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Author Topic: Going downhill fast  (Read 16457 times)
Rerun
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Going through life tied to a chair!

« Reply #50 on: June 03, 2013, 07:42:46 PM »

Over the weekend I put on 2000.  I swear I don't know where it came from.  I did stand in the rain for a few minutes.  Makes a person wonder.  Anyway, I got on the machine and I was 104/70 so I waited an hour and it was just going down so I took a Midodrine and it just never worked.  They got 1300 off is all.  So now I'm really "careful" again.  Makes me so mad.  So I will look into raising my calcium.  Give it a try. 

I just had a bad day thinking about all this.  Then I just have to hand it over to God.  I'm worrying about things that I can't control.
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Desert Dancer
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« Reply #51 on: June 04, 2013, 01:58:56 PM »

So sorry to hear this, Rerun. Low BP is a scary, scary thing and just as dangerous as high BP (and not nearly as well-researched). Mine averaged about 60/40 so I was pretty much couch-locked and that's no kind of life at all.

I hope you can find a solution.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #52 on: June 04, 2013, 05:22:01 PM »

I have heard sometimes adding a bit of salt might help. Does anyone ever recommend this?
Jenna was still on BP meds and they forgot to take her off them as her blood pressure went down. Crazy.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Desert Dancer
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« Reply #53 on: June 04, 2013, 05:34:59 PM »

I had my nurse tell me to eat ramen noodles a few times a week, but that was because my sodium was low, not for the BP. I barely ever use salt at all anymore.

One of the things - actually the very first thing - I tried was raising my dry weight... oh gosh, it's normally around 58kg but I think I let it get all the way up to 68kg. It didn't do anything but make it hard to breathe and my legs felt like overstuffed sausages about to burst. Had no effect on my BP whatsoever.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #54 on: June 04, 2013, 08:53:21 PM »

One day my friend Lori had low BP and her doctor said - eat some saltines! She was being so cautious about salt that she wasn't getting enough. Your body needs only 500 mg of sodium per day to function under normal circumstances. This amount is all you need to maintain the electrolyte balance that your body's cells require for normal functioning.

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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