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I Hate Dialysis Message Board
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Dialysis: General Discussion
I'm active on the transplant list!
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Topic: I'm active on the transplant list! (Read 1579 times)
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
I'm active on the transplant list!
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on:
November 13, 2012, 07:19:45 AM »
I got medical clearance on Oct. 30th! Woot! Kept meaning to post, but my touchpad wasn't charging. I'm using my cell phone cord for it, charges v e r y s l o w l y.
Fresh catheter every time took care of my infection problem. I blew through my health care fund through work, though, buying the new caths. Now it's hard to afford Iron supplements, but at least insurance pays finally (cause I couldn't afford the catheters anymore).
Tomorrow, my husband is getting evaluated as a donor. All day appointment at the hospital.
Oh, and, my brother doesn't match me, but volunteered for paired donation. His Evaluation is the 21st. Sadly, I can't go with him, it's the day before t-giving, and everyone already took off from work.
my gfr is 13, still not on the D, but feeling kinda slow and like my muscles are tired, or not breathing. I have been cleaning and entertaining like a demon lately, trying to tell my husband I need rest. He gets frustrated with how quickly I get fatigued. I worked OT this weekend, and only got three hours sleep. I have still not bounced back from it, and have a really full week this week. So tired! I need a break, really!
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Last Edit: November 13, 2012, 08:19:45 AM by MomoMcSleepy
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35 years old, first dx w/ chronic renal insufficiency at 28, pre-dialysis
born with persistent cloaca--have you heard of it? Probably not, that's ok.
lots of surgeries, solitary left kidney (congenital)
chronic uti's/pyelonephritis
AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
lainiepop
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Re: I'm active on the transplant list!
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Reply #1 on:
November 13, 2012, 07:56:33 AM »
Yay great news!
Hoping your hubby will be approved as donor and maybe you can avoid dialysis and get a pre emptive tx. My gfr was 10 for 9 mths and i was ok off it,
thinking of you X x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
Re: I'm active on the transplant list!
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Reply #2 on:
November 13, 2012, 08:18:09 AM »
Thanks for the encouragement, lanie!
Logged
35 years old, first dx w/ chronic renal insufficiency at 28, pre-dialysis
born with persistent cloaca--have you heard of it? Probably not, that's ok.
lots of surgeries, solitary left kidney (congenital)
chronic uti's/pyelonephritis
AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
MaryJoe
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Re: I'm active on the transplant list!
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Reply #3 on:
November 14, 2012, 09:28:28 AM »
Momo - that's stupendous news! I hope your husband is a match and your wait is over soon. How cool is your brother, volunteering for a paired exchange! Tell them both they are my new heroes!
P.S. Great news about your infection problem clearing up also.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
MooseMom
Member for Life
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Posts: 11325
Re: I'm active on the transplant list!
«
Reply #4 on:
November 14, 2012, 09:58:58 AM »
That's great news, but do try not to work too hard leading up to T-giving. Make your hubby help you out!!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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