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Author Topic: new graft used today, but i have a ?  (Read 9029 times)
obsidianom
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« Reply #25 on: May 09, 2014, 12:53:05 PM »
If he is a good doctor you dont have to worry. The old time doctors could see and feel things using thier eyes and ears and hands . They didnt need tests for everything. A skilled surgeon can tell a lot by looking. I have been doing medicine and surgery for 26 years and dont order a lot of tests as I can tell a lot by touching and looking . so if he is good and took the time to look carefully, there is nothing to worry about.  Tests can sometimes be deceiving anyway. I trust a good doctors instinct. 
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
gothiclovemonkey
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« Reply #26 on: May 09, 2014, 02:04:12 PM »
i worry but definitely trust him more than my clinic!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
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jeannea
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« Reply #27 on: May 11, 2014, 10:17:50 PM »
Concerned? It's possible that it's something an experienced doctor can recognize without tests. It's also possible tests could make you hurt worse.

I think you should consider calling your local ESRD network. Something is wrong at your clinic.
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gothiclovemonkey
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« Reply #28 on: May 16, 2014, 10:46:14 AM »
my bruising is horrible...
went back to surgeon, since it seems to be getting worse... he said this is normal...
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
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iolaire
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« Reply #29 on: May 16, 2014, 10:50:13 AM »
I get that when they do angioplasty (balloon open the vein) on my fistula or the veins around the fistula.  Mine doesn't hurt, its just discolored, I think from the dye that they use.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
gothiclovemonkey
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« Reply #30 on: May 16, 2014, 10:56:57 AM »
this was from them attempting to use the graft for treatment, the machine didnt say there was anything wrong, so they kept arguing with me, id say it hurts, theyd stop the machine, fiddle with the needles, and start it, repeatedly until i was bawling and begging to go home...
"theres nothing wrong with it" is all i keep hearing, yet the bruising continues to worsen...
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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cdwbrooklyn
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« Reply #31 on: May 16, 2014, 02:09:25 PM »
They are sticking the needle in the wrong place.  It's not going into the vessel. The machine cannot determine if the needle is in the right place.  If you can, see if someone know how to stick the needle in the vessel.  That happened to me and I told my nurse to take the needle out right away and use another spot when I was getting my buttonholes.   I agree with your doctor, they don't know what the heck they are doing.  Sorry this is happening to you.  :(
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
obsidianom
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« Reply #32 on: May 18, 2014, 08:50:39 AM »
It looksw like they are infiltrating and seeping blood into the surrounding tissue. They need to improve their technique.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
cassandra
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« Reply #33 on: May 18, 2014, 11:18:09 AM »
HLM I'm so sorry you are in such a ridiculous situation there. They've definitely infiltrated you. Is it getting worse?
Is it really not poss to start needling youself? And maybe try to follow some of Iolaire's, and cdwbrooklyn's suggestions?

Lots of luck, my darling, and love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
jeannea
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« Reply #34 on: May 18, 2014, 08:07:52 PM »
Bruising always looks worse before it gets better. The color changes are awesome or gross depending on your perspective. The pain should be getting better.
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bhall777
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« Reply #35 on: April 15, 2021, 10:36:14 PM »
This has been 7 years ago...

How are you feeling today?

Are you still on Dialysis?

Do you still use a graft?

Im interested to know an update.....

I pray it got better.
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