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Dialysis: General Discussion
Los Angeles - PKD - paid focus group
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Topic: Los Angeles - PKD - paid focus group (Read 1857 times)
okarol
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Photo is Jenna - after Disneyland - 1988
Los Angeles - PKD - paid focus group
«
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June 04, 2013, 01:10:45 AM »
PKD focus group - paid: There is a marketing study/focus group project aimed at getting the patient perspective on some marketing and educational materials for PKD related to a potential treatment. The patient voice is incredibly critical to the entire process, from research to marketing.
This group is currently looking for pre-transplant patients. All participants will receive a small stipend for participating (about $100) and transportation costs can be reimbursed (and/or transportation arranged, if needed.) The sessions last about an hour.
Los Angeles: June 10 & 11
Location: Adler Weiner Research (West LA)
Ask for Eddie Cohen
310-440-1495
There are some appointments available between 9 a.m. – 5 p.m. PST. Even if they are full, please sign up to be on the waiting list in case someone cancels and you can quickly fill in.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
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