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Author Topic: I may not be able to get a fistula  (Read 1703 times)
Annig83
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« on: December 02, 2012, 12:49:20 PM »

Hey all!  It's been a while since on here, since my computer decided that it's too cold here in Indianapolis and died on me a few weeks ago. ;)

So here's my deal this week... 

I had vein mapping last week and I saw the doctor.  Apparently, I have a blood clot in my neck from past IV insertion and I have had blood clots in my right arm and my right lung.  I am currently taking Coumadin, but obviously there is some damage to my veins and arteries from the clots over the years.  My doctor is concerned about blood flow in my neck, and if a fistula/graft would be successful?  I have to have a CT done in both arms coming up in the next few weeks which requires two IV's in each hand  :banghead; :Kit n Stik; :stressed; 
If I don't have good blood flow, they may try my legs?  Does anyone have a working fistula in their legs?  Do you like it?  Is it easy to access?  I want to start home-hemo if they are able to get a good one placed.  Any ideas folks?
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
okarol
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« Reply #1 on: December 02, 2012, 01:26:12 PM »

Be sure to ask if they are going to use contrast dye in the scan. This can add more problems.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
sullidog
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« Reply #2 on: December 02, 2012, 06:51:31 PM »

My surgeon likes to use the leg as a last result b/c of it's not very sanitary down there if ya know what I mean.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
billybags
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« Reply #3 on: December 03, 2012, 11:15:51 AM »

okarol, you are spot on about the contrast dye./
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