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Author Topic: Disability due to Dialysis  (Read 13309 times)
Rerun
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Going through life tied to a chair!

« on: November 01, 2012, 05:48:35 PM »

I took a disability from my job due to ESRD aka trying to work and do dialysis for six months..... didn't work out.

That was in 2005.  I had an IRA that I'd now like to take some money out of.  I'm only 51 so they say I have to pay a penalty of 10%. 

I don't think I do because of the exceptions that say "Permanent Disability"  It refers to IRC Section 72(m)(7)

72(m)(7) MEANING OF DISABLED. --For purposes of this section, an individual shall be considered to be disabled if he is unable to engage in any substantial gainful activity by reason of any medically determinable physical or mental impairment which can be expected to result in death or to be of long-continued and indefinite duration. An individual shall not be considered to be disabled unless he furnishes proof of the existence thereof in such form and manner as the Secretary may require.

Does a person on dialysis fall under this section? 
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frankswife
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« Reply #1 on: November 01, 2012, 07:03:51 PM »

I believe you may not have to pay the penalty. Frank is cashing out his 401k, and if you are "permanently and totally disabled" the penalty is waived. There is a form you fill out for the IRS.
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"If we all abandon our posts, who then will stand?" St. Augustine
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #2 on: November 01, 2012, 08:04:16 PM »

Rerun - what are you citing the meaning of disabled from? That sounds like your plans rules, in which case I believe you would qualify. Typically disability is defined as an impairment lasting 12 months or longer or resulting in death.

As for the IRS, I believe there is a form the doctor has to complete and you retain it for records in the event you are audited. I found this link that summarizes the IRS stuff http://www.bankrate.com/finance/money-guides/irs-rules-for-early-ira-withdrawals-1.aspx

Dialysis/kidney failure is generally considered permanent unless you get a transplant, and if  you are not eligible for a transplant, I can't see any reason why they would deny your request.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
okarol
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« Reply #3 on: November 02, 2012, 01:58:45 AM »

ESRD is not curable.  :stressed;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!

« Reply #4 on: November 02, 2012, 09:24:17 AM »

OK, thanks.

            :thumbup;
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jeannea
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« Reply #5 on: November 02, 2012, 10:58:44 AM »

I took a bunch out of my 401K. I had to provide a paper that I was on Social Security disability and I paid no penalty.
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amanda100wilson
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« Reply #6 on: November 02, 2012, 01:17:19 PM »

it's a disability.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #7 on: November 03, 2012, 06:36:49 PM »

Yeah I phrased that wrong! But speaking in terms of how they view ESRD in the disability world -  dialysis is disabling, once you have a stable transplant, you're not necessarily qualified as disabled unless there is something else going on.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
MommyChick
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Me & my precious Miracle !!!

« Reply #8 on: November 03, 2012, 07:16:49 PM »

Yeah I phrased that wrong! But speaking in terms of how they view ESRD in the disability world -  dialysis is disabling, once you have a stable transplant, you're not necessarily qualified as disabled unless there is something else going on.
I totally agree with you!
Once you get a transplant as long as its a good working one, you can live a normal life, for the most part.
So tech. that wouldn't count as permanent.  Now I can see if your looking to be on dialysis the rest of your life & not want a transplant or even if other healthy problems are there then that might consider you for
"permanent disability".
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
jeannea
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« Reply #9 on: November 03, 2012, 08:54:09 PM »

For taking money out, it doesn't usually matter if you're permanently disabled so much as currently disabled. Being on dialysis gets you Medicare and Social Security benefits. Therefore you get your money without penalty. But not without tax.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #10 on: November 03, 2012, 09:09:58 PM »

You should not be penalized for early withdrawal due to disability or any kind of hardship you are dealing with.  You can pull some out to help with matters of hardship.  However, you do have to pay the taxes on it.  Not the penalty for early withdrawal.

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Rerun
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Going through life tied to a chair!

« Reply #11 on: November 05, 2012, 09:30:02 PM »

I had to dig out my Social Security "Award Letter" and I found some other papers.  That was back in 2006.  Some things have changed except I'm still on dialysis only for 8 hours 3 x a week instead of 3 hours 3 times a week like it said back then.

I'm sure I'll be fine.  I just have to pay tax but not the penalty.

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Jean
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« Reply #12 on: November 06, 2012, 01:16:20 AM »

If it is a regular IRA, then you are good to go, if it is a Roth Ira, I am not so sure. Call the IRS and ask them, that is the easiest way.
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One day at a time, thats all I can do.
Rerun
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Going through life tied to a chair!

« Reply #13 on: November 06, 2012, 05:56:20 AM »

If it is a regular IRA, then you are good to go, if it is a Roth Ira, I am not so sure. Call the IRS and ask them, that is the easiest way.

Yes it is a traditional IRA.

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jeannea
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« Reply #14 on: November 06, 2012, 05:47:33 PM »

If you need a new letter, go to your local Social Security office and they print one out.
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treesx4
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« Reply #15 on: November 22, 2012, 03:49:38 PM »

I have been declined 3 times to be on disibility.. Suck to be me!
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April 2011..2 biopsy's
April 2011..In hospital one week, had PD cath. put in.
June 2001..Started PD @ home
July 2011...PD cath. wrapped around my Bowels and was resting on my liver, had to have it repositioned.
August 2011..Had PD cath removed, Diaphragm had a hole and fluid was on my lungs.
August 2011..Had Ash Splint put in my chest..started Dialysis with DCI.
November 2011...In hospital for on week due to P.E...new dialysis machine and I didn't get my Heparin and it caused clots in my lungs.
December 2011..Had chest cath. replaced due to leak.
Feb. 2012...had access put in my arm...
May 2012...had chest cath. ripped out...no pain meds at all.

"Then your salvation will come like the dawn, and your wounds will quickly heal. Your godliness will lead you forward, and the glory of the LORD will protect you from behind." Isaiah 58:8
Southpaw
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« Reply #16 on: November 22, 2012, 10:19:00 PM »

Treesx4, why were you turned down? are u on dialysis?  I am still working but thinking when I finally go on dialysis I might have to apply.
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Rerun
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Going through life tied to a chair!

« Reply #17 on: November 23, 2012, 07:09:14 AM »

They will decline you if you are "still" working. 
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okarol
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« Reply #18 on: November 24, 2012, 11:00:22 PM »

I posted a news story, not sure the info at the end, about disability, is correct?
http://ihatedialysis.com/forum/index.php?topic=27900.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
smcd23
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The patient, the baby and the donor - October 2010

WWW
« Reply #19 on: November 27, 2012, 08:14:16 PM »

Okarol - are you referring to the "A" at the end of the Medicare #? That has nothing to do with anything. What it means in SSA/Medicare world...

A = Primary beneficiary, meaning you are the number holder that worked
B = Spouse of worker
C1, C2 - Child worker and what number child you are.
D = Widow of worker over age 60
W = Disabled widow between age 50-60
T = Worker eligible for Medicare only, collecting no cash benefits.

Numbers after any of the letters (aside from A and T) just tell us if you were the current spouse, divorced widow, what number spouse if there are more than 1 entitled etc. The numbers/letters at the end of the Medicare number have nothing to do with when Medicare will stop.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #20 on: November 27, 2012, 09:03:21 PM »

I thought the story was confusing, and no, I am not referring to the "A" but it is mentioned in the article.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
smcd23
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Posts: 528


The patient, the baby and the donor - October 2010

WWW
« Reply #21 on: November 28, 2012, 05:36:35 AM »

Glad I'm not the only one who found it confusing!
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
treesx4
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« Reply #22 on: November 28, 2012, 07:17:34 PM »

I just got the letter finally approving me. Since I left my job in August, all I need to send them are my payroll stubs!!
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April 2011..2 biopsy's
April 2011..In hospital one week, had PD cath. put in.
June 2001..Started PD @ home
July 2011...PD cath. wrapped around my Bowels and was resting on my liver, had to have it repositioned.
August 2011..Had PD cath removed, Diaphragm had a hole and fluid was on my lungs.
August 2011..Had Ash Splint put in my chest..started Dialysis with DCI.
November 2011...In hospital for on week due to P.E...new dialysis machine and I didn't get my Heparin and it caused clots in my lungs.
December 2011..Had chest cath. replaced due to leak.
Feb. 2012...had access put in my arm...
May 2012...had chest cath. ripped out...no pain meds at all.

"Then your salvation will come like the dawn, and your wounds will quickly heal. Your godliness will lead you forward, and the glory of the LORD will protect you from behind." Isaiah 58:8
Ricksters
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« Reply #23 on: December 01, 2012, 05:58:03 PM »

I stopped working in June....still haven't received any official notification that my SSD has been approved.  I called the local office three weeks ago, and was told I was approved and that I should receive a letter before my benefits start.  So seeing that the 5 month waiting period was up 2 weeks ago, if I don;t hear anything by Friday I will be calling again...somebody there has got to be able to tell me more than I will be getting a letter!

Ricki
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