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Author Topic: I,m Happy  (Read 3691 times)
Seaweed
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Great day to be alive and thankful

« on: November 12, 2013, 10:15:42 PM »

 :bandance;

When you read these post , you don't see a lot of success stories , and for me ,I'm a what IF guy , and I will what IF it to death.
I been on pd night machine for about two weeks now.

It's took me a long time just to get to this point, before I finally went on pd , i was taking all kinds of meds to prolong my kidney.

I don't miss steroid injections , and keno which agitated me.
I don't miss , cell crept , cozar , which may me cough all day long
I don't miss BP meds which made me feel weak
I don't miss taking water pills , which made me thirsty
I don't miss being fatigue all the time
I don't miss being depress because I couldn't get up and go
I don't miss having gout in my ankle
I don't miss getting up 5 times a night to the bathroom

Over the years it's been a slow ongoing death


I've been off work for 1 1/2 months and in two week I'm going to back full time
Ready to kick tail and take names

The worst is behind me , yep I'm Happy


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Jean
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« Reply #1 on: November 13, 2013, 12:59:56 AM »

I am happy that you are happy!!
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One day at a time, thats all I can do.
Shaks24
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« Reply #2 on: November 13, 2013, 04:05:35 AM »

I am happy that Jean is happy that you are are happy.  Happy is good.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Cowdog
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« Reply #3 on: November 13, 2013, 08:32:19 AM »

Hi Seaweed. You are right. Those of us doing well don't offer enough encourgement/success stories to the new guys. My life is sooo much better than it was the 2 years prior to starting dialysis. The dread of dialysis iwas much worse than the process.
I just observed, decided celebrated was a little to strong a description, my 5th year of in-center hemo. I still work full time in my 8 -5 job of 28 years, I use FMLA hours to go to dialysis on Tues and Thurs afternoons. Saturday's treatment is on my time.
I still have my farm, 100 acre cattle and tree farm. 30 momma cows depending on me for food and care. Got interested in Hanging Tree cowdogs about 2 years ago and have 4 now. That's Jill and Sting in my avitar. I stay busy and there is always something I need to do. No time for thoughts of why me.
I'm lucky in that I'm only dealing with kidney failure, weird saying lucky with kidney failure but it's true, no additional health issues. Only meds I take now are low dose aspirin and binders. Like you I'm glad all the other meds are gone. I have a good nephrologist who told me the day we met in the ER to play the game and live or don't play and die. He said the goal was my having a quality of life that is as good as possible. When I play by the rules and follow the diet all is good. If I take in too much salt or fluid dialysis sometimes bites me in the butt.
I have a good and necessay support team, interventional nephrologist to keep my fistula tuned up(angioplasty last Friday), good nurses and techs at the center.
I to am happy, thank you for your post reminding me!!!!!!
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Hemo in Center since 11/2008
Self Cannulate since 2011
In Center Self Care since 2012
Deanne
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« Reply #4 on: November 13, 2013, 10:38:16 AM »

I'm happy you're all happy. Can I join the "I'm happy" club? I've been on PD for about 2.5 months. I work full-time and only stopped for a couple days here & there for catheter surgery, transplant testing, and PD training. So far, it's only a minor inconvience and I only need to even think about it in the evenings when it's time to set up and connect. I don't feel sick, and I tend to feel shocked when the dialysis center says something about emergency preparedness steps because that's the only time it occurs to me that this is necessary for life. It's more like brushing your teeth - something you just do because it's routine. It doesn't feel necessary for life because I feel so normal. When other people learn I'm on dialysis and seem shocked/horrified, I have to remind myself again that it's supposed to be a big deal.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
cdwbrooklyn
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Positive Thoughts equal Positive Energy

« Reply #5 on: November 13, 2013, 11:08:08 AM »

 :welcomesign; Seaweed

I would like to join the happy club as well, thanks seaweed for bringing this up.  I’ve been on NxStage for 3 years now. Wow, it went so fast.  I like the fact that I can do my treatments at home when it’s convenince for me.  I have the whole day to myself as I do my treatment anytime after 10pm.  I’m glad I don’t have to take any BP meds as it was not working after a couples of months.  I’m glad that I can drink as much fluid as I want and take it off the same day.  I can do my treatment any day of the week and take off any day as well.  My seat is always available for me and I love my chair as it’s a comfortable electric lazyboy chair.  I’m glad that I don’t have to be in the clinic three time a week.  I only go once a month.  My life is now a life of my choice and I can plan trips, go to gatherings, visit family, and much more.  All I have to do is carry my machine and supplies.  No looking for a clinic to go to.  I am happy that I am still functioning and looking good.  My health is much better and I am much happier.  I’m glad that I am in control of what my body needs and what I want my body to have.  I can go on and on but will stop here.

 :yahoo; :2thumbsup; :clap;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
nursey66
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« Reply #6 on: November 13, 2013, 12:31:32 PM »

It is refreshing to read all this !!! If you read my post about aspergilliosis, you will understand why. Also, I must add, my hubby is looking and doing way better than when he was trying to live with a poorly functioning transplant, creatinine of 5, grf at 11, and hgbm of 8-9.  He spent so much time sleeping, now he goes to in clinic dialysis x3 a week and is very active inbetween. He was on a bushel basket full of meds, now just the Binders. It is still a big disapointment to have the possibility of transplant snatched away because of the aspergilliosis, especially with 2 willing donors. It's all so sad.
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Rerun
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Going through life tied to a chair!

« Reply #7 on: November 13, 2013, 12:56:04 PM »

Thanks people!  The new ones to dialysis need to hear this.

                    :cheer: 
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Jean
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« Reply #8 on: November 13, 2013, 05:43:09 PM »

Three cheers for Seaweed!!!!    :clap;    :clap;    :clap;
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One day at a time, thats all I can do.
geoffcamp
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« Reply #9 on: November 13, 2013, 07:40:57 PM »

 :2thumbsup;
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Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
gotmoose
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« Reply #10 on: November 14, 2013, 10:08:22 AM »

Thanks for posting something positive here on Dialysis. I'm facing that in the near future and its good to see something that's not so negative on a web site that's for venting and ranting. After reading some of the posts,  I feel like when I go on Dialysis soon my life isn't over cause theres people out there that do decent and live somewhat of a normal life out there with dialysis, and I'll be one of them I hope.
Gotmoose
GFR 20
PKD
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nursey66
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« Reply #11 on: November 14, 2013, 11:04:10 AM »

Just want to thank you again for your post !! I did relay some of your positives to my Hubby,[ he was to get a living related donor transplant in Jan,2014, now is in jeopardy due to a serious lung infection,aspergillosis he got last summer] It's looking like Dialysis will be the only treatment he can have. He is so busy now, no longer spending all day in bed, he is a part time bus driver, did all our lawn care this fall, took his pickup completely apart ,fixed, painted, put it together, goes bike riding, and never sleeps during the day now since on dialysis . He seems better than ever physically. Thanks again for your positive remarks .I second them !!!
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cdwbrooklyn
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Positive Thoughts equal Positive Energy

« Reply #12 on: November 14, 2013, 11:50:27 AM »

Thanks Nursey66, it goes to show us that transplant is not for everyone.  I am one that will received dialysis for the rest of my life as of now unless God says otherwise.  Hopefully, something better will come out in the near further.  Your hubby will be fine.  I’m so gald he did not give up as it really hurts me when people give up.  Although, I want to give up sometime but always remind myself of the people who love me and will truly be hurt if I did.  It’s hard sometimes but it not impossible.  You can live a normal life on dialysis no matter if you are doing it at home or in-center. 

 BigUp for your hubby.  :2thumbsup;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
kristina
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« Reply #13 on: November 15, 2013, 12:53:30 AM »

:bandance;

When you read these post , you don't see a lot of success stories , and for me ,I'm a what IF guy , and I will what IF it to death.
I been on pd night machine for about two weeks now.

It's took me a long time just to get to this point, before I finally went on pd , i was taking all kinds of meds to prolong my kidney.

I don't miss steroid injections , and keno which agitated me.
I don't miss , cell crept , cozar , which may me cough all day long
I don't miss BP meds which made me feel weak
I don't miss taking water pills , which made me thirsty
I don't miss being fatigue all the time
I don't miss being depress because I couldn't get up and go
I don't miss having gout in my ankle
I don't miss getting up 5 times a night to the bathroom

Over the years it's been a slow ongoing death


I've been off work for 1 1/2 months and in two week I'm going to back full time
Ready to kick tail and take names

The worst is behind me , yep I'm Happy

Hello Seaweed,

I have just read about your pre-dialysis symptoms
and I wonder what your Creatinine- and your Urea- (Bun?) levels were
when you presented all these symptoms ...  before you started with dialysis?

Thanks from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Poppylicious
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WWW
« Reply #14 on: November 15, 2013, 08:48:57 AM »

I would join the 'Happy Club' but I'm a miserable sod!

 ;D

But I'm happy that everyone is happy that you're happy.  And I am happy that you're happy.  Aww, shucks ... I'm not feeling so miserable now ...
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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