Today is a good day!

chiromac

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Dr. Larry (Chiropractor)

Today is a good day!

« on: May 09, 2013, 04:38:45 AM »

I got back on the Transplant list and I'm taking my daughter on our first trip in almost 3 years, what a great day! Disney here we come!


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Dr. Larry (Chiropractor)

My life has been drastically changed and I want to get back to the living my life.

I ♥ have ♥ the ♥ most ♥ beautiful ♥ DAUGHTER ♥ in the ♥ world☆•*¨*•.¸¸❤❤¸.•*¨

Back Surgery
Diabetes
Had reaction to Byetta and my Kidneys shut down
Diabetic retinopathy (Countless shots to both eyes & Laser Treatments)
Cataract Surgery on both eyes
Diagnosed with ESRD
Multiple Heart Bipass Surgery
AV Fistula
Dialysis - In center 3 days a week 4:15 at a time
Neuropathy
On Transplant List and Hoping

kit78

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Re: Today is a good day!

« Reply #1 on: May 09, 2013, 09:02:08 AM »

Have a great time and be safe!


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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December - Back on Transplant list

cdwbrooklyn

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Posts: 388

Positive Thoughts equal Positive Energy

Re: Today is a good day!

« Reply #2 on: May 09, 2013, 01:48:04 PM »

Great! Enjoy!!!


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Dailysis patient for since 1999 and still kicking it strong. I was called for a transplant but could not get it due to damage veins from extremely high blood pressure. Have it under control now, on NxStage System but will receive dailysis for the rest of my life. Does life sucks because of this. ABOLUTELY NOT! Life is what you make it good, bad, sick, or healthy. Praise God I'm still functioning as a normal person just have to take extra steps.

Angiepkd

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Re: Today is a good day!

« Reply #3 on: May 09, 2013, 08:23:50 PM »

Congratulations!!! Enjoy your vacation!


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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol! So far we are doing great!

Joe

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Re: Today is a good day!

« Reply #4 on: May 11, 2013, 05:01:16 PM »

Have a great time! We're headed there in July.


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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...

AnnieB

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Re: Today is a good day!

« Reply #5 on: May 12, 2013, 05:03:13 PM »


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iKAZ3D

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Posts: 221

06/08/2013

Re: Today is a good day!

« Reply #6 on: May 12, 2013, 07:55:33 PM »


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August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass

jbeany

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Cattitude

Re: Today is a good day!

« Reply #7 on: May 12, 2013, 08:00:44 PM »

Yay! So glad you went active again, and even happier you decided not to wait for the transplant to travel! I hope the vacation is magical for you both.


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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.

iKAZ3D

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Posts: 221

06/08/2013

Re: Today is a good day!

« Reply #8 on: May 12, 2013, 08:04:23 PM »

I just hope I can be saying the same thing soon. I got inactivated for a bladder bacteria that's 'highly resistant to antibiotics'. Conveniently after I lost 25lbs. Why do I feel like they just want moniez?