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Patrick518
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« on: February 09, 2014, 03:17:32 PM »
My name is Patrick. I first learned of my kidney failure in 1997 in Tampa my diagnosis was due to hypertension they thought . I avoided dialysis for two years and started dialysis in 1999. I had a AVF placed In my left forearm and started 3x week treatments. The fistula failed soon  after and the surgeon couldn't fix it so he placed a graft in my upper arm in hindsight I never should have allowed him to do this but I didn't know any better at that time. At this time my Neph told me about nocturnal dialysis and I was hooked. In 2001 I returned to NY for my 30th HS reunion and decided to relocate back. I started in center treatments and actively started looking into nocturnal treatments at home. The first clinic I found never worked out but I soon hit pay dirt with the Rogosin Institute in NYC this was the best thing that happened to me CKD wise NYC was light years ahead of Tampa. I started  Home hemo in 2003 using a Fresenius 2008 h. The graft gave me a lot of trouble but at least they had Doctors who could take care of this very easily I might add Dialysis access was their speciality not an extra source of income . The graft finally failed in 2005 and was removed and my original AVF was revised by a very talented young surgeon who really took dialysis access seriously and it has been working very well ever since . I moved upstate in 2007 but kept my docs and clinic in NYC. I started having problems with my well producing enough water for the RO and I switched to the Nxstage System One . I dialyze 5 x a week for 5 hrs each . My diagnosis was recently  changed to polycystic kidney disease. That's it for now .
 
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Angiepkd
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« Reply #1 on: February 09, 2014, 07:35:24 PM »
 :welcomesign; Patrick!  I have Polycystic kidney disease, too.  I also do home hemo with NxStage.  You will find this site so helpful.  Lots of knowledgeable people with good advice.  Hope things go well for you and looking forward to learning more about you!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Darthvadar
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« Reply #2 on: February 10, 2014, 12:56:33 AM »
Hi Patrick...

Welcome to IHD....

Visit often, and get posting.... We'd love to get to know you better....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: February 10, 2014, 09:16:55 AM »
Welcome to the site Patrick

      :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MooseMom
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« Reply #4 on: February 10, 2014, 12:28:57 PM »
Welcome to IHD!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
ToddB0130
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« Reply #5 on: February 10, 2014, 03:09:26 PM »
Welcome aboard, Patrick
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No day but today
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