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Author Topic: Why Do We Embrace Victimhood???  (Read 3491 times)
NDXUFan
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« on: October 30, 2013, 03:32:40 PM »

One of the things that I get tired of hearing is this "Oh woe is me" attitude.  Someone like Soda has every right to whine......  Just remember, there are many more of us than there are of them, us and our friends, along with neighbors.  Start demanding what you want from these people, it is YOUR life, not their life.  Billions of dollars per year is being paid in your name for these clowns and old "Millions" Thiry to take care of and help you, not abuse you.  Tell your friends and neighbors how you are being treated.  Yes, old "Millions" gives out a lot of money, but, he does not have votes at the ballot box.  When one of these jerks or clowns abuses someone on dialysis, have the rest of the folks on dialysis stand against the abuse, what are they going to do, kick out the whole clinic, kick out people on private insurance, I think not.......  Yes, they may try to get even with you and others, but, there are ways of getting even with them.  :)  The folks that have private insurance or money have a duty to stand up to these idiots.  I do not think old "Millions" would like it if the private insurance people were pissed off about his crappy care or abusive staff.  My clinic does not have these issues, because they treat people as adults, not infants.  At Davita, I used to bring a big jug of cold water and peanuts to my treatments, that really pissed them off, do you think I cared?  We need to get as many people on home dialysis as possible, so that people like Soda can have Nocturnal treatments at his center.  Do not let these people punk you out.  What they are doing to us is UNACCEPTABLE!!!!! 
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galvo
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« Reply #1 on: October 30, 2013, 09:38:51 PM »

Who on earth is Soia? I must have missed something. I have never been abused by any jerks and clowns, thank the Lord! It must have something to do with living in Australia.
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Galvo
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« Reply #2 on: October 31, 2013, 08:49:21 AM »

The patients at my clinic do stand up to the staff.  I don't think they would get away with harm to us.  My bitch is the smell.  Sometimes it reeks of sewer.

          :puke;
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cdwbrooklyn
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« Reply #3 on: October 31, 2013, 12:12:39 PM »

NUDXUFAN, I do understand your concerns however, it is against the law for D staff to mistreat a patient unless they want that patient filing a lawsuit.  If a patient is being abuse, he or she should report it to the administrator of the D center.  If the administrator does not do anything about it, he or she should report it to the state and trust and believe the state will visit that center.   

When I was in-center, the D-staff did not abuse anyone.  They may have made mistakes that got them cursed out but they didn’t abuse anyone in my eyesite.  I, for one, will not tolerate that.  I will get them fire in a quick minute.  The staff know that.  I have attended about two centers of Davita in different areas and found the staff to be very polite and helpful.  So I’m not sure where you are getting this from.  I am still with Davita home care and really don’t have any problem expect my nurse and I will bump heads once in a while.

That said, all due respect but your post sounds a little distrubing unless this is something that is happening outside of the USA.   We in America have laws that the D staff must follow or the center can get in big trouble whereas the center can close down.   Where is the place you speak of and who is in charge?  I will personally write a letter to the state and have it checked out.

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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
NDXUFan
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« Reply #4 on: November 01, 2013, 06:32:22 AM »

NUDXUFAN, I do understand your concerns however, it is against the law for D staff to mistreat a patient unless they want that patient filing a lawsuit.  If a patient is being abuse, he or she should report it to the administrator of the D center.  If the administrator does not do anything about it, he or she should report it to the state and trust and believe the state will visit that center.   

When I was in-center, the D-staff did not abuse anyone.  They may have made mistakes that got them cursed out but they didn’t abuse anyone in my eyesite.  I, for one, will not tolerate that.  I will get them fire in a quick minute.  The staff know that.  I have attended about two centers of Davita in different areas and found the staff to be very polite and helpful.  So I’m not sure where you are getting this from.  I am still with Davita home care and really don’t have any problem expect my nurse and I will bump heads once in a while.

That said, all due respect but your post sounds a little distrubing unless this is something that is happening outside of the USA.   We in America have laws that the D staff must follow or the center can get in big trouble whereas the center can close down.   Where is the place you speak of and who is in charge?  I will personally write a letter to the state and have it checked out.


ND: 

I live in Ohio and I am glad that has been your experience. However, that is not the experience for everyone.  Go to Dialysis Associates and you will hear a vastly different story. 
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Sugarlump
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« Reply #5 on: November 01, 2013, 06:57:36 AM »

I think (and this is a view from the UK where we have less patient choice) that a lot of my fellow dialysis patients are afraid of making waves or making an official complaint, fearing it will make them unpopular, subject to worse treatment and made to feel uncomfortable.
I tend to have a rant straight away if I get upset about my treatment but i am younger than the average patient.

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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cdwbrooklyn
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« Reply #6 on: November 01, 2013, 09:34:29 AM »

NDXUFan, can you give me the link? I've tried to google it but several sites appeared with the name Dialysis Associates.  Can you send me the link with the compliants so I can read it?  Also, please let me know exactly where to find the complaints session on the website.

Thanks.
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
noahvale
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« Reply #7 on: November 01, 2013, 12:00:34 PM »

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« Last Edit: November 05, 2015, 02:45:58 AM by noahvale » Logged
Bill Peckham
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« Reply #8 on: November 01, 2013, 07:04:05 PM »

I don't begrudge anyone their story. I read the stories on Dialysis Advocate or through the internet generally, here on IHD, and I think, that could have been me. If anyone has walked the golden dialysis path it has been me but on the question of nature vs nurture, on the question would I have thrived no matter where I lived, I come down firmly on the nurture side of the divide.

If I had lived somewhere else, if I had run afoul of a capricious system, I would not be here today or if I were here I could have any one of these stories.
« Last Edit: November 01, 2013, 07:06:22 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
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okarol
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« Reply #9 on: November 01, 2013, 08:09:53 PM »

I am a squeaky wheel, but I am not the patient. I have gone to bat for Jenna many times when I felt she wasn't getting good care.
I understand that some centers are better and some are worse. Some patients are higher functioning, others highly challenged.
I don't think it's a matter of embracing victimhood. It can be acceptance or giving up or coping - whatever it takes.
Here is info on filing a complaint about dialysis or transplant care:
http://www.medicare.gov/claims-and-appeals/file-a-complaint/kidney-care/complaints-about-kidney-care.html


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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