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Author Topic: Does Anyone Else Experience This?  (Read 2751 times)
Annig83
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« on: January 01, 2013, 01:43:25 PM »

So I've been on Hemodialysis now for 3 months. I am set at 4 hours and they usually take 2.5 Kg-3.0 Kg off including rinse-back.  I've posted before, how my blood pressure is good usually between 120/80 or lower, but my pulse is always between 145-180! This only happens on dialysis days and right after they take me off the machine.  I had them put me on for 3 hours the last two times this week and noticed that I wasn't nearly as tired, sick, and my pulse was only at 100.  My clearance was not good yesterday having my kt/v at only 1.33.  They want it at minimum at 1.4.  So... I guess my question is... what can I do, or ask my doctor to do in this case?  I get my fistula January 16th but obviously I won't be able to use it for a few months (they told me kt/v gets better with a fistula rather than my perma-cath). 

I feel so much better doing 3 hours, I dread going back to 4 on Thursday! :banghead;
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
Riki
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« Reply #1 on: January 01, 2013, 01:50:25 PM »

my pulse is always high, and always has been... I'm not really sure.. I always blamed it on my  stature, as my height to width ratio is about 3 to 1.. *L*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
gothiclovemonkey
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« Reply #2 on: January 01, 2013, 08:06:22 PM »

I feel better doing 3 hours instead of 4 too... but in the long run, im not getting clean enough, and end up feeling really sick...
i have been told that d is really hard on your body, so maybe in some ways it is "too much" for us, but the alternative is not good either...
i had a doctor tell me that at my age group, and being on dialysis, our life expectancy is only 12 yrs on the machine... because it is so hard on the body.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
CebuShan
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« Reply #3 on: January 02, 2013, 06:58:28 AM »

I'm on home hemo and I've noticed that I feel so much better dialyzing almost everyday than I did when I was 3X/week in-center. I run about 2.25 each time. Have you thought about doing home hemo?
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
katieking1981
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« Reply #4 on: January 02, 2013, 05:43:09 PM »

I second home hemo. John felt really crummy after dialysis in-center. He described the feeling as like a "hang over". He has been much better at home. We started home hemo about 2 1/2 months after his fistula surgery. We wanted to start right away as I was pregnant and wanted him home with me after the baby was born. The doctors and staff at Davida were very supportive and really helped move things along.

I really wish that it made sence for centers to offer in center treatment on a home hemo schedule. It seems that there are so many physical benefits and mental benefits to the 2 1/2 hours, 5 days a week treatment schedule.
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Married to John (1 liver & 2 kidney transplants) currently on hemo dialysis. Full time working mom to Ayla 13, Carter 5 and Theo 2. Plus our 2 crazy pit bulls.
kennedy56
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« Reply #5 on: January 04, 2013, 09:37:27 PM »

My husband did not like in the dialysis center because of those same reasons. My husband told me to tell you that they could be because they are taking off too much fluid;that is why your pulse is too high.
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Annig83
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« Reply #6 on: January 05, 2013, 05:30:32 PM »

I plan on doing home-hemo after I get my fistula in on the 16th.  I'll obviously have to wait for a bit in order to get things started, but I definitely want to do it that way.  I hate being in-center.  The problem with leaving on any fluid is that I get vertigo from it!?  So strange, but if they get me overly dry, I feel great, minus the pulse problem.  I don't know... it's just a strange problem.  I've talked to my doctor and she wants me to go to a cardiologist.  I only get the high pulse at Hemo, not at home, and my BP jumps all over the place on days I have Hemo, but not on days I don't.  I don't get it! :banghead;
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
gothiclovemonkey
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« Reply #7 on: January 06, 2013, 06:06:34 AM »

i honestly believe that my body sort of... rejects? dialysis, in a way... it hates it.
of course i have to have it but sometimes i really do believe that.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
kit78
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« Reply #8 on: January 06, 2013, 09:33:32 AM »

My Cardiologist has me on meds for high heart rate which I have had for years before dialysis.  It does come down during treatment but then goes back up the next day.  My body does not like dialysis at all. I have to come home, eat and then sleep all afternoon and feel like sh*t the rest of the day till late at night. Next day I always, for the most part, feel normal again.  I still have memory problems but that happened right after my first transplant.  Even friends noticed the difference in me.  I just figured since I got a Male kidney was why my brains went to sh*t! lol
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
Cowdog
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« Reply #9 on: January 06, 2013, 11:44:23 AM »

My pulse rate goes up to the 125 - 135 range at the end of my treatment. Went through the cardio tests, multiple trips to see the cardiologist for him to finally decide the high rate is my body's response tp low vascular volume or in our terms I'm at my dry weight. To satisify the nurses we tried meds to lower my pulse rate but I could not function while taking them. At the end of treatment when i stood for a standing BP my lights would go out for a second and I felt like #%&%. Stopped the meds and told them high pulse at end of treatment is how I roll. No problems since.
BTW - I keep a "Dialysis Journal". Record key treatment info of every treatment. Document discussions with Dr and Nurse Pratc for future reference. It has come in handy several times. As the nurses say "When he goes to his book you cant argue with him".
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Hemo in Center since 11/2008
Self Cannulate since 2011
In Center Self Care since 2012
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