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GrayBeard
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« on: March 05, 2014, 10:02:32 AM »
here's my story


December 31st 2012 sitting at home, couldn't breath, drove to the hospital and died in the emergency room twice. lungs shut down then the heart  then everything else. Double pneumonia

spent 2 weeks in the hospital.


February 2013 started all different scans to check for damage to other organs.

found spots on the lungs, pancreas, liver and kidneys.. everything else was eventually declared clear except the kidneys.

left kidney was described as engorged and blackened, right kidney under sized and tumorous


April 16th 2013 went in for surgery to remove the left kidney. started drug treatment to contain the cancer in the right kidney.

over the next several months i went from 160 pounds down to 125 pounds

currently holding steady at 130, gaining slowly

I am still trying to gain back some weight before letting them take the right kidney

hard to do when you have no appetite and a restricted diet


finally got rid of the chest catheter in October.


currently going to dialysis 3 hours a day 3 times a week


went back to work in late May 2013, could barely function, retired on disability February 2014

also in February I was found to be a diabetic, "diet controlled diabetic" is how the doc put it

so now I will be dealing with that.

anyway glad I found this place, been reading through the thread. Interesting site
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Rerun
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Going through life tied to a chair!
« Reply #1 on: March 05, 2014, 10:27:40 AM »
Hi GrayBeard, and welcome to IHD.  I'm so glad you found us.  Rocky Road to say the least.  Sorry about that.  You will do better now that you are not trying to preform at work.  At least I did better.  You will have time to cook and eat right and time to take walks and smell the roses.  Heal.

Come here often.  We have a lot to say.

Rerun, Admin         :welcomesign;
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MooseMom
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« Reply #2 on: March 05, 2014, 11:00:53 AM »
Oh, that's a terrible story.  I'm glad you found us and hope you will post often.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: March 05, 2014, 12:35:56 PM »
Welcome to the site GrayBeard

    :welcomesign;


Take care,Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #4 on: March 05, 2014, 01:42:03 PM »
 :welcomesign;  we are glad you found us.
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One day at a time, thats all I can do.
MaryJoe
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« Reply #5 on: March 05, 2014, 01:50:52 PM »
 :waving; Hi, GrayBeard, and welcome to IHD. I'm sorry you've had such a rough journey, hope your recovery continues to go smoothly. We're glad you found us.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Bambino_Bear
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WWW
« Reply #6 on: March 06, 2014, 12:02:54 AM »
 :welcomesign;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Darthvadar
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« Reply #7 on: March 06, 2014, 06:38:17 AM »
Hello GrayBeard...

 :welcomesign; to IHD...

You've been through the mill, haven't you???...

Great that you've joined us... You'll get lots of support here from those who really 'get it'...

Visit and post often... It would be nice to see more of you...

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kristina
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« Reply #8 on: March 22, 2014, 03:11:16 PM »
Helllo and sorry what you had to go through....

.... unfortunately ESRF is not easy to deal with and we share our experiences to make life a little easier...

Best wishes and good luck from Kristina.
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