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Author Topic: Working?  (Read 10429 times)
mykey711
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mykey
« on: May 18, 2011, 04:11:38 PM »
How many of us on dialysis are still working, full time or part time?
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I'm a 58 year old Family doctor with Alport's syndrome. I've been on PD for almost a year. I've been on transplant list since May 2010 at three centers, Michigan, Cleveland, and Indiana.  My brother has the same disease and is on his second transplant for about 12 years now.
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #1 on: May 18, 2011, 04:43:43 PM »
Not me - but my disability is because of severe hearing loss which happened years before the kidneys failed.....
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cattlekid
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« Reply #2 on: May 18, 2011, 04:46:43 PM »
Full time, baby!   :laugh:  I just started dialysis at the end of January.  I have been extremely blessed in that I have not had to miss any work yet due to dialysis.  I go third shift and take my work laptop with me so I can stay in touch with the office.  I find I get my best work done in-center as I have very few interruptions, unlike my office where it seems like the phone, walkups, and IM's don't stop.   ::)
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KarenInWA
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« Reply #3 on: May 18, 2011, 07:58:53 PM »
I work full time as well.  I will not let ESRD win and turn me into an invalid.  I am lucky that I have so far managed to get by pretty well (started D on Apr 22) and have a sit-down computer job.  I am due for a raise in June, my health benefits are amazing, and there is no way in hell I'm gonna let ESRD take any of that away from me!!!!  Take that, ESRD!!!!  :boxing;

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
HouseOfDialysis
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« Reply #4 on: May 18, 2011, 08:20:42 PM »
I'm still full-time with my assembly job and I don't plan on slowing down anytime soon. Keep moving forward. Every day.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
Stoday
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« Reply #5 on: May 18, 2011, 10:48:04 PM »
I retired in February this year; work and dialysis were getting just a bit too much for me.

I am 70 so I think it's OK to start to take it easy.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
sutphendriver
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« Reply #6 on: May 19, 2011, 09:10:33 AM »
started PD in the summer of 2008.  Have been a full time firefighter for the last 15 years.  I have to push myself pretty hard at times.  Love my job.....
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Alisa
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« Reply #7 on: May 19, 2011, 09:42:23 AM »
Started PD in 2005, was working full time as a teacher, that only lasted a short while, as I switched to .25, which as a teacher really works out to .50 with all of the extracurriculars I was doing.  Did that for about 2.5 years till I became to much.  Haven't worked now for about 2 years. Miss it but life changes and you have to change with it.
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PD since 2005
Waiting for transplant
cath-hater
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« Reply #8 on: May 19, 2011, 09:44:59 AM »
I too work full time.  Been doing pd and working full time for 9 years now. After the first 6 months or so, pd becomes a daily routine like brushing your teeth.  Will probably be doind pd til I retire. Hope I can still lug these bags around when I'm 60. :pray;
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Currently on PD using Fresenius.
PD for 9 years.
1 failed transplant in 2010 due to FSGS - donor kidney still inside and still producing urine (weird), but spilling alot of protein.
Off all immunosuppressants.
Currently not active on any list (by choice).
cytoxin
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« Reply #9 on: May 19, 2011, 09:57:29 AM »
Work full time IT consulting and part time Fitness training for fun.  PD doesn't really have any impact on my life.
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ACE Certified Personal Trainer
YMCA Group Fitness Instructor
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #10 on: May 19, 2011, 09:03:12 PM »
Working part time...let go of my full time job in January as a teacher. The crazy kids and not coping with D was too much. Today I have pulled myself together and look forward to going back to work. I even applied for an online teaching job!!! OH man wouldn't that be PERFECT with dialysis?!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Poppylicious
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« Reply #11 on: May 20, 2011, 10:43:20 AM »
Blokey works full-time.

Quote from: rsudock on May 19, 2011, 09:03:12 PM
I even applied for an online teaching job!!!
I've thought about doing that, but think I'd find it too odd.  Not to mention I'm probably leaving education ...

Could you do private tuition?  (Is that an option in your neck of the woods?) Or do you need the job for health insurance purposes?  (I'm very naive about the way things work in other countries!)
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
mykey711
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mykey
« Reply #12 on: May 20, 2011, 09:02:43 PM »
Once I whip drain pain, so I can sleep at night, I'll probably return to work.
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I'm a 58 year old Family doctor with Alport's syndrome. I've been on PD for almost a year. I've been on transplant list since May 2010 at three centers, Michigan, Cleveland, and Indiana.  My brother has the same disease and is on his second transplant for about 12 years now.
GraphicBass
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« Reply #13 on: May 21, 2011, 02:09:31 PM »
Self-employed (Own business for 11 years) and work during treatments. The technicians joke with me all the time about how I whip the laptop just as soon as I'm hooked up, and then don't notice when the time is done and they have to prod me to put the computer away.

I get a lot done in those 12 hours a week!

gary
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #14 on: May 21, 2011, 04:09:09 PM »
Quote from: Poppylicious on May 20, 2011, 10:43:20 AM
Blokey works full-time.

Quote from: rsudock on May 19, 2011, 09:03:12 PM
I even applied for an online teaching job!!!
I've thought about doing that, but think I'd find it too odd.  Not to mention I'm probably leaving education ...

Could you do private tuition?  (Is that an option in your neck of the woods?) Or do you need the job for health insurance purposes?  (I'm very naive about the way things work in other countries!)

hey poppy I need the full time job for health insurance even though right now I am on medicare/medicaid, but I miss having money and feeling like I have a sense of purpose. I am not sure what you mean about private tuition. Right now I am tutoring part time for an independent education company, but no benefits.  I keep thinking maybe I will go back to school to be a social worker or another Masters degree in curriculum and instruction...but I'm haven't decided yet.

What part of the world are you in again?

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
noahvale
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« Reply #15 on: May 25, 2011, 05:21:28 PM »
^^
« Last Edit: September 16, 2015, 08:41:53 AM by noahvale » Logged
noahvale
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« Reply #16 on: May 25, 2011, 05:22:35 PM »
^^
« Last Edit: September 16, 2015, 08:42:11 AM by noahvale » Logged
Poppylicious
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« Reply #17 on: May 26, 2011, 02:23:56 PM »
Quote from: rsudock on May 21, 2011, 04:09:09 PM
hey poppy I need the full time job for health insurance even though right now I am on medicare/medicaid, but I miss having money and feeling like I have a sense of purpose. I am not sure what you mean about private tuition. Right now I am tutoring part time for an independent education company, but no benefits.  I keep thinking maybe I will go back to school to be a social worker or another Masters degree in curriculum and instruction...but I'm haven't decided yet.

What part of the world are you in again?

xo,
R
I'm in England.

By private tuition I just meant tutoring one-to-one out of school hours (for those who have fallen behind or whose parents think they need extra help.)  People who do it over here can charge lots of money, but they tend to work for themselves.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
kitkatz
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« Reply #18 on: May 26, 2011, 08:04:34 PM »
We have a working while on dialysis thread on the site. It is full of information. http://ihatedialysis.com/forum/index.php?board=54.0
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
karamiel
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« Reply #19 on: July 24, 2013, 04:25:31 PM »
 :boxing; After not working for five years I started working again part time a month ago, it's a lot of work but at least I get home early
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