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Author Topic: Officially started this week  (Read 1519 times)
hillary
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« on: July 12, 2013, 07:01:56 AM »

 :puke;
Well, as hard as I was trying to put it off, and after 4 failed fistulas/grafts, I ran out of time . Wound up in the hosp. on July 4 with a kidney infection and a creat. of almost 8.  I got a chest cath and I have had 2 treatments so far. YES I HATE IT. A LOT.  I suppose I will get used to it and I suppose it gets easier.   I am unfortunately on 2 waiit lists for centers near home so I still have to go back to the hosp. for treatments until something else comes through.   I am still hoping for a transplant by the end of the year but I have so many other medical issues, that plan is not going very well.
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boswife
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us and fam easter 2013

« Reply #1 on: July 12, 2013, 12:35:36 PM »

oh hillary,,, it certainly sucks this route your on.  But YES, it seems that all here say that it does get easier, and better, more tolerable? I wish you better, and hope and pray for a speedy transplant, but in the meantime, try to rest your mind and accept this as your holding spot, and do your best with it... I know not easy, not at all, but i wish you the best...  :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Angiepkd
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« Reply #2 on: July 12, 2013, 09:27:46 PM »

What a way to start D!  Some on this site actually prefer the neck cath as opposed to sticking that sore arm.  I  recently had a catheter while in the hospital, and it wasn't too bad.  I just worried about somehow getting an infection, which is pretty common with the neck line.  Don't let it get you down.  Things do get better as you get into a routine!  Best of luck to you and hope you get a new kidney soon!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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