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Author Topic: Can I take Ibuprofen now that my kidneys have been removed?  (Read 6558 times)
Angiepkd
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« on: July 28, 2013, 09:12:31 AM »

Hi all!  Haven't been on in a while.  Spent the past few days in the hospital with an infection and have been super busy prior to that trying to get all of my testing done for transplant.  My question is about pain relief.  Since the nephrectomy, I have had lots of phantom kidney pain.  I know it sounds crazy, but I feel like my huge kidneys are still there and hurting.  I also still feel like I need to use the bathroom, even though I know I don't.  It is a very weird feeling and is keeping me up at night, tossing and turning.  I had a CT scan of my abdomen with contrast while in the hospital, where they found nothing amiss but some leftover fluid from the surgery.  They do not think it is the source of my infection, and are treating me with a general antibiotic.  They have no explanation for the odd flank pain I am still having.  When they sent me to CT, I told them I couldn't have the contrast dye.  They checked with my neph and he said I could, since I had no kidneys (duh).  This made me wonder if I could possibly take ibuprofen again?  I haven't had it in years, but thought it might help with the "imaginary" kidney pain.  Anyone out there without kidneys take ibuprofen?  I should've asked before they discharged me, but didn't think of it till I got home.  Thanks!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: July 28, 2013, 10:46:42 AM »

I take Ibuprofen when I'm in pain, and doing so for 30 years after my bilateral Nephrectomy , I'd say its fine

    :yahoo;

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Angiepkd
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« Reply #2 on: July 28, 2013, 12:09:40 PM »

Thanks, Cas!  I was thinking it would be ok, since I don't have any kidneys to damage.  I have taken all the prescription pain meds they gave me after surgery, but hate to ask for more, since they make me feel like I should be ashamed for asking.  Hoping to find an OTC pain killer that will help.  Just another fun thing to deal with.  Thanks for answering my question!
Logged

PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
BattleScars
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« Reply #3 on: July 30, 2013, 10:47:32 AM »

I've wondered the same thing as ibuprofen is the only thing that really helps severe dental pain for me. I have some work I have to get done and every once in a while my tooth really starts hurting and I break down and take a couple. I only have 5% kidney function and don't want to lose more. I'm not a doctor but I think as long as you don't take more than the recommended dose you should be OK. Most people that damage their kidneys on these kind of pain relievers take high doses for a long period of time. I'm curious though if you have no kidney function how does the medicine work if it's mostly processed in the kidneys? Be careful that it doesn't build up in your system. I notice I don't tolerate certain medications as well, like the dose stays in my system longer now.   
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cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: August 03, 2013, 03:53:15 PM »

It's also the liver, I think with meds. But yeah, stay within the dose of course.

Good luck to all, and lots of love, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Hemodoc
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WWW
« Reply #5 on: August 03, 2013, 08:24:21 PM »

Renal damage is of course only one of the side effects of the class of medicines known as nonsteroidal anti-inflammatory drugs (NSAIDs).  Ibuprofen also is a huge cause of ulcers. When you understand that dialysis patients have a very high risk of gastrointestinal bleeding, one would want to be cautious as a dialysis patient taking any of this class of medications.

In addition, patients with CKD and ESRD have bleeding problems from platelet dysfunction. NSAIDs likewise inhibit platelet function which is very important for stopping bleeding.

Lastly, in addition to other side effects not mentioned yet, Ibuprofen increases the risk of heart attack and stroke. Likewise, once again, heart attack and stroke is significantly higher in the ESRD dialysis population.

Putting it all together, I would not recommend Ibuprofen use myself or to my patients with severe renal disease.

However, you may wish to discuss the risk, benefits and options for treating ghost pains. There are actually quite a few better choices for this issue that your transplant surgeon should be familiar in their use.

Best wishes and I hope you find a solution to this issue.

God bless,
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Peter Laird, MD
www.hemodoc.info
Diagnosed with IgA nephropathy 1998
Incenter Dialysis starting 2-1-2007
Self Care in Center from 4-15-2008 to 6-2-2009
Started  Home Care with NxStage 6-2-2009 (Qb 370, FF 45%, 40L)

All clinical and treatment related issues discussed on this forum are for informational purposes only.  You must always secure your own medical teams approval for all treatment options before applying any discussions on this site to your own circumstances.
jeannea
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« Reply #6 on: August 04, 2013, 09:38:12 AM »

I learned self-hypnosis a few years ago to help with major pain. It is completely safe and interacts with nothing. I do use some Tylenol for headaches and Neorontin for neurological pain. Definitely talk to your doctor about options. I gave up NSAIDs in 1998 and while sometimes I wish for an ibuprofen mostly it doesn't matter.
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Angiepkd
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« Reply #7 on: August 04, 2013, 06:25:01 PM »

Thank you for your replies!  I am going to hold off on the ibuprofen until I talk to my neph later this month.  I most certainly don't want to have any additional medical issues. 
Logged

PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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