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Author Topic: Neuropathy - Burning foot pain  (Read 5744 times)
Hazmat35
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« on: October 13, 2014, 08:17:07 AM »

Hey.  Hope everyone is doing well. 

I have been having troubles for a LONG TIME now with Neuropathy; that burning foot sensation!  It is DRIVING ME CRAZY!  I am NOT a diabetic, my levels are fine; numerous doctors have tested them; one doctor; just told me that I'm too heavy; and loose weight.  (Moran)

I have tried, GABAPENTIN, and even up the dosage per the DR...and it never worked, not even a little bit!  so I stopped taking it...!

Does anyone have any suggestions or remedies that have worked for them?  I am open to "almost" anything at this point. 

I am am on Hemo Dialysis (3x / week @ 4 hours) and have a KT/V of 1.38.  All my other blood levels are just fine...no issues at all. 

HELP!!!!!   :sos;


EDITED:  Changed Title To Read "Foot"  Rerun, Admin
« Last Edit: October 15, 2014, 09:01:35 AM by Rerun » Logged

Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
obsidianom
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« Reply #1 on: October 13, 2014, 09:27:44 AM »

Hey.  Hope everyone is doing well. 

I have been having troubles for a LONG TIME now with Neuropathy; that burning foot sensation!  It is DRIVING ME CRAZY!  I am NOT a diabetic, my levels are fine; numerous doctors have tested them; one doctor; just told me that I'm too heavy; and loose weight.  (Moran)

I have tried, GABAPENTIN, and even up the dosage per the DR...and it never worked, not even a little bit!  so I stopped taking it...!

Does anyone have any suggestions or remedies that have worked for them?  I am open to "almost" anything at this point. 

I am am on Hemo Dialysis (3x / week @ 4 hours) and have a KT/V of 1.38.  All my other blood levels are just fine...no issues at all. 

HELP!!!!!   :sos;
Gabapentin is very weak treatment for painful neuropathy. Also it requires high doses to work and these usually are hard to tolerate.
 I treat a lot of it. I usually start with Lyrica as it is approved specifically for this. Gabapentin is really just an anti seizure med that can sometimes help with nerve pain, but it is hit or miss. (I dont prescribe it much). If lyrica fails then I would go to Cymbalta (duloxetine) . It is an anti depressant that is aslo approved for arthritis and nerve pain.
There are also vit B derivitives that can help but the ones that work are very expensive. (Metanex)
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My wife is the most important person in my life. Dialysis is an honor to do for her.
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When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
Hazmat35
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« Reply #2 on: October 13, 2014, 09:31:23 AM »

thank you...I will see my doctors PA today, and will discuss w/ her! 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
kristina
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« Reply #3 on: October 13, 2014, 01:14:52 PM »

Hello Hazmat,
I had such trouble as well at one time (no idea to what it was related to) and it was extremely trying!
During that time I took a herbal (warm) foot bath and was wearing warm socks afterwards and that helped me a bit,
or (I don't know whether you can take a bath), a herbal warm bath can be very helpful as well.
Fortunately "my" foot pain disappeared after a while and has not returned.
I do hope you get rid of this burning sensation in your feet very soon, because I know how very irritating it can be!
Best wishes and good luck from Kristina.
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LisaBart
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« Reply #4 on: October 13, 2014, 02:21:06 PM »

I wonder if increasing the magnesium in your diet would help any....just a thought? I know my partner went through the pain of neuropathy he found it excruciating at times but it all
seems to have settled now, though he has lost most feeling in his feet, circulation still good.

Leg cramps, foot pain or muscle ‘twitches’ are usually the first signs of magnesium deficiency....

http://www.herbalencounter.com/2011/12/01/are-you-magnesium-deficient-leg-cramps-foot-pain-or-muscle-%E2%80%98twitches%E2%80%99-are-usually-the-first-signs/
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jeannea
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« Reply #5 on: October 14, 2014, 07:04:22 AM »

Neurontin works for me most of the time. I have occasional pain but it's well controlled. If it doesn't work for you then it doesn't. They should try to find you something that does work because neuropathy is awful. Tell them you need help!
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galvo
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« Reply #6 on: October 14, 2014, 04:40:28 PM »

Lyrica helps me. I also use a topical analgesic cream called Zostrix HP. It's a Swedish product and is very effective!
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Galvo
Hazmat35
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« Reply #7 on: November 11, 2014, 11:04:40 AM »

Thank you to everyone who responded!  I do appreciate it! 

I've been trying to take [1] magnesium tablet per day at night w/ dinner....been taking it for a week now....and the burning sensation is going away.  It isn't 100% gone, but a heck of a lot better than it was....maybe we're on the right track...

....multiple doctors....two different Physicians Assistants; one Specialist and none of them came up with this suggestion!!!!!!! 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
LisaBart
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« Reply #8 on: November 14, 2014, 03:46:21 AM »

That's good news!
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