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Author Topic: -I got the call  (Read 7911 times)
paris
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« Reply #25 on: July 14, 2013, 05:07:38 PM »
Great news!   Take care and enjoy your new life.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MaryJoe
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« Reply #26 on: July 15, 2013, 04:14:04 AM »
So happy you're starting to feel so much better!   :2thumbsup;  hoping for good news from the doctor today about your hgb and BP.   :pray;
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
AnnieB
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« Reply #27 on: July 15, 2013, 09:32:36 AM »
YAY! How wonderful that things are working out so well for you!  :cheer: Congratulations on your new kidney!   :bandance; :bandance;
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Big E
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« Reply #28 on: July 15, 2013, 10:48:38 AM »
 :yahoo;

Great news, Raidyn! Sounds like things are working out very well.
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
raidym
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« Reply #29 on: July 15, 2013, 02:09:32 PM »
Was back for bloods today they were so good I don't have to go back till wednesday week. So thats the longest in almost three years I'm not traveling for D or appoinments. I'll be saving myself 21 hours a week. Phew I'll have to take up a hobby lol...
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"Laugh or you might cry"
boswife
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us and fam easter 2013
« Reply #30 on: July 15, 2013, 02:41:13 PM »
brilliant news  :yahoo;  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Wildrose
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WWW
« Reply #31 on: July 15, 2013, 11:41:54 PM »
Wonderful news! I wish you the best!
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
lainiepop
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« Reply #32 on: July 16, 2013, 11:24:43 AM »
so glad to hearyou're doin well  :2thumbsup;
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
cassandra
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When all else fails run in circles, shout loudly
« Reply #33 on: July 17, 2013, 02:46:43 AM »
A bit late, but Congrats my girl

     :cheer:


Keep drinking, and drink some more


Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
raidym
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« Reply #34 on: August 02, 2013, 03:42:15 PM »
Hey everyone hope your all keeping well. I was back for bloods on Wednesday and everything's doing good. My creatinine level is 36 and my nephrologist was very impressed. I'm doing really good and feeling great but when it's time to go and get my bloods done I get worked up. I'm just terrified he's gonna say sorry Mairead but it's rejecting. There's no reason for feeling this way as everything is going good. I suppose it's just part of getting over it cause it's not just the body that has to heal my mind has to come to terms with what I've been through. Well that's what I'm telling myself and just taking my time. I want to write a thank you to the donor family too but have no idea what to write words can never describe how grateful you are. So I'm taking my time there too. They told me at the hospital before I was discharged sometimes it takes months for people to be able to write and I should take my time.. Thanks again for all your kind message they mean a lot...  :thx;  :thx;  :thx;
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"Laugh or you might cry"
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #35 on: August 02, 2013, 04:15:17 PM »
 :2thumbsup; :2thumbsup; :2thumbsup;
Good to hear from you! GREAT UPDATE!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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