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Author Topic: Fistula Questions  (Read 1716 times)
AnnieB
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« on: July 27, 2013, 07:33:59 PM »

Hi, I'm just wondering if there's any ballpark timeframe that a "normal" (if there is such a thing) fistula will last. The reason that I'm wondering is that my fistula is in my upper non-dominant arm, and I'm wondering if that means that if for any reason it fails, I wouldn't be able to use any other place on that arm for access. Would I have to go to my dominant arm or else have a catheter or do PD? I didn't think to ask this before. Is it standard for the surgeon to place the access in the forearm first and then go to the upper arm if the forearm doesn't work out? Not that I'm paranoid, just that I keep hearing stories about fistula problems.

On a good note, it turns out that the doctor who did the surgery is one of the top doctors in this area who specializes in vascular surgery (I didn't realize that when I was referred to him, just found it out today). So maybe he couldn't place a fistula lower down and that's why he did it on my upper arm. I'm due to see him again in a couple of weeks and he should let me know how it looks. The bruit and thrill still seem to me to be working. I see my neph next Tuesday - so he can let me know if I'm checking it correctly.
 ??? ??? ???

Wish I wasn't so ignorant about all this.
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amanda100wilson
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« Reply #1 on: July 27, 2013, 07:47:41 PM »

They go for forearm first, but particularly in women, these veins are often of too small a diameter.  I was told after I had my fistula that some docs. in such circumstances will do a forarm graft first since this helps th veins higher up develop somewhat  to make an upper arm fistula as necessarywhen the graft is no longer useable.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Angiepkd
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« Reply #2 on: July 28, 2013, 08:30:53 AM »

My surgeon tried to make the forearm fistula, but it did not mature.  Next step was upper arm.  It matured too well and I had to have the flow reduced.  It has worked fine since the revision.  From what I am told, if my upper arm fistula fizzles out, the next place would be my dominant arm.  From there they go to femoral arteries in the legs, and last option is a chest catheter.  I hope and pray it doesn't come to all that.  I try to take very good care of my working access.  I understand how important it is.  Try not to worry about what ifs and follow your surgeon's instructions in caring for your fistula.  It truly is your lifeline!  You will do great!  Ask questions at your next appointment and I am sure they will put your mind at ease.  Best of luck to you!   :cuddle;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
RichardMEL
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« Reply #3 on: July 29, 2013, 09:14:29 PM »

My fistula (wrist) is going strong just over 9 years in. The latest KidneyTalk episode has a patient who claims to be using the same Fistula for 36 years..... so they can last a heck of a long time!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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