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kai0206
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« on: February 09, 2014, 08:18:38 AM »
Hey everyone. My name is Kathy and I am a 30 year old from New York.  I was diagnosed with Secondary FSGS with nephrotic syndome about 4 years ago, but my doctors believe I might have had it longer than that.  Last week I went into ESRD and will be starting dialysis in 3 weeks.  It was somewhat unexpected. I went from Stage 3 to Stage 5 in about 6 months. The doctors were stumped.  My GFR is currently at 5. We knew I would eventually get to this point, but we thought I still had a year before it would happen.  I am being treated at the Columbia Dialysis center in New York and am applying to the Columbia Transplant Center.  I've decided to do PD Dialysis at home and will getting my catheter on Thursday and hopefully starting dialysis on March 1st.
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Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops... at all. ~Emily Dickinson

July 2010 - diagnosed with FSGS
February 13, 2014 - PD catheter Surgery
Darthvadar
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« Reply #1 on: February 09, 2014, 09:38:14 AM »
Hi Kathy....

Welcome to IHD....

Don't be a stranger... Post often....

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Ninanna
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« Reply #2 on: February 09, 2014, 10:26:28 AM »
I had a very positive experience with NY Columbia when I did my initial work up there. Ultimately I ended up moving several states away, so I never had it done there. Good luck and welcome!
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Jean
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« Reply #3 on: February 09, 2014, 12:02:13 PM »
Welcome Kathy. Amazing how fast you shot from one stage to the last, isn't it? Hope it all goes well for you and   :welcomesign; to IHD
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One day at a time, thats all I can do.
Poppylicious
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« Reply #4 on: February 09, 2014, 12:20:08 PM »
Hello Kathy, and  :welcomesign;!

Wishing you all the best for your impending adventure with dialysis.  We have lots of experience here so feel free to ask questions!

 ;D

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
kai0206
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« Reply #5 on: February 09, 2014, 01:11:46 PM »
Thanks all!! Jean, yeah it is pretty scary. My doctors have been asking me if I took any supplements (like vitamins or herbs) but I haven't. 
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Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops... at all. ~Emily Dickinson

July 2010 - diagnosed with FSGS
February 13, 2014 - PD catheter Surgery
MooseMom
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« Reply #6 on: February 09, 2014, 02:13:33 PM »
Hiya!  Welcome to our community.

I have not heard of fsgs causing that swift of a decline, but that doesn't mean it has never happened.  Lots of people here on IHD do PD, so there is a wealth of information and support available to you.  Keep us posted on how things are going for you, OK?  Please do not hesitate to ask any questions or to request a shoulder to cry on.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
ToddB0130
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« Reply #7 on: February 10, 2014, 03:14:12 PM »
Welcome to the board ..................lots to learn
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No day but today
SooMK
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« Reply #8 on: February 10, 2014, 04:41:12 PM »
Welcome Kathy. I'm at Colombia too. Hope it all goes smoothly for you.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Bambino_Bear
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« Reply #9 on: February 10, 2014, 11:25:16 PM »
 :welcomesign;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
kristina
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« Reply #10 on: March 22, 2014, 03:34:37 PM »
Hello and welcome to IHD...

... good luck with the catheter next Thursday and best wishes form Kristina
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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