spent an hour with her.

I came to one conclusion though. Eat/drink small portions of whatever I eat and drink.

Mainly I believe,watch my protein, sodium, glucose, simple carbs. I was hoping to get her to write down 5 or 6 meal plans for me.

Anyway, thanks to all.
P.S. I did see the dietary guidelines that someone had posted earlier in this thread but not exactly sure what all that is for? Just predialysis guidelines or predialysis with hbp, diabetes, and other diseases I'm cursed with. But it does help.
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Romona
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« Reply #4 on: February 16, 2008, 10:16:42 AM »

Rick,
I hope I wasn't the one to confuse you. When I talked to a dietician, she wasn't able to help too much. I found most of my info on the web. At your next appointment ask about your labs. If something is off they should tell you. Eating and drinking the small portions is great. If you are too strict with yourself, you might give up and not watch things at all. I was watching my diet for pre-dialysis and high blood pressure.  :)
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« Reply #5 on: February 17, 2008, 10:14:46 AM »

It must be very hard trying to integrate the different restrictions. I was mis-diagnosed with diabetes right before they discovered my renal failure, so I was on a diabetes diet and then switched to a renal diet. I am in awe of people who do both -- it's so complicated. But really worth it if you can stay healthier put off dialysis. Go for it!
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okarol
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« Reply #6 on: February 17, 2008, 11:36:56 AM »

Diet and the Predialysis Patient

By Peggy Harum, RD, CS, LD

Long before you need dialysis, changes are taking place in your body. You lose the ability to get rid of phosphorus in your urine. Your kidneys become unable to make a special hormone to keep your bones strong.

Your kidneys will also become unable to make red blood cells and you will most likely become anemic. Eventually, the kidneys will stop making urine and you will need dialysis. Fortunately, physicians know patients will not survive very long if they wait too long to prescribe dialysis. Usually, dialysis is prescribed when the kidneys have about ten percent of function remaining. Diabetics may require dialysis sooner than non-diabetics.

Much research has been done to determine if low protein diets will help delay the progression of kidney disease. The results are inconclusive. But we have learned tight blood pressure control (120/70) and a low protein diet can help in some kinds of kidney disease. For example, a diabetic patient has a good chance of delaying dialysis by having good blood pressure and a low protein diet. In these cases, the watchful eye of a renal dietitian is extremely important because patients tend to become malnourished and develop malnutrition.

The main purpose of routine follow up is to ensure a successful outcome. In other words, don’t expect to have good luck following a special diet without seeing the renal dietitian frequently.

The information provided is for both nondiabetic and diabetic patients. The amount of protein allowed in the diet is dependent upon your size. You will most likely be allowed 0.6 grams of protein per kilogram of desired body weight. If you weigh 154 pounds, or 70 kilos (2.2 pounds = 1 kilogram), you are allowed 70 x .0.6 or 42 grams of protein per day. The secret of the diet is PORTION SIZE.

The sample menus of this diet will show you where the protein is found in the diet. There are small amounts of protein in fruits, juices and in non-dairy products. These are not counted in the daily allowance. There is no guarantee the low protein diet will delay the progression of kidney disease. But it may be worth talking to your renal dietitian or doctor about it.

 

 Sample Diet for Diabetics

45 grams of protein, 2200 calories, 2000 milligrams sodium, low phosphorus diet

Amount of Protein                                                Breakfast

1 gram                                                                  8 ounces apple juice
4 grams                                                                1 English muffin
                                                                            1 tablespoon unsalted margarine
                                                                            Diet jelly
                                                                          Coffee or tea with sugar substitute, Cremora® or Polyrich                                                                     

                                                                              Snack

1 gram                                                               1 cup cantaloupe or 1/2 cup pineapple juice
1 gram                                                               1 cup grapes
                                                                          Diet 7-UP®

                                                                              Lunch

7 grams                                                            1 ounce unsalted tuna fish
                                                                        Chopped celery, chopped onions, dried dill
                                                                        1 tablespoon regular mayonnaise
4 grams                                                            2 slices white bread
1 gram                                                             1 cup tossed salad with cucumbers, romaine
                                                                       1 tablespoon oil (or *creamy garlic dressing), vinegar or lemon as desired
1 gram                                                             2 peach or pear halves
                                                                        Iced tea, diet Sprite® or coffee

                                                                              Snack


1/2 gram                                                          A small raw apple

                                                                               Dinner

14 grams                                                      2 ounces chicken (one thigh = 2 ounces after cooking without the bone)
4 grams                                                        1 medium baked potato (1 cup) or 2/3 cup rice
                                                                    2 tablespoons unsalted margarine
2 grams                                                       1/2 cup fresh asparagus
2 grams                                                       1 small fresh tomato sliced
1/4 gram                                                       4 fresh strawberries
2 grams                                                       1 inch slice angel food cake
                                                                   Iced tea with sugar substitute and lemon or Perrier® with lime

                                                                              Snack

 2 grams                                                           3 graham crackers
1/2 gram                                                         1/2 cup grape juice
1/2 gram                                                          1 small fresh pear

47 grams protein; 2220 kcal

Note:
1. You are allowed 1/2 teaspoon salt per day.

2. Always weigh meat, fish, poultry or seafood without bone or shell after cooking.

*Creamy Garlic Dressing Ingredients:
2/3 cup oil, such as canola oil or olive oil; 1/3 cup vinegar, such as garlic, cider, wine or tarragon; 1 or 2 cloves garlic, pealed and chopped; 1 teaspoon Dijon mustard; ground black pepper. Preparation: combine ingredients in a blender for about 30 seconds.
Analysis (per one cup): 1282 calories, 0.3 grams protein, 16 mg phosphorus, 35 milligrams sodium, 100 milligrams potassium.

 

Sample Diet for Non-Diabetics

About 45 grams protein, 2400 milligrams sodium, low phosphorus diet

Protein                                                                    Breakfast

1/2 gram                                                             4 ounces orange juice
2 grams                                                   3/4 cup puffed rice with Polyrich as desired, sugar as desired
2 grams                                                              1 slice white toast or ½ English muffin
                                                                          1 Tbsp. unsalted margarine
                                                                          1 Tbsp. jelly
                                                                Coffee or tea with Coffeemate® or Polyrich as desired

                                                                                Snack

1/4 gram                                                      4 fresh strawberries and Cool Whip®
2 grams                                                            1 inch slice angel food cake
                                                                     Coffee with sugar and Cremora®

                                                                                Lunch

4 grams                                                  2 slices bread, regular mayonnaise as desired
7 grams                                              1 ounce chicken (please weigh after cooking without skin and bone)
1 gram                                                   1 cup lettuce with onions and cucumbers
                                                              1 Tbsp. oil and vinegar or recipe for creamy garlic dressing
1 gram                                                   1 small tomato sliced
1/2 gram                                                Fruit cocktail in heavy syrup (1/2 cup)
                                                            1 cup Sprite® or iced tea with sugar and lemon

                                                                               Snack

1/2 gram                                                Baked apple with 1 Tbsp. honey
                                                             1 ounce mints or gum drops (six each)

                                                                            Dinner

 14 grams                                  2 ounces steak (weigh after cooking without bone) You may sauté or fry in allowed oils margarine
4 grams                                                 1 medium baked potato (1 cup)
                                                             1 Tbsp. unsalted margarine
2 grams                                                 1/2 cup canned corn (rinse and drain)
2 grams                                                 Small blueberry muffin
                                                             Unsalted margarine
1 gram                                                  1 cup Romaine salad with scallions
                                                           Wine vinegar and oil dressing
1/2 gram                                               1 cup cantaloupe or grapes
                                                            1 cup cranberry juice, 7-UP® or sweetened tea

                                                                        Snack

 1/2 gram                                                   1/2 cup applesauce
                                                                    1 cup lemonade

45 grams of protein.

You are allowed to use 1/2 teaspoon of salt per day. Please use generous amount of allowed canola or olive oil or unsalted margarine. Please use additional sugars and sweets if your weight is below desired weight (your dietitian will advise you).

Always weigh meat or equivalent after cooking without bone or shell.

Peggy Harum, RD, LD is a renal dietitian from Miami. Ms. Harum has worked with AAKP for many years in developing dietary resources for kidney patients.

This article originally appeared in the September 2007 issue of aakpDelicious!
http://www.aakp.org/aakp-library/Diet-and-the-Predialysis-Patient/
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Admin for IHateDialysis 2008 - 2014, retired.
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Was on in-center hemodialysis 2003-2007.
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Found a swap living donor using social media, friends, family.
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Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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Romona
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« Reply #7 on: February 17, 2008, 06:29:02 PM »

Great posd Karol! The samples make it easier! Wish I knew you when I was watching.  :grouphug;
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Psim
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« Reply #8 on: February 18, 2008, 10:59:25 AM »

Thanks for posting that, Karol. My renal dietician here in Canada told me to have 5-6 oz of protein per day, but these diets both call for 3 oz... Is there generally some disagreement among dietitians or is mine way out of line?
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pelagia
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« Reply #9 on: October 31, 2008, 10:48:24 AM »

 :bump; I'm bumping up this thread as I've seen a number of posts lately about pre-dialysis diet.

Also, here's some info I posted for another query:

The American Association of Kidney Patients (AAKP) website discusses pre-dialysis diet:

http://www.aakp.org/aakp-library/Diet-and-the-Predialysis-Patient/ (pre-dialysis diets for diabetics and non-diabetics)
http://www.aakp.org/aakp-library/eat-well-live-well/ (lists of foods to enjoy and avoid)

The National Kidney Foundation site also has useful information.  For example:

;http://www.kidney.org/ATOZ/atozItem.cfm?id=103 for guidelines on potassium

http://www.kidney.org/atoz/atozitem.cfm?id=101 for guidelines on phosphorus

Hope this helps.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #10 on: October 31, 2008, 11:03:19 AM »

Thanks Pelagia.  We have lots of new members that this will help.

                                                                  :waving;
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