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Author Topic: Roy died last night.  (Read 4509 times)
galvo
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« on: July 24, 2013, 10:35:30 PM »
Not that any of you knew him, but he was one of my dialysis buddies, and a bloody good bloke! I shall miss him. May he rest in peace. Our center runs at around 20 patients, and we've lost 5 in the 18 months it's been open. I hate this vile disease.
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Galvo
RichardMEL
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« Reply #1 on: July 24, 2013, 11:21:57 PM »
Emen, brother!

I'm sorry you lost your mate. It just really saps it out of you. :(
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: July 25, 2013, 12:49:44 AM »
That's a lot of loss - wow - so very sorry.   :(
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MaryD
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« Reply #3 on: July 25, 2013, 04:21:35 AM »
Chin up!    :grouphug;
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Darthvadar
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« Reply #4 on: July 25, 2013, 04:32:54 AM »
Thinking of you, Galvo....

Dreadful...

May your buddy rest in peace...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Poppylicious
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« Reply #5 on: July 25, 2013, 06:20:04 AM »
So sorry, galvo. 

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: July 25, 2013, 07:50:44 AM »
I'm so sorry, Galvo. Drat this disease.  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
SooMK
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« Reply #7 on: July 25, 2013, 07:57:01 AM »
So sorry. Whenever I hear this I think of when my mother died and one of her dialysis buddies came to the funeral home. It must be a very special bond.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Rerun
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« Reply #8 on: July 25, 2013, 08:52:57 AM »
RIP Roy.  I'm so sorry for your loss.

       :pray;
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galvo
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« Reply #9 on: July 25, 2013, 03:46:58 PM »
Thanks for your thoughts, gang. The death of a fellow sufferer always comes as a jolt. We know, of course, that death is inevitable, but we don't, and shouldn't dwell on it. I loved the following bit of dialogue from "The Departed" - Jack Nicholson to man in bar "how's your mother?" man - "She's not well; she's on the way out." Jack " we all are, Live Accordingly!."

I am seeing the nephrologist this morning, and then an old comrade and I are lunching at the Duntroon (our West Point) Sergeants' Mess. And a large 'Up Yours' to the renal diet!

Carpe Diem!
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Galvo
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« Reply #10 on: July 25, 2013, 06:46:48 PM »
Sorry about your friend. Yes, this is a savage disease.

Three fellow patients and I formed what we affectionately called "The Dialysis Dinner Club". We used to go out to supper after our Wednesday in-center treatments.
One by one, over the years they all passed away. The death of my last remaining dialysis friend was what prompted me to switch to home hemo. I just wanted suddenly to be out of that unit. They had asked me the previous year if I would like to try home hemo but I declined saying that I actually liked the social aspect of in-center; to hang with folks who had similar problems. I mean, really, no one can truly understand unless they were on dialysis too.

I have been on home hemo for 1.5 years now and love it. I feel much better than I ever have and that's saying something because I felt great when I was doing it 3 times a week in-center.
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Your life IS worth living. Fight for it!
Jean
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« Reply #11 on: July 26, 2013, 01:08:39 AM »
Glad you are out for a little fun Galvo. We all need that occasional break. Sorry about your friend. But glad you could share it with us.
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One day at a time, thats all I can do.
aharris2
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« Reply #12 on: July 26, 2013, 06:01:11 AM »
Me too Galvo, me too!!!
I am sorry you have lost your friend.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
jbeany
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« Reply #13 on: July 26, 2013, 07:22:55 AM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
cariad
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« Reply #14 on: July 26, 2013, 01:19:06 PM »
Aw, sweet galvo, I am so very sorry....  :(

Glad to hear you went to live it up a bit. I can't think of a better way to honour a dialysis friend who's passed.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
galvo
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« Reply #15 on: July 28, 2013, 11:24:51 PM »
"Sweet"! Cariad, don't you dare ruin my reputation!
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Galvo
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« Reply #16 on: July 29, 2013, 10:59:53 AM »
You don't fool us, sweet galvo!

I am very sorry to hear about your buddy. 

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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #17 on: July 29, 2013, 11:15:36 PM »
Again, thanks to you all!

And I am so sour that I scare lemons!
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Galvo
cariad
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What's past is prologue
« Reply #18 on: July 30, 2013, 01:29:59 PM »
Quote from: galvo on July 29, 2013, 11:15:36 PM
And I am so sour that I scare lemons!
:rofl;
Aw, if only those lemons knew how adorable you are when you're trying to be sour....  :-*

Don't worry, you're secret is safe with us, galvo.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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