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Author Topic: Blood Clot in urine...pd paitent  (Read 2531 times)
KidneySinger
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« on: April 03, 2013, 03:00:11 PM »
So I started PD a few weeks ago, everything going great....much to my dismay - a huge blood clot when I peed.  This has never happened to me before...does this happen?  This is kind of a scary thing for a man to see...thanks.
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3rd generation of Alports Syndrome: 1st generation: 4 uncles died in 20's - next generation: 2 uncles transplanted at 40, 1 died from cancer as result of rejection medication, other still alive at 65 with 20+ year transplant from sister (a carrier of Alports) but mulitple cancer surgeries through the years...looks like he is 85 years old.
1961: Blood and Protien in urine since birth
Doctors telling me kidneys would fail - every year for 50 years now! No hearing loss, just ringing
(Really think ace inhibitors and beta blockers since high school helped my surprising longevity - if you are NOT on an ace inhibitor, please ask your doctor why)
2012: GFR: 18 at present - on transplant list but they are going to have to convice me after seeing my uncles.
Preparing for dialysis
Younger brother on dialysis now for 2 years
Fistula Surgery at Mayo Clinic: failed
Going in for 2nd attempt at a fistula with different doctor - different vein
9/7/12 2nd attempt at fistula - WORKING! Mayo ruined 2 veins and St Vincents got one working!
Need additional surgery when fistual matures to bring closer to the skin.
GFR 17 - so plenty of time
WOW...just when I thought I had plenty of time - my GFR dropped to 13 in a month - guess I better get that fistula moved forward.
Moved it forward and have a thriving...thrilling fistual...BUT
Just when I did all that, I decided to go the PD route...so glad I did.
Now do PD every night and all seems to be going very well...for about a year.
Now on hemo dialysis at Mayo Clinic Jacksonville
Every Mon Wed and Friday for 4 hours at 400 pump speed.
Its really not that bad.....
Joe
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« Reply #1 on: April 04, 2013, 05:42:50 AM »
That's not something I've seen, at least not yet. I'd get hold of my Neph and let them know what's going on. This sounds like something you should bring them in on.

Let us know how it all gets resolved.
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billybags
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« Reply #2 on: April 04, 2013, 11:15:27 AM »
I would get in touch with your nurse like Joe said. Any thing that you think is not the norm they need to know.
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Speedy1wrc
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« Reply #3 on: April 04, 2013, 11:58:25 AM »
My transplanted kidney is failing quickly due to stopping immunosuppression. I regularly have tissue passing. I had one or two clots pass, but not in some time.

Contact your Nephrologist. I'd go so far as to call ASAP even if after hours.
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KidneySinger
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« Reply #4 on: April 18, 2013, 07:39:49 PM »
I've had about every test known....CT Scan - and even the very uncomfortable video camera put in places is shouldn't - the searched my bladder...everything ok.  They can't figure out why I passed a blood clot.
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3rd generation of Alports Syndrome: 1st generation: 4 uncles died in 20's - next generation: 2 uncles transplanted at 40, 1 died from cancer as result of rejection medication, other still alive at 65 with 20+ year transplant from sister (a carrier of Alports) but mulitple cancer surgeries through the years...looks like he is 85 years old.
1961: Blood and Protien in urine since birth
Doctors telling me kidneys would fail - every year for 50 years now! No hearing loss, just ringing
(Really think ace inhibitors and beta blockers since high school helped my surprising longevity - if you are NOT on an ace inhibitor, please ask your doctor why)
2012: GFR: 18 at present - on transplant list but they are going to have to convice me after seeing my uncles.
Preparing for dialysis
Younger brother on dialysis now for 2 years
Fistula Surgery at Mayo Clinic: failed
Going in for 2nd attempt at a fistula with different doctor - different vein
9/7/12 2nd attempt at fistula - WORKING! Mayo ruined 2 veins and St Vincents got one working!
Need additional surgery when fistual matures to bring closer to the skin.
GFR 17 - so plenty of time
WOW...just when I thought I had plenty of time - my GFR dropped to 13 in a month - guess I better get that fistula moved forward.
Moved it forward and have a thriving...thrilling fistual...BUT
Just when I did all that, I decided to go the PD route...so glad I did.
Now do PD every night and all seems to be going very well...for about a year.
Now on hemo dialysis at Mayo Clinic Jacksonville
Every Mon Wed and Friday for 4 hours at 400 pump speed.
Its really not that bad.....
Riki
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« Reply #5 on: April 18, 2013, 11:09:37 PM »
My dad passed a blood clot a few years ago.. for him, it turned out to be an issue with his prostate, so it might not be kidney/dialysis related.  I'd talk to your doctor asap
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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